Journal

 I am going to my RE doctor today. My bi-anual visit. I wish I could go more often!!!!! But I wrote down all the vitamins mentioned to me on here to discuss with him. I always hate these visits. I feel like its the same thing everytime. "A little worse than last visit doc." We have been switching my sleeping meds like crazy trying to find one that suits my body. Some make me too groggy all day the next day. Some make me feel sick to my stomach. Some dont put me to sleep fast enough to do any good. The one that worked best at putting me to sleep and keeping me asleep... I got immediately addicted to and started becoming "nonfunctional" earlier and earlier each night. So it had to go. What I am on now (Clonazepam) worked GREAT the first few weeks. But now I am back to my usual patterns. Hard time falling asleep (too much pain and too much stress on my mind). Then I wake up often during the night. This whole week I start waking up around 4:30 and wake up every 30 minutes or so. So I feel DRAINED! Maybe I should increase to two of this pill? We will see what he says. I wish I could have ONE pill that would help me sleep right, ease my pain, and not cause any side effects!!!!!! I hate taking medicines. I hate paying for them! I hate how they make me feel! But a day without my pain med (Sulindac) and I pay for it for days. I want something that helps more, but I hate to go off of one that works as well as this one does when its likely I will have to go through several that dont work before I find one that does. So for over a year I have chosen to take it as it is.

Yippee!!!! Its my favorite time of the week. FRIDAY NIGHT!!!!!!!

 Sleep in tomorrow. Laze around a bit. Then do the things I want to do!

 I am still in more pain this week than usual, but much better than on Tuesday and Wednesday. I go to my specialist doctor next Friday. So I need to start making my list. I only get seen twice a year.  So I feel like its such a cram session. Do most of you get more regular appointments with your doctors??? And what kind of doctors do you see? (Just curious).

 Well thanks for all the warm welcomes here! Its a wonderful place! May each of you have a pain free, sunshine and laughter filled weekend!

 ~ Marcie

Well, I found this site because I am having a bad day. I don't have many unmanageable days thanks to the Sulindac. But when they do hit, they hit hard. I skipped my spanish class tonight, which I will pay for! But I woke up in pain, and stayed in pain all day. I could not motivate myself to go to class feeling this way. It got so bad in the last two hours that I resorted to a hydrocortosone. Otherwise I would get no sleep tonight and feel even worse tomorrow.

I am so glad I found this wonderful site. I am a Myspace addict... and this site is a myspace for fibromyalgia sufferer's. :) What a wonderful thing!

My biggest problem, on days of pain like this, is the total lack of support from my friends and family because this disease is so unspoken of. When I was diagnosed, I said "fibro my what?". I wish those near and dear to me could understand better. I wish they would even just try to. I pray God is going to send my soulmate soon, who will be the one who takes that time for me.

As hard as life gets with this, I gotta keep faith. Faith is all I have some days.