Progress
10 %
distance (y.lap)
3
DixieBlue 
11:52pm Yesterday
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About Me
DixieBlue
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About Me
"I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best." � Marilyn Monroe I was diagnosed with CFS in March 2008. My life as I knew it had already changed completely. I was diagnosed with fibromyalgia in 1991. I worked with this illness and was able to maintain by using sick leave and vacation days for the most painful days. Then in November 2007 I started one of the worse fibro flares I have ever had. My legs started spasming and twisting my legs outward and so the story goes on... I lost my job, been turned down my SSDI twice. (Along with alot of other deserving people I am sure!) Living life one moment at the time. I am still a fun loving person. I have met some of the greatest and most supportive people on here. Knowing that we are all in the same boat makes me sad that they suffer as well but happy that I don't suffer alone. It is wonderful to be able to come here and talk about all that fibro and Chronic Fatigue Syndrome entails and also to come here and forget about it with people who understand that this is a life interrupting illness . So I would just like to say : THANKS YA'LL!!!
"I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best." � Marilyn Monroe I was diagnosed with CFS in March 2008. My life as I knew it had already changed completely. I was diagnosed with fibromyalgia in 1991. I worked with this illness and was able to maintain by using sick leave and vacation days for the most painful days. Then in November 2007 I started one of the worse fibro flares I have ever
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Interests
Music, Reading, Computers( pod cast freak :-) )My cat. flower gardening. My dog
Music, Reading, Computers( pod cast freak :-) )My cat. flower gardening. My dog
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Journal
This entry is private
This entry is private
This entry is private
This entry is private
This entry is private
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Hugbook
Hug
I miss you, too, and I AM trying!
Ray of Sunshine
Hi sweetie!! Hope the "As the stomach turns" soap opera is over in your house!!! Commented on your journal! Easy does it!! xoxoxoxo
Thanks
You've given me a few things to look forward to in this time of trying to resist panicking over my situation . . . . . .I would have sent the chocolate hug but I ate them all.
Ray of Sunshine
Sending a little autumnal sunshine your way.
It's a bright day here, been grey and raining lately, from the little i've been up to see. I've been awful sleeping, just getting a few hours here and there. Haven't been up much though. My mood has been getting lower, causing argumemnts with mum too. Think things with her may have turned a corner though, we seem to have called a truce.
Lot's of love to you sweetheart, I think of you often and am truly thankful that I 'know' you, even if from afar. I do hope that you are getting there.
Claire xxxx-
Rainbow
Commeneted on your journal, Linda...hope sleep was better last night!
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Photos
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Support Groups
Close Fibromyalgia
Treatments
- 5-HTP Working / Worked
- Aqua Therapy Working / Worked
- feels good while in the tub and about 15 minutes after
- Cyclobenzaprine Working / Worked
- I feel no pain while I am unconcious, I am told it is all in how you look at it
- Cymbalta Not Working
- Effexor Not Working
- Heat Working / Worked
- towel with rice in it works well as moist heat, loosens muscles for a while
- Neurontin Working / Worked
- OH HECK NO! Every nerve that wasnt screaming before started after taking this!!
- Provigil Somewhat Helpful
- Every time I take it I get a terrible lower back ache and my legs ache. Have discontinued at this point. Seems to start a fibro episode , would use it for the BIG days that I have to perform (funeral, wedding of family, that kind of thing and deal with the pain later!) Helps me stay awake in the daytime, and helps with the chronic fatigue
- Ultram Somewhat Helpful
- but the side effect is clinching teeth ergo TMJ issues
Close Chronic Fatigue Syndrome
Fibromyalgia and CFS are destroying the life that I was once blessed to have. I am not suicidal because I have had this long enough to know that there is life even through this. I have one son, he doesn't spend a lot of time with me now but I know that he is here for me. My doctors have not been very helpful unless I brow beat them.
Treatments
- Cymbalta Not Working
- Made me jittery
- Klonopin Working / Worked
- This one works for my anxiety and helps get a better night's sleep
- Paxil Not Working
- Provigil Working / Worked
- Awake in the daytime! At first, seemed to help with pain too. Lately having worst pain from base of skull, all the way down to tail bone ( may be side effect or just another fibro flare up)
- Zoloft Not Working
Open Chronic Pain
Maybe later... Fibromyalgia, CFS, TMJ and could add some more but I think that is nuff said
Treatments
- Chiropractic Adjustment Working / Worked
- Flexeril Working / Worked
- Heat Working / Worked
- Moist heat
- Neurontin Not Working
- This made every nerve that wasn't already screaming, SCREAM!!!!!
Open Health Care Reform
Interested in seeing changes for the better in health care.
Open Loneliness
Illness has changed my whole life. I live in a town where I only know my husband
Open Insomnia
CFS, Fibromyalgia and Chronic Insomnia and a list to long and boring to go over here. My profile pretty much covers it! I am reminded of an Annie Lennox song that says "Money can't buy it, Sex Can't buy it , Drugs can't buy it" I thought the song was talking about love but now I think it was talking about SLEEP!!!!
Treatments
- Ambien Working / Worked
- worked for a good while and then quit, Experienced sleep eating, walking and computing! Almost bought real estate in Costa Rica! Hid the computer before bed after that! Loved the No hangover part of this drug though
- Ativan Working / Worked
- Don't know why I quit taking it. Things usually become inactive with me after a couple of months.
- Counting Sheep Working / Worked
- Heck no! Noisy little buggers!!! I want them to bed down and shut up!!!
- Halcion Not Working
- I think they took this off the market. Worked well for me the short time I was on it but have often wondered if that was not where the sleeping problems became more sleep related than habitual ( My son when first born projectile vomited for 4 months , due to anxiety that he would choke in his sleep I coudnt rest properly.
- Lunesta Not Working
- Makes me have really trippy dreams and only worked for a couple of weeks before it quit working
- Music Somewhat Helpful
- Works sometimes
- Pamelor Somewhat Helpful
- This seemed to make me anxious
- Reading Working / Worked
- I love to read and I used to could read a couple of chapters and drift into the book. Now I find I have read the book! And it's daylight
- Rozerem Not Working
- Again with the twisted psyche dreams!
- Trazodone Working / Worked
- Couldn't deal with the twisted dreams!
- Valerian Working / Worked
- Worked for a good while and then quit working . Worst side effect was bad breath in the morning.
Open DailyStrength Members Community
To support the site with input of what problems and pleasures users are having. Input is the cornerstone, so here's mine...
