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i want some good news!!! Mood
Wednesday, October 1, 2008 | A Frustrating story

i have been nothing but positive and determined throughout my illness and have refused to allow it to take control and bring me down.  but this god damn thing can be sooooooooo frustrating and could easily bring a person down.

i would really like some good news, just to perk me up a bit cos right now, i really feel i need it.

on monday, my 15 yr old son was dx with hep c.  that was heartbreaking and he needed much quality time and help to give him an understanding of the disease and what he may or may not have to face along with lotsa reassurance and hugs.  and you'll all be pleased to know that he's getting his head round it really well and is ready to fight.  thats my boy!!!

today i go for a routine scan and find out that my spleen is not just enlarged but is massive and that i have not one or two but lotsa of gall stones, that my liver was what they would expect to look like for a stage 6 liver although they would have prefered it to be a bit smoother, that a couple of lil veins had burst in my abdo and then they talked about something else which i didnt quite catch and suggested "we better check the lymph nodes if thats the case". alarm bells are not ringing as such yet cos i have learnt to wait for the answers from the proper ppl, but i certainly dont like the sound of what they saw.  still i only have to wait til friday cos i'm back to see my hepatologist then and i guess all will be revealed then.  if they need to operate on spleen or gall bladder then i will have to come off tx, but then again, they prolly cant operate cos all my bloods are down and i know they like the platelets to be at least 100 to be cleared for surgery.  so hopefully they wont take me off tx.  hopefully they will let me continue as this is my only chance and hopefully the thing they saw that they wanted to also check the lymph nodes for is not the dreaded c.  but again, we will see.  friday will tell all.

more than ever now i need to hang around to help my son through his battle and i pray that god will allow this.

i am still v positive cos i believe this is the only way to be in order to get a positive outcome and i am more determined than ever to see this thing through so i can help my son, but i cannot help but worry that i may not have the time.  i hope and pray that friday will, for once, bring good news my way and give me fresh inspiration to fight even harder.

thanks for listening my wonderful friends:)  and sorry to be venting once again.

luv ya

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Comments

  1. Mckenzie

    I have you in my Thoughts and Prayers my dear friend.
    I am soo sorry to hear more bad news, as hard as it may be, please try to keep a positive outlook..
    I feel for you my friend, but am and always will be by your side for you, and your son.
    Love you always my darling Pepy, sending you a gentle hug my loving friend.
    Mckenzie one day at the time.


    MckenzieCommunity Leader

  2. AliasPandaBaby

    I love your positive attitude. It does make things better to try and stay positive. I hate to think with how serious your liver damage is how you would be if you weren't a strong and positive woman. I find to that attitude helps you through some tough stuff. Sounds like you have a good doctor. Worry just stresses you out when waiting for results. I pray they find the conditions not being to serious. I hear if you get the gall bladder removed it relieves much of the pain. I know I feel pain more in that area because I have a lot of gall stones to. Looking on the better side if you have yours removed you should feel less pain. I am glad your son is like you. To be so young and handle this like he has must be a blessing for you. I will have you in my prayers for God to be with you and keep you strong through your trials. Hugs, Panda


    AliasPandaBaby

  3. pepy

    thank you panda. it means soooooo much to me that you should take time to give your support when it is you, more than ever now, who needs so much support. i agree tho. a positive attitude is a must and along with a smile it does releave some of the stress attached to the anxiety of the disease. but we dont want any stress do we?? cos stress only makes things worse! if we can take things in our stride and resign ourselves to coming quickly to terms with whatever is dished out to us, we can more quickly deal with the problem at hand. then theres faith. thats a must cos we all need to be able to put our trust in the lord that he will not let things get too bad for us. to date, he has only ever given me an amount that i can deal with, no more and no less, just what i can deal with. i believe that goes for all of us. its just a damn shame some of us are so strong lol. but suffer little children not. they are safe in his hands.
    thank you for your kind words about my son. he is a blessing and very strong too (fortunately or unfortunately i dont know) but he does have a good attitude towards slaying this dragon of ours.
    i heard that about the gall bladder too. would be nice to get some release from some of the pain, but hey, who knows what they're gonna say tomorrow when i see my hepatologist. i will play it by ear and see what they say. of course tho, i will keep you posted.
    now my friend, go and get you some quality rest and some respite from your pain for a while. may you awake with the sun shining throughout your day.
    hang in there hon, stay strong, keep positive and smile.
    luv ya
    x


    pepy

  4. pepy

    thank you mckenzie once again honey:) you are such a wonderful person. imagine, you are cured of the disease yet you choose to stay here just help. thats some woman and some big heart! thank you.
    i'm positive my friend. no worries and i'm ready for good news tomorrow, and even if its bad news it will be good news by the time i get home again. lol whatever good is in there i will find it.
    will let you know whats what then.
    in the meantime hon, you have a peaceful, pain free, positive and happy nights sleep and awake in the morning to nothing but sunshine.
    luv ya
    x


    pepy

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