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  • About Me

    Image of cally9

    cally9

    Female, 37, Married
    newcastle, GBR
    Member since October 3, 2007

    • About Me

      i am 35 with 2 children, 10 and 14. i was diagnosed with narcolepsy 7years ago, and in the past 4 years have had to make serious changes in my life as a result. i recently got married to a wonderful supportive man who still wanted to be with me even though i'd just been diagnosed with narcolepsy. we have been trying for a child for 3yrs with no success, not sure yet if this is linked to my condition and no-one seems to have the answers. i struggled through childhood with a cleft lip and palate and at 28 thought my days of people pointing, staring and ridiculing were over. now i have to deal with a new generation of ignorant people, and whats worse is this time it isn't kids. going day to day with public narcoleptic and cataplectic attacks is much harder to deal with. people automatically assume you're drunk or worse. its embarrassing for my children aswell. i feel extremely guilty when it happens when i'm out with them. they assure me its ok but it can't be nice for them having to sit on a bus listening to somebody slate their mother for something they know i can't help. i have a very supporting family but sometimes i feel the need to talk to someone who knows how i feel. so i joined this site in the hope of meeting people with similar problems.

      i am 35 with 2 children, 10 and 14. i was diagnosed with narcolepsy 7years ago, and in the past 4 years have had to make serious changes in my life as a result. i recently got married to a wonderful supportive man who still wanted to be with me even though i'd just been diagnosed with narcolepsy. we have been trying for a child for 3yrs with no success, not sure yet if this is linked to my condition and no-one seems to have the answers. i struggled through childhood with a cleft lip and palate and

  • Recent Activity

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  • Journal

    • This entry is private

    • the pain that is the nhs!

      Mood November 21, 2008 5:56pm

      after 2yrs of struggling with the pain in my left side, and numerous visits to the g.p who originally diagnosed a hernia and sent me to a specialist, …
    • This entry is private

    • the rollercoaster!

      Mood September 15, 2008 9:18am

      haven't been around for a while been on an emotional rollercoaster, had an appointment with neurologist in jun, he put me back on modafinil. so i …
    • i got married.

      Mood March 8, 2008 12:21pm

      well the day finally arrived and on the 29th of february me and paul got married. what with getting our new home just before christmas and now …

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  • Support Groups

    • Close Narcolepsy

      hi i'm cally, i went to the doctors 6 years ago thinking i was just anneamic, my g.p thought otherwise and referred me to a neurologist after numerous frightening tests it was confirmed i was narcoleptic. since that time myself, my fiance and my two kids have struggled to come to terms with the impacts of my condition.

      Treatments

      Dexedrine Working / Worked
      just started so we'll see how it goes
      Provigil Not Working
      had no effect apart from very severe headaches!
    • Close Cleft Lip / Palate

      i was born with a cleft lip and palate, or a hare lip as they used to call it when i was born. i had constructive surgery the first being at 3months old and the last when i was 16. i don't have any issues with my own cleft but am happy to help if i can any one who wants to talk to a veteran!lol.

      Treatments

      Reconstructive Surgery Somewhat Helpful
      it wasn't as advanced then as it is now and a few of my operations failed. i still have no nasal passage on the left side. and my cleft is still present in my palate.
    • Open Infertility, Secondary

      hi i'm 35 after 2 healthy children 14 and 10, my partner and i started trying 3 yrs ago for a baby. we've been together 6 years and just got married we hoped to have a baby together but now are starting to think its not going to happen.

      Treatments

      Mefenamic Acid Too Soon to Tell
      started me on mefenamic acid to control the pain during and after periods. doesn't seem to make any difference though.
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