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  • About Me

    Image of fibrobev

    fibrobev

    Female, 67
    WI, USA
    Member since September 23, 2007

    • About Me

      I am a mother and grandmother. I was diagnosed in 1986 with Fibro, but have probably had it since I was 5 or 6 years old. I was disabled with it in 1997. Just could not keep up enough energy for the high profile position I held. It was very stressful, as well, which did not work well with my Fibro.

      I am a mother and grandmother. I was diagnosed in 1986 with Fibro, but have probably had it since I was 5 or 6 years old. I was disabled with it in 1997. Just could not keep up enough energy for the high profile position I held. It was very stressful, as well, which did not work well with my Fibro.

    • Interests

      Reading, learning, people, grandchildren, family

      Reading, learning, people, grandchildren, family

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Long Time

      Mood March 6, 2008 4:22pm

      Well, it has been awhile again since I have written.  My mother-in-law, God Bless her, turned 94 in February, and is in really poor …

    • Journal Entry for December 26, 2007

      Mood December 26, 2007 11:06am

      I can not believe that it has been early November since I left a post.  I guess I did not realize I had been so busy and stressed since …

    • Journal Entry for November 5, 2007

      Mood November 5, 2007 6:44am

      Feeling miserable with a nasty cold.  My husband has had it over a week now.  He is worse and needs to see a Dr this AM.  He has …

    • Journal Entry for November 4, 2007

      Mood November 4, 2007 7:58am

      Found more old pictures when I was going though old boxes yesterday.  I have about six boxes of old, old pictures to go through and organize - …

    • Journal Entry for November 3, 2007

      Mood November 3, 2007 6:12am

      For some reason, my sleep has been interrupted the last couple of nights.  I am up very early.  My husband and I moved into a downsized …

    Read Journal

  • Hugbook

    Give fibrobev a hug



    • Hug

      From grannie November 7, 2008

      How you doing with your quit, have not heard from you.

    • Flower

      From snipper August 31, 2008

      Hi, I saw your mood wasnt great so thought Id send these for you. Sorry its been a while xxx

    • Hug

      From raindancer June 24, 2008

      thank you!

    • Hug

      From dauneymom April 10, 2008

      Your attitude of gratitude will get you through!

    • Hug

      From pianolady March 18, 2008

      Hope you are okay! Thinking about you! XOXO

    Read Hugbook

  • Support Groups

    • Close Fibromyalgia

      I am a mother and grandmother. I have been disabled since 1997 with Fibro, diagnosed in 1986. I am feeling the effects more as I get older. I have a laundry list of symptoms that come with this darn disease - exhaustion, pain, restless legs, insomnia even though I am so exhausted, migraines, irritable bowel, and the list goes on. The Fibro Fog bothers me the most and was the reason I retired from being a Systems Analyst. I am doing exercise and taking a natural supplement which seems to help.

      Treatments

      5-HTP Not Working
      I did not find this therapy provided any type of relief.
      Acupuncture Not Working
      I had limited success with this therapy.
      Aqua Therapy Not Working
      While I enjoyed the time I spent in the water, I did not feel it provided additional benefits.
      Elavil Not Working
      This provided absolutely no benefits.
      Neurontin Not Working
      This was a complete disaster. It led to an attempted suicide. This drug is awful for those who are not epileptic and who are not closely monitored. I was taking 30,000 mg per day, and no one was monitoring it. The psychiatric side effects are well known. At the time the drug company knew about the side effects and kept mum.
      Zanaflex Not Working
      No change was noted with this drug.
      Lyrica Considering
      While I do not know much about Lyrica, I can tell you that Gabapentin (Neurontin), which is also an anti-seizure med, has been prescribed for Fibo patients with some successs. They said it had zero side effects, but a few years later it turned out there were serious psychological effects from it if one was not suffering from epilepsy. Since this is an anti seizure drug, and seems to have multiple side effects, I am wary of it. I will not use Neurontin, but I would probably recommend it above Lyrica. However, a doctor needs to carefully monitor you and the dosage. I would be worried about some of the same things from Lyrica. So, after a horrible experience with Neurontin, I would never use Lyrica. My opinion only.... Prayers and Hugs
  • Friends


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