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MarcieM 
Well, I found this site because I am having a bad day. I don't have many unmanageable days thanks to the Sulindac. But when they do hit, they hit hard. I skipped my spanish class tonight, which I will pay for! But I woke up in pain, and stayed in pain all day. I could not motivate myself to go to class feeling this way. It got so bad in the last two hours that I resorted to a hydrocortosone. Otherwise I would get no sleep tonight and feel even worse tomorrow.
I am so glad I found this wonderful site. I am a Myspace addict... and this site is a myspace for fibromyalgia sufferer's. :) What a wonderful thing!
My biggest problem, on days of pain like this, is the total lack of support from my friends and family because this disease is so unspoken of. When I was diagnosed, I said "fibro my what?". I wish those near and dear to me could understand better. I wish they would even just try to. I pray God is going to send my soulmate soon, who will be the one who takes that time for me.
As hard as life gets with this, I gotta keep faith. Faith is all I have some days.
Comments
welcome to DS. Hope you feel better. Hugs to you!
Loan
laurenH
Hi my new friend! I hope today is better then yesterday. I have that problem too -- although my family and husband try to be supportive, it remains hard to truly understand. I did have a "breakdown" of sorts at the beginning of the year and I think that helped my family to see a little more about how hard this illness can be. But I also think unless you have been there it is really hard to TRULY understand. But the folks here definately do! Sending gentle hugs and a wish for a much better day today!
sjfrog