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Slowmoving 
7:26am, April 27, 2009
The good news is that MRI came back and I do not have a tumor in my pituitary gland!! Now I need to get started on the shots that I will need daily for the rest of my life. I figured this would be the easy part. But it has not turned out that way. I've been paying insurance fees to the same company since I moved to GA in the early 90's. They've , at this point, decided that they are not going to cover the disease or it's treatment since it's is extremely rare among adults. Children get it, but very few adults do. They really do not even know how many adults have it since it's so rare. The lowest dosage of medicince is 5mg. Usually after a month or two the dosage will have to be increased. The price of one month of 5mg is $900.00.
With David leaving me and all I have to live on is disability there is no way I can afford to pay that much for just one of my meds, when I have 6 others. I also have a car payments, utilities, food, etc. The company that is handling my medicine is aware of the situation. My case manager called me Friday and said my Dr. called her and said my levels are critical and I must have the medicine. The first 2 months are free anyway, so she was going to get them sent immediately and they would be here by Tuesday. I will begin my shots then. The dr. and her company are going to appeal the insurance company as this is not cosmetic surgery, denistry, or anything like that - it is a matter of life and death. She is aware of the situation between David and I and my financial matters. The pharmatutical company has reviewed my case and said if the insurance company continues to refuse my treatment, they will give me the shots for free for the rest of my life. This is a gift from God if I've ever seen one.! I would never have been able to pay for it, unless I moved to a shelter.
My parents in FL even said they wouldn't help pay??? (Things were tight for them, even though they're sitting on over a million dollars worth of rental property) I asked her if she could sell an apartment building to help me, "I wouldn't get what it's really worth, so you'll have to look someone else for help."
Is this where you say, you can't pick your family, but you can pick your friends. MaMa , my biological mom, is on social security, said she could send a little each month, and my newly found brother said he could help a little (even though we've never met face to face). I just thank God that I have found MaMa, Uncle Hank, and Jon. They have enriched my life, not monetarily, but with unconditional love to help me through this trying time. Jon has had 3 back surgeries and now has just been diagnosed with Type 2 diabeties. We blame it on Billy Gene, our dad. Every thing we blame on him. Neither one of us has met him, so when we get sick, we say, it must come from Billy Gene and laugh.
My sister, who I grew up with wasn't even aware of what was going on. My mother didn't even bother to tell her. So when I called her today, she was shocked and sad, because she also has been ill the last month. But my mother didn't tell me either. She has lost all feeling in one arm/hand due to buging discs/that had herniated in the thorasic area. She lives with her 3 children while her husband works 800 miles away. She needs immediate surgery, but has no help. I have a total disfunctional family!! I told her I can't pick up any of the children, but I can drive them to school and activities, put them to bed, read to them and help cook. Plus the plane goes straight through. So I'm waiting to hear from her. My mother likes to keep us as seperate as possible. We might talk about her if we call each other. That's sick. I could have had a close sister, instead we are strangers passing in the night. Hopefully we now know what's going on and can reach out to each other. Pray for us both, please. Her name is Karla and she lives in Nashville.
I said this was going to be a rambler. It was. If anyone stayed with it, bless you. It's hard when you have 2 families. One adopted and one biological. I'm sorry if you got confused.
Adopted: Mother, Father, Eric, Karla, and Me
Biological: MaMa, Uncle Hank, Jon, and Me - Billy Gene Mims ( Our Dad which we have not been able to locate) We think he's in Alabama or Minnisota (that's where we were conceived, but he's from Alabama and left 2 little girls and an ex wife behind)
Comments
I hung in there. LOL And it was no more a rambler than a lot of ours are. Sometimes you have a lot to say and some days you can think of nothing. (That's whats been going on with me the past couple of days)
Your insurance ought to have to pay. Unfortunately, they are like Social Security Disability... thier theme is DENY DENY DENY!!! At least until someone gets thier back up!
I am sorry that you are still in pain but from everything I have read, the Growth hormone will help with a lot of that. I hope it resolves some of your other health issues as well.
Yeah, you can't pick your family, have to live with
what you were given. Still think we ought to get together and write a book.
DixieBlue
I hung in there. LOL And it was no more a rambler than a lot of ours are. Sometimes you have a lot to say and some days you can think of nothing. (That's whats been going on with me the past couple of days)
Your insurance ought to have to pay. Unfortunately, they are like Social Security Disability... thier theme is DENY DENY DENY!!! At least until someone gets thier back up!
I am sorry that you are still in pain but from everything I have read, the Growth hormone will help with a lot of that. I hope it resolves some of your other health issues as well.
Yeah, you can't pick your family, have to live with
what you were given. Still think we ought to get together and write a book.
DixieBlue
I hung in there. LOL And it was no more a rambler than a lot of ours are. Sometimes you have a lot to say and some days you can think of nothing. (That's whats been going on with me the past couple of days)
Your insurance ought to have to pay. Unfortunately, they are like Social Security Disability... thier theme is DENY DENY DENY!!! At least until someone gets thier back up!
I am sorry that you are still in pain but from everything I have read, the Growth hormone will help with a lot of that. I hope it resolves some of your other health issues as well.
Yeah, you can't pick your family, have to live with
what you were given. Still think we ought to get together and write a book.
DixieBlue
If there's one thing I'm very aware of it's a dysfunctional family. My mother was just like yours. She always tried to keep all her kids fighting mad a one another so she could be the center of everything. But we managed to get thru it with plenty of scars. And since I left home at 16 and joined the Air Force, I was able to escape much of the way things were for the last 15 years of her life but the damage was done. My surviving siblings aren't as close as we should be and probably never will be. But we do the best we can.
What a gift from heaven for you to know you'll get the shots you need no matter what your insurance says. I just don't know how an insurance company can let a good customer down like that but I know it happens. Big thanks for your doctor and pharmatutical company for doing what's right. What a blessing!
But I want you do know that your DS family is still behind you and I'll help in whatever way I can. I'll even get a job to help if needed. There's no way I'd ever want to know someone is going without their needed medicine. I know how important medicine is and how you can't do without it.
Can't wait to hear how you are feeling after you get your first shot. Hope it has quick results!
Thanks for you comment on my journal. You are a sweetheart.
Be good and don't be starting any trouble but don't run away from any either!
Love ya, david
andrews
I am relieved to hear that you will be able to get the treatment regardless of what the ins co decides... as I'm sure they will try to get out of paying for it if they can... you just can't ever trust them to do what's right!
Sorry that you have to face the future on your own... it sure is not easy when you are not well... and not financial. But nothing is worth enduring a dysfunctional relationship for... as you well know, we deal with enough of that in our families!
I'm hoping that the treatment will have you feeling fantastic in no time... you might feel like a whole new person... ready to build a wonderful new life!
Sending lots of gentle hugs and positive thoughts for you.
Take care my friend,
Gaye xxx
GTK
Dee~ youhave the right and should appeal this decision of the insurance co,and then appeal it again if they deny it.It costs you nothing to appeal it.Don't give up and let them win ok not without a fight.Hang in we are all here for you always,,love you tons my friend,Deb
Deb115
Dee my thoughts and prayers are with you.
My prayer that you will get you meds from whom ever.
You are a very strong women, keep the faith
cathipurple
I'm so sorry you are going through all of this, but God is with you. He's helping you along the way.
We must get together for lunch..my treat this time! Message me your number, ok?
Miss you!
LunarAngel