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  • About Me

    Image of rc1941

    rc1941

    Male, 68, Married
    Redwood City, CA, USA
    Member since October 2, 2007

    • About Me

      I am a retired manufacturing specialist and a non-hodgkins lymphoma (Waldenstrom's Macroglobulinemia )survivor. I have been in total remission for over 8 years.

      I am a retired manufacturing specialist and a non-hodgkins lymphoma (Waldenstrom's Macroglobulinemia )survivor. I have been in total remission for over 8 years.

    • Interests

      Classical music of types, traditional jazz and pipe organ music. Setting up custom high end custom stereo systems, building/rebuilding/modifying sound equipment and windup phonographs.

      Classical music of types, traditional jazz and pipe organ music. Setting up custom high end custom stereo

  • Journal

    • Food required with Lunesta

      Mood August 8, 2008 3:21am

      I have found that Lunesta is much more effective if followed immediately with a small snack. It really makes a difference.
    • Journal Entry for November 15, 2007

      Mood November 15, 2007 3:49am

      I've been taking Lunesta for a few weeks now and it seems to be helping me sleep. I take one 3mg tablet plus 1 3mg melatonin 1/2 to 1 hour before …
    • Journal Entry for October 3, 2007

      Mood October 3, 2007 4:13am

      I started taking 300 mg of Wellbutrin XL this morning. I take it once a day with breakfast. I got up around noon and took all my medications. I felt …
    • Journal Entry for October 2, 2007

      Mood October 2, 2007 5:22am

      I joined Daily Strength tonight and I feel I can communicate with others having the same sleep problems as I have. I'm also a night person. …

    Read Journal

  • Hugbook

    Give rc1941 a hug



    • Superhero Status

      From spudmint September 22

      :-)

    • Hug

      From Emmie2486 August 23, 2008

      I know :(. I've recently made friends with Jo (JoEliza) and we've got loads in common so thats great. We both volunteer at The British Heart Foundation shop ( raises money to help foght heart disease ). So I am a volunteer already :)

    • Hug

      From blueeyes28 August 8, 2008

      thank you

    Read Hugbook

  • Support Groups

    • Close Insomnia

      I used to get regular sleep. At one point in my lymphoma disease I began feeling more and more anxious and became an insomniac. I have been in "normal" health for over 6 years and the sleeplessness hasn't gone away. I don't get anything resembling sleep until the time most people are getting up.

      Treatments

      Ambien Working / Worked
      At first it worked immediately.I literally staggered to bed and fell asleep right away. I was awake in 2 hours and that's all the sleep I got. It gradually lost it's effectiveness and didn't really work anymore.
      Music Not Working
      I can almost fall asleep in my music room while listening to music. If I get up and go to bed I'm wide awake for a long time.
      Rozerem Not Working
      I began taking this about a week ago. It does nothing.
      Melatonin Somewhat Helpful
      3mg dose. Have tried 6mg. If I don't take it I'm wide awake. If I take it I am more likely to get at least some sleep.
    • Close Non-hodgkin's Lymphoma
      Type: Other

      In July, 1994 I was diagnosed with Waldenstrom's Macroglobularenema, a rare form of non-hodgkin's lymphoma affecting the plasma cells. In January 2000 I had a spleenectomy and in May 2001 i started 4 sessions of Retuxin treatments. I have been in remission ever since. I am also a member of the insomnia community at DS.

      Treatments

      Rituxan Working / Worked
      It immediately caused an improvement in normal cell count and a reduction in tumor cell count. No side effects.
    • Open Enlarged Prostate

      I have had an enlarged prostate for many years and was first put on Flomax which was origninally designed for high blood pressure. It helped a bit but I didn't like the sexual side effects. I changed to Hytrin and it worked better without the side affects. I am now on Uroxatrol and Avodart. This works much better.My urologyst told me once the Avodart kicks in and your prostate shrinks, your PSA must be multiplied by 2 to get the real number.

      Treatments

      Avodart Working / Worked
      Has shrunk the prostate although not near back to normal
      Flomax Somewhat Helpful
      Didn't do much. Didn't like side effects. Stops normal ejaculation.
      Hytrin Somewhat Helpful
      Better than Flomax. Less side effects.
      Saw Palmetto Not Working
      Tried this with no difference from not taking it.
      Uroxatral Working / Worked
      Used with Avodart. No real side affects.
    • Open Prostatitis

      I have had an enlarged prostate for many years. My PSA has risen and I have had 2 biopsies which both came out negative. PSA can be raised by chronic prostatitis.

    • Open Depression
      Type: Clinical (Major) Depression

      I have been chronically depressed since I was treated for Waldenstum's Macroglobulenemia or WM, a rare type of non-hodgkin's lymphoma. Medications helped for a few years but lately the depression has gotten worse.

      Treatments

      Celexa Not Working
      Got hyper, nervous and anxious. Not what I needed.
      Cymbalta Somewhat Helpful
      Was on Paxil which made me too drowsy. Changed to Cymbalta which can cause fatigue.
      Paxil Somewhat Helpful
      Made me too drowsy.
      Psychotherapy Not Working
      Dr. not sympathetic with my case. Basically a pill pusher.
      Support from Friends & Family Somewhat Helpful
      The feeling of love and appreciation is supportive.
      Wellbutrin Somewhat Helpful
      Wakes me at breakfast. Still not able to concentrate easily.
      BuSpar Working / Worked
      Antianxiety drug. Too much makes you too sleepy.
    • Open Anxiety

      I am 67 years old and have had anxiety and depression for almost 10 years. I am a non-hodgkins lymphoma survivor.

      Treatments

      BuSpar Working / Worked
      Worked the best for anxiety but makes me dopey and drowsy.
      Paxil Somewhat Helpful
      Made me more social but too drowsy.
      Valium Working / Worked
      Worked great especially when taken with Melatonin for sleep. Dr. took me off of it.
  • Groups

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