hairrocks

Open Endometriosis

I habe had endo 9 years- after I got a cyst the size of a grapefruit on my ovary. Ever period feels like childbirth/contractions- from what people have told me. Nothing helps the pain. have pain on left side everyday- sharp atabbing pain. No doc can tell me why

Treatments

Extended-Cycle Birth Control Working / Worked

described below with birth control patch- did not wwork- still had pain- hated it

Hysteroscopy Considering

i really have considered this, but if endo has spread any where else out side that area- and sometimes docs can't even see it un less under a microscope- I also have always wishd to have my own babies one day- I'm in pain 24/7- with advances in medicine I don't want to make a decision now I'll seriously refret later.

Ortho Evra Not Working

I have been on birthcon. one time for like three years and even skipped my periods and has themonly evry third month. I still had pain all the time- It did not work

Surgery Somewhat Helpful

3 laporoscopies- found my endo initially, 2nd cleared some more scar tissue out and the last one discovered my bowels had adhered to the side wall. But I have never left a surgery feeling like I got the anwsers I needed or deserved. The 3rd was 2 see if endo had spread to back or kidneys- asked another gynoby looking at my lap. pics.- did the gyno who did the durgery look at my back- she said no. All that money wasted.

Lupron Not Working

The actual shot does not hurt at all- but it made all of my pain worse and I stopped the treatments after three months- I was still having periods and pain with ovulation and the sole reason I started it in the 1st place was to ease my back pain- endo can travel to your back- it made my back hurt more

Support from Friends & Family Somewhat Helpful

I think when you have been in pain for over eight years people start forgetting about u and moving on w/ their life even though u can't move on w/ yours

Support from Friends & Family Somewhat Helpful

feels like i burden my family- friends come and go

Drinking Water Not Working

I do not have diabete's but I do have an unquencheable thirst- my mouth is like cotton all the time

Open Dry Eyes

i HAVE DRY EYES AND MOUTH CONSTANTLY- JUST ANOTHER SYMPTOM TO MY LONG LIST (sorry caps were on- didn't realize it)

Treatments

Support from Friends & Family Somewhat Helpful

feels like i burden my family- friends come and go

Drinking Water Not Working

I do not have diabete's but I do have an unquencheable thirst- my mouth is like cotton all the time

Open Sciatica

I have horrible back problems and shooting pains down my legs- more my left than my right

Treatments

Ibuprofen Not Working

basically a sugar pill/placebo pill to me- I am on much higher pain scripts that hardly touch my pain

Stretching Not Working

I have done pysical therapy 2x- once in the water- made symptoms worse. I've tried exercising at home- my appendages go numb and or tingle

Support from Friends & Family Somewhat Helpful

feels like i burden my family- friends come and go

Drinking Water Not Working

I do not have diabete's but I do have an unquencheable thirst- my mouth is like cotton all the time

Open Back Pain

Treatments

Acupressure Working / Worked

awful- went to someone who practiced for 30 years- while tears were streaming out of my eyes and I told him the pressure was too much- for more keverage he got onto the table to get in their deeper.

Acupuncture Considering

only problem is insurance doesn't cover it and I am disabled with no income or disablilty checks coming in.- but open to it

Bedrest Somewhat Helpful

still in pain 24/7 but it is the only thing that keeps me sain

Chiropractic Adjustment Not Working

I was put on a machine that was suppose to move your body mm.- I did it three times each time- tears streaming out of the corner of my eyes- the chiropractor said only one other person had an adverse reaction to it- No one but myself can move my body.

Fentanyl Not Working

I was on the patch 50 mcg's- i think that is how it is measured- I was better off just drinking water- no difference at all

Flexeril Not Working

Zanaflex is the best muscle relaxer I have ever used- nothing compares and I have been on them all- no side affect- except sometimes a little drowsy- which I need. Ths is my favorite- period

Hydrocodone Working / Worked

but not by itself- it mucst be used inconjunction with another narcotic to do anything- I'm actually on Hydroprofen- Vicoden and Hydrocodone are based on tylenol- this is based off of ibuprofen- which helps with inflammation

Ibuprofen Not Working

nope- again like a placebo/sugar pill

Morphine Working / Worked

Kadian- 40mgs- 2x a day- seems to hlp somewhat but my doctor tells me mot toexpect miracles. Its reduces my pain10-15%- no side affects

Naproxen Not Working

nope- again like a placebo/sugar pill

Physical Therapy Not Working

has always made my pain worse- and I even did water therapy with a therapist who has been doing this for 30 years. She said if she couldn't help me, in the water- she was dumb founded

Relaxation Not Working

I tried to visit my grandparents- even before I was bed ridden- The fight was 45mins long and every jolt was like a sword in my back. I wouldlove to get away, but I have spasms/non-epileptic seizures and they can be unpredictable.

Stretching Not Working

my appendages go numb- even with the slightest exercise- I did 5lb weight lifting everynight for over a month for 30mins- an hour- My left arm specificaly went numb the next day- typing will do it too

TENS Not Working

nope- had one for over a month and sent it back because it was a waste of time and I did like the feeling but it never helped my pain, ever- even when I would raise up the power.

Nerve Blocks Not Working

I could not walk for a week- and doctors just told me that was impossible- it can't make things worse

Support from Friends & Family Somewhat Helpful

I think when you have been in pain for over two years people start forgetting about u and moving on w/ their life even though u can't move on w/ yours

Writing Working / Worked

I chronical everything that I am going thru- how docs treat me and why my life is so hard and everything I loved seemed to be taken away from me- but I know there is

Support from Friends & Family Somewhat Helpful

feels like i burden my family- friends come and go

Drinking Water Not Working

I do not have diabete's but I do have an unquencheable thirst- my mouth is like cotton all the time

Open Dizziness & Vertigo

I get Dizziness & Vertigo whenever I lay my head way back- like in the bath tub or to take pills or if I shake my head back and forth- I want to know what causes this desperately- can anyone tell me,

Treatments

Support from Friends & Family Somewhat Helpful

feels like i burden my family- friends come and go

Drinking Water Not Working

I do not have diabete's but I do have an unquencheable thirst- my mouth is like cotton all the time

Open Sarcoidosis

I have no clue if I have this - but some of my symptoms fit- so I thought I would check it out.

Treatments

Prednisone Not Working

had an allergic reaction to the shots and the oral made everything person

Drinking Water Not Working

I don't know if I have this disease- but I do not have diabete's but I do have an unquencheable thirst- my mouth is like cotton all the time

Open Abstinence & Celibacy

I am a second time virgin- but I didn;t sleep around- I refound my relationship w/ Jesus and I am know excited to wait for my wonderful husband.

Treatments

Reading Working / Worked

Faith Working / Worked

that god has a man who will understabd that i am a different person now then I was then

Open Breakups & Divorce

I have been chronically ill for two years and had two serious break-ups during that time- The first was my boyfriend of 3 yrs.- he needed me to take care of him and when I coudn't he started lying and dating behind my back- the other was someone who told me he loved me 1 morning and that night said because his parents didn't think I could handle things w/ my illness, he broke it off- we talked marriage.

Treatments

Forgiveness Somewhat Helpful

I am asking God everyday to help me with the second one because I have already healed from the other one

Leave Considering

but plane rides hurt me so much- I wish i could have a vacation it would be a dream come true

Music Working / Worked

love it as a distraction- hate when i hear a song that reminds me of a n ex

Pets Working / Worked

my pets have been very theraputic and have helped when I'm alone and crying

Psychotherapy Too Soon to Tell

I have been too sick to go to my counselor and have only seen her once- but for those of you who do not have insurance or money- most places have sliding scales or interns that you can work with- really cheap- I pay $20 a session and it si normally $145

Reading Working / Worked

The Bible helps a lot- especially Psalms and Proverbs- Psalms identifies with how you are feeling and Proverbs shows you how exes who have treated you bad will not get away with it :o)

Support from Friends & Family Not Working

I don't talk to anyone about this problem because I have too many as it is and this is something I can deal with on my own or with my counselor

Writing Working / Worked

I chronical everything that I am going thru- how docs treat me and why my life is so hard and everything I loved seemed to be taken away from me- but I know there is

Support from Friends & Family Somewhat Helpful

feels like i burden my family- friends come and go

Open Pet Bereavement

I had my precious Hobbes- 1 of the worlds sweetest, kindest dogs ever taken into the vet to see if they could help him with his legs (my dad did it for me) thinking there was only a slim chance he would be put down. My dad returned 1/2 hour later crying & now I can't stop- it's been three days- nov 3rd- my heart aches every sec- being awake is like a nightmare

Open Financial Challenges

medical bills up to my ears and growing- plus I am not working and trying to file for ss, we'll see- i am sure i will eventually have to file for bankruptcy

Treatments

Credit Counseling Somewhat Helpful

they couldn't help me because my debt toincome ratio was too out of balance- they suggested bankruptcy

Cut Up Credit Cards Working / Worked

Open Porphyria
Type: Acute Intermittent Porphyria (AIP)

After all the research I did- my doctor got a positive for this or possibly VP from my urine sample. There is a new treatment called HEME he says could possibly cure me- it's IV treatments- we'll see.

Open Bedrest

I'm not just on bed rest- I'm bed ridden- my life is my room and bed- except doctor appts. which are horrible

Open Brain / CNS Tumors
Type: Other

I have been diagnosed with a pituitary adenoma-3mm-but I have not been able to get it rescanned in over two years. Most doctors disregard it, but I am convinced it is contributing to my pain-Any insight would be welcomed.

Open Arnold-Chiari Malformation

looking into the possibility of whether chiari is what has been torturing me for the last four years or not