Progress
10 %
distance (y.lap)
3
DixieBlue 
12:15am Yesterday
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About Me
DixieBlue
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About Me
"I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best." � Marilyn Monroe I was diagnosed with CFS in March 2008. My life as I knew it had already changed completely. I was diagnosed with fibromyalgia in 1991. I worked with this illness and was able to maintain by using sick leave and vacation days for the most painful days. Then in November 2007 I started one of the worse fibro flares I have ever had. My legs started spasming and twisting my legs outward and so the story goes on... I lost my job, been turned down my SSDI twice. (Along with alot of other deserving people I am sure!) Living life one moment at the time. I am still a fun loving person. I have met some of the greatest and most supportive people on here. Knowing that we are all in the same boat makes me sad that they suffer as well but happy that I don't suffer alone. It is wonderful to be able to come here and talk about all that fibro and Chronic Fatigue Syndrome entails and also to come here and forget about it with people who understand that this is a life interrupting illness . So I would just like to say : THANKS YA'LL!!!
"I make mistakes, I am out of control and at times hard to handle. But if you can't handle me at my worst, then you sure as hell don't deserve me at my best." � Marilyn Monroe I was diagnosed with CFS in March 2008. My life as I knew it had already changed completely. I was diagnosed with fibromyalgia in 1991. I worked with this illness and was able to maintain by using sick leave and vacation days for the most painful days. Then in November 2007 I started one of the worse fibro flares I have ever
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Interests
Music, Reading, Computers( pod cast freak :-) )My cat. flower gardening. My dog
Music, Reading, Computers( pod cast freak :-) )My cat. flower gardening. My dog
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Journal
This entry is private
This entry is private
This entry is private
This entry is private
This entry is private
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Hugbook
Hug
Hi Dixie,missed you on skype last night and seeing Bernie's "Pink Penci"..LOL Love ,MEL
Flower
You need these today, you deserve these every day!!
Get Well Soon!
hi Dixie. Yeah I don't have enough hair now either. lol Glad you liked it. Oh No thats where the pain went. SORRY. Feel better soon. love ya and hugs Marilyn
Prayer
Prayers are with you that you may soon be able to rest for the night and not have any pain I hope for you a good night sleep take care
I’m With You
Feel the same way as you. Up down and all around my thyroid levels are messed up and I've developed a nodule on a thyroid that I took radioactive iodine for 30yrs ago so we don't know if its growing back or what and the endo thinks cause I've been so sick with the dental garbage its may be what's messing my levels up. Time will tell another waiting game. You just know your not the only one whose sad as life goes on without us. Hugs Mary
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Photos
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Support Groups
Close Fibromyalgia
Treatments
- 5-HTP Working / Worked
- Aqua Therapy Working / Worked
- feels good while in the tub and about 15 minutes after
- Cyclobenzaprine Working / Worked
- I feel no pain while I am unconcious, I am told it is all in how you look at it
- Cymbalta Not Working
- Effexor Not Working
- Heat Working / Worked
- towel with rice in it works well as moist heat, loosens muscles for a while
- Neurontin Working / Worked
- OH HECK NO! Every nerve that wasnt screaming before started after taking this!!
- Provigil Somewhat Helpful
- Every time I take it I get a terrible lower back ache and my legs ache. Have discontinued at this point. Seems to start a fibro episode , would use it for the BIG days that I have to perform (funeral, wedding of family, that kind of thing and deal with the pain later!) Helps me stay awake in the daytime, and helps with the chronic fatigue
- Ultram Somewhat Helpful
- but the side effect is clinching teeth ergo TMJ issues
Close Chronic Fatigue Syndrome
Fibromyalgia and CFS are destroying the life that I was once blessed to have. I am not suicidal because I have had this long enough to know that there is life even through this. I have one son, he doesn't spend a lot of time with me now but I know that he is here for me. My doctors have not been very helpful unless I brow beat them.
Treatments
- Cymbalta Not Working
- Made me jittery
- Klonopin Working / Worked
- This one works for my anxiety and helps get a better night's sleep
- Paxil Not Working
- Provigil Working / Worked
- Awake in the daytime! At first, seemed to help with pain too. Lately having worst pain from base of skull, all the way down to tail bone ( may be side effect or just another fibro flare up)
- Zoloft Not Working
Open Chronic Pain
Maybe later... Fibromyalgia, CFS, TMJ and could add some more but I think that is nuff said
Treatments
- Chiropractic Adjustment Working / Worked
- Flexeril Working / Worked
- Heat Working / Worked
- Moist heat
- Neurontin Not Working
- This made every nerve that wasn't already screaming, SCREAM!!!!!
Open Health Care Reform
Interested in seeing changes for the better in health care.
Open Loneliness
Illness has changed my whole life. I live in a town where I only know my husband
Open Insomnia
CFS, Fibromyalgia and Chronic Insomnia and a list to long and boring to go over here. My profile pretty much covers it! I am reminded of an Annie Lennox song that says "Money can't buy it, Sex Can't buy it , Drugs can't buy it" I thought the song was talking about love but now I think it was talking about SLEEP!!!!
Treatments
- Ambien Working / Worked
- worked for a good while and then quit, Experienced sleep eating, walking and computing! Almost bought real estate in Costa Rica! Hid the computer before bed after that! Loved the No hangover part of this drug though
- Ativan Working / Worked
- Don't know why I quit taking it. Things usually become inactive with me after a couple of months.
- Counting Sheep Working / Worked
- Heck no! Noisy little buggers!!! I want them to bed down and shut up!!!
- Halcion Not Working
- I think they took this off the market. Worked well for me the short time I was on it but have often wondered if that was not where the sleeping problems became more sleep related than habitual ( My son when first born projectile vomited for 4 months , due to anxiety that he would choke in his sleep I coudnt rest properly.
- Lunesta Not Working
- Makes me have really trippy dreams and only worked for a couple of weeks before it quit working
- Music Somewhat Helpful
- Works sometimes
- Pamelor Somewhat Helpful
- This seemed to make me anxious
- Reading Working / Worked
- I love to read and I used to could read a couple of chapters and drift into the book. Now I find I have read the book! And it's daylight
- Rozerem Not Working
- Again with the twisted psyche dreams!
- Trazodone Working / Worked
- Couldn't deal with the twisted dreams!
- Valerian Working / Worked
- Worked for a good while and then quit working . Worst side effect was bad breath in the morning.
Open DailyStrength Members Community
To support the site with input of what problems and pleasures users are having. Input is the cornerstone, so here's mine...
