Journal Entry for March 27, 2008
March 27, 2008 6:57pm
Majestic 
3:10pm, August 17, 2008
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About Me
Majestic
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About Me
I was born with Erb's Palsy. This is palsy caused by the forceps used during delivery when the doctor pinches the nerves of the Bracial Plexius. My entire left side including face was affected but now just my left arm. I have partial use of the arm and hand. I'd like to meet parents with young babies who still have a chance to get help and adults with my same condition. It is more rare now due to C-Sections for large babies like I was. Chronic depression for my entire adult life! Married to a Manic Depressive, not diagnosed until 3 years after we were married. Life can be real difficult. I can no longer work due to multiple disabilities, the major problem being my RSD. I have difficulty sleeping or sleep too much! I have to nap during the day. I suffer from sweats, cold, sweats. My pain doctor confirmed that indeed have Fibromyalgia on Nov. 17, 2007. I also have bursitis in my hips and on the left side, an iliac problem. I'm constantly fatigued and never want to do anything. I lost my mom when I was a baby so I have no memories of her at all. I have always had a hole in my life for the woman who gave birth to me. It hurts so much to see how close other mothers and daughters are. I had a step mom who never treated me the same as her kids with my dad. I always felt like an outsider, never belong anyplace. Now I'm married and my husband is close to his mom calling 2-3X/day and it drives me crazy; I think I am jealous they are so close. The subject of my mom was hush-hush while I was growing up. I tried to speak to a counselor when we had coverage but was blown off. I lost my dad in my 30's, but for some reason, I can accept that? Lost father-in-law and friend within a week of each other in August 2007. Christian.
I was born with Erb's Palsy. This is palsy caused by the forceps used during delivery when the doctor pinches the nerves of the Bracial Plexius. My entire left side including face was affected but now just my left arm. I have partial use of the arm and hand. I'd like to meet parents with young babies who still have a chance to get help and adults with my same condition. It is more rare now due to C-Sections for large babies like I was. Chronic depression for my entire adult life! Married to a Manic
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Interests
Photography, jewelry making, cats, dogs, hummingbirds!
Photography, jewelry making, cats, dogs, hummingbirds!
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Journal
This entry is private
This entry is private
This entry is private
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Weight loss goal
March 27, 2008 6:56pm
My starting weight should have been 247, but I can't see how to change it? I bought a new scale and found out the old one was not working …
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Hugbook
Hug
you are my side and support.. I lost my mom when i was baby i havent see her whole my life til she died when i was 17 it is hard part in my life i wish i could see and meet her before she died but now it too late it is so hard for me to accept... =(
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Hello folks, I have read all the entries of Captainishmael. I feel compelled to let you HEAR my side. We were HAPPILY married for 7 years. He had a tendency to get "hurt" while working a job he did not enjoy doing. In 8 years he was "HURT" 4 times. Let's face it work is just that WORK. There are people in this world who will get hurt to AQUIRE the sympathy of other people. Captainishmael's real name is Jeff. Norris - Note the period, he signes this on all of his papers. He would state that he was the only man with a period. This MAN was very lazy, content to let his wife (me) who is 18 years older than him work hard, clean, cook, even do yard work. While he would sit and play video games. I made more money then he did. That was until 2005 when he found out his father had brain cancer. He hatched a plan to leave me. He knew he was getting money when his father died. I worked really hard and bought him a plane ticket several times so he could go from Idaho to Alabama to see his father. When he came back after a week down there, he finally got a GOOD job making more money than me for the first time in our marriage. Looking back this was so that he could leave with the thought "Look how I had a job for her."This job lasted for 6 months and then he got "HURT" Now I am not saying that he did not get hurt, but I believe that he got hurt on purpose. He loved to FEEL pain. He would do anything for attention like that. From June 15, 2006 to December 16, 2006 he did nothing but sit on his butt and play video games. It was a mutual agreement that he leave to go get a job @ Edison Chouest in Louisanna. So, he left Idaho on December 16, 2006. His father died on December 18, 2006. He told me our marriage was over on December 28, 2006. He got a job working on the boats in January 2007. I do so afirm that not one time in our marriage did he say he was unhappy. He was treated like a king. I gave him surprise birthday parties, he came home to a spotless home, with a hot home cooked meal 5 nights out of 7, even the outside was beautiful. The so called abuse did occur as follows - I kept asking him what was wrong (I now know he was plotting to leave) I went nuts three times, I slapped him and pushed him and broke things. I am not saying that this was right, it was wrong. But, have you ever felt like no matter what you did for a person it was never good enough. Each time he would push me away, I would do more and more for him. I finally snapped after the emotional with holding of his love from me. He would never make any decisions with me, as he put it then if it was a mistake it would be my mistake not his. He came back to Idaho February 2007, telling me that he made a mistake and wanted to work out our marriage. He said a prayer that morning - (and I quote) Dear God this woman is an amazing woman. I know that you will work this out between us and make it right again. He waited till I went to work and grabbed some things and snuck away - just like the sneak he always was. One example - one day I was doing yard work he spotted me and turned onto a side road. I know that it was him because of the truck and the fact that he drives with his lights on, even during the day. I questioned him and he denied this. He did not want to help. As far as his dog is concerened, I moved down south in August 2007 and brought his dog with me. (the dog was actully a wolf-hybred that I bought him, I took care of him as well.) The house he said he bought was his brothers. He was allowed to stay there. I came down and went into the house. The police were called by his sister-in-law and they told me that I could not stay there. I asked them what to do with the dog and they told me to call everyone and tell them the dog was there. I left the dog on the porch with food and water and called his mother, aunt, brother and grand mother. His brother went to the the house and because the dog growled at him, his brother put a bullet in the dogs head. Jeff told me this fact, when I asked him where Jekota was. If I broke into the house like he said I did WHY didn't the police arrest me right then and there? I did not steal any checks. Last but not least dear friends, this man is GAY. He was not interested in a sexual relationship. We were married and did not have relations until that night. Beautiful right? Wrong, we made love one time. Why would a straight man who never had a sexual relationship only want to make love one time? If anyone was sexually abused it was me. I was STARVED for love. I am happily single now. I have been burned three times - a peta file the first, a crack addict the second and the last completely confused me. He is a gay lazy man who hides behind a strong woman. He also will do anything his brother tells him to do too. I will not fall for anyone again. Please forgive any miss spellings. That was one thing he always insisted on was perfect spelling. Too bad he did not know how to love........... If you have any questions feel free to ask. God Bless
Present
How are you ? I'm okay. Here's a Christmas present from me to you. Hope your holiday season is going okay for you. Take Care !! Always, Karen
Hug
Have a great weekend. Hugs Denise
Hug
a big hug from one RSD sufferer to another
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Photos
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Support Groups
Close Reflex Sympathetic Dystrophy
I have been diagnosed for about 7 years after tearing a ligament in my ankle. My RSD is now in both legs and spreading. I have a dorsal column stimulator for just about 5 years now. I used Oxycondone until 4 months ago when I could no longer afford it.
Treatments
- Morphine Working / Worked
- Nerve Blocks Somewhat Helpful
- The nerve blocks for me worked for a short amount of time.
- Topamax Somewhat Helpful
- I take Topamax more for Migraines, but I think it has helped with my RSD.
Close Obesity
High Weight was 298 in April 2006. Current weight - 241. I was not obese until I hit my 20's and got out on my own. I think I gained weight because I no longer had anyone telling me "NO" and I was able to eat when, where and what I wanted to eat. I also had a 24/7 job, so eating on the run and a choice of fast foods added pounds quickly! Gathering w/friends always involved food too.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- Cut down on my food portions! Cut out most wheats, sugars, desserts all in moderation maybe once a week!
- Physical Exercise Working / Worked
- I used to walk 4 miles a day before becoming disabled. No other exercise worked as well as plain old walking!
- Slim-Fast Not Working
- Slim fast never made a difference in my weight.
- Swimming Somewhat Helpful
- Walking in the water.
- Topamax Not Working
- I don't take Topamax for my weight, but for migraines and I have not seen a weight loss at all.
- Weight Watchers Somewhat Helpful
- Weight Watchers basically worked for me while I was attending the meetings! I lost 70 lbs. but after I left, I gained it ALL back plus some!
Open Depression
Type: Clinical (Major) DepressionI have been diagnosed with depression for over 13 years. I went off my medication in Jan 2007 until Sept 2007. At a recent physical, I was diagnosed with moderate depression and put back on medication.
Treatments
- Cymbalta Too Soon to Tell
- Just started Cymbalta in Sept 2007
- Prozac Not Working
- Prozac made me hurt myself
- Psychotherapy Working / Worked
- Wellbutrin Not Working
- Made me sick
- Zoloft Working / Worked
- Yook Zoloft for about 5 years
- Serzone Working / Worked
- Took Serzone for approx. 6-7 years
Open Hysterectomy
After years of heavy bleeding, ovarian cysts, endometreosis and fibroids in my uterus, I had a total hysterectomy at age 40. I had a previous laproscope for the cysts and endometreosis.
Treatments
- Black Cohosh Working / Worked
- Works very well for hot flashes as a natural alternative.
- Laparoscopic Surgery Somewhat Helpful
- Continued to have heavy bleeding and long periods.
Open Sleep Apnea
About 8 years ago i thought I must be dying because I felt so terrible. I couldn't stay awake for the life of me. My husband & I sleep in separate rooms due to disabilities. after a vacation, he told me how terribly I snored and I needed to see a DR. I was diagnosed with severe sleep Apnea. After 2 years of C-Pap and still tired i had another sleep test and a day test and found I also have daytime sleepiness!
Treatments
- CPAP Working / Worked
- I am on my third style of sleep mask.
- Lose Weight Not Working
- Sleep Somewhat Helpful
- I am still fatigued all the time!
Open Breast Cancer
I lost my mother to breast cancer when I was only 2 years old. I also had a great aunt with breast cancer who survived for years. I have raised money for Breast Cancer Awareness and click every day on the breast cancer site to fund mammograms. I wanted to join this site to get informed in case I too get breast cancer in the future. I have had a fibroidenomea in each breast. I started getting mammograms at age 27.
Treatments
- Surgery Working / Worked
- I had a fibroidenoma removed from each breast two years apart. Neither could be felt as they were so deep. Only found by mammogram.
Open Chronic Pain
I have suffered for going on 11 years with chronic pain starting with a surgery in 1997. I got diagnosed with Reflex Sympathetic Dystrophy about 7 years ago after tearing a ligament. I have a dorsal Column stimulator now for about 5 years.
Treatments
- Oxycodone Working / Worked
- Cymbalta Too Soon to Tell
- Heat Somewhat Helpful
- Hydrocodone Somewhat Helpful
- Lidoderm Working / Worked
- I use the patches on my upper back near my shoulders and lower back when i just can' take the pain anymore!
- Nerve Blocks Somewhat Helpful
- Oxycodone Working / Worked
- Physical Therapy Working / Worked
- TENS Somewhat Helpful
- Topamax Somewhat Helpful
Open Bereavement
Type: Loss of a ParentI lost my mom when I was a baby so I have no memories of her at all. I have always had a hole in my life for the woman who gave birth to me. It hurts so much to see how close other mothers and daughters are. I had a stepmom who never treated me the same as her kids with my dad. I always felt like an outsider, never belong anyplace. Now I'm married and my husband is close to his mom calling 2-3X/day and it drives me crazy. I lost my dad in my 30's, but for some reason, I can accept that?
Treatments
Open Fibromyalgia
I am DEAD tired! My husband doesn't understand me not being able to do the things I used to be able to do. See my profile for my multiple disability list. My pain doctor finally acknowledged I fit all the criteria for Fibromyalgia in Nov. 2007.
Treatments
- Cymbalta Too Soon to Tell
Open High Cholesterol
I've only had high cholesterol for about 5 years or so. I stopped taking my Pravachol in Dec. 2006 because of cost. I did however lower my number to 205 by changing my eating. I eat oatmeal every morning and have started to add chopped walnuts! I was put on symvastatin in Nov. 2007. Much CHEAPER!
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- Flax Working / Worked
- I add ground flax seed to oatmeal or sometimes when I bake or cook. It depends on the item I am making.
- Pravachol Working / Worked
- This worked just fine but i had to stop using it due to the high cost.
Open Environmental Allergies
Type of allergy: OtherI never experienced allergies in my home state. After moving to AZ 24 years ago, I found I am allergic to a lot of AZ native plants/weeds and trees plus dust. I also have allergies to cats but have 2 which I love dearly so I am willing to take a daily pill! I had the 300 or so allergy shot test performed on my back at the allergy specialist after suffering severe sinusitis for about 2 years.
Treatments
Open Paralysis
I was born with Erb's Palsy. This is palsy caused by the forceps used during delivery when the doctor pinches the nerves of the Bracial Plexius. My entire left side including face was affected but now just my left arm. I have partial use of the arm and hand.
Open Medicare
Due to multiple disabilites, i became Medicare eligible in 1997 but only picked up part A since I was covered by my husband. Had to pick up part B in March of 2007 and in Dec. 2007 I picked up my first Medicare HMO which is Healthnet.
Open Fatty Liver Disease
All of my ultrasounds of my liver show fatty liver but I have not had a liver biopsy.
Treatments
- Zocor Too Soon to Tell
- Just have been taking tis since Nov. 2007 to lower my cholesterol.
Open Multiple Myeloma
My maternal grandmother died f Multiple Myeloma and my aunt has had it now for about 5 years.
