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  • About Me

    Image of MamasChild

    MamasChild

    Female, 48
    NJ, USA
    Member since September 18, 2007

    • About Me

      I've past Mama's one-year anniversary. Things going badly - nothing's changed except to get worse. After my parents died, I was declared legally blind. (I can see but I can't drive at night, so work is difficult.) Here's my story. I was an at-home caregiver to my Mom for five years; first dementia and physical issues (which later may have caused her passing), then hospital bed at home the last 13-14 months or so of her life on a feeding tube - against everyone's advice. I was always fighting the tide - alone without my Mama's advice. At the same time, also caring for my Alzheimer Dad's needs in another location juggling Mom's Aide schedules with his so I could get into his apartment. He later broke his hip and had to be placed in nursing home. In the next few months, he was "okay", but I watched him go downhill. The week of my mother's funeral, I had to make the decision to put Dad on a feeding tube, too. I never told my Dad that Mama died until moments after his passing, six months later - "Daddy, Mama died." They seemed to be the first words that came out. Emotionally, I'm worse now than when they were alive, and I almost don't care. Then, it was more exhaustion - now it's emptiness, depression and questions of guilt - and the pressure of finances. I cry alot - maybe more than before.

      I've past Mama's one-year anniversary. Things going badly - nothing's changed except to get worse. After my parents died, I was declared legally blind. (I can see but I can't drive at night, so work is difficult.) Here's my story. I was an at-home caregiver to my Mom for five years; first dementia and physical issues (which later may have caused her passing), then hospital bed at home the last 13-14 months or so of her life on a feeding tube - against everyone's advice. I was always fighting the

    • Interests

      Basically, I've lost interest in most everything. Computer and TV are pretty much it.

      Basically, I've lost interest in most everything. Computer and TV are pretty much it.

  • Journal

    MamasChild hasn’t written any journal entries yet.
  • Hugbook

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    • Prayer

      From missyoumom September 6

      I'm praying for you today on your Mother's second anniversary. I can't believe it has been two years for both of us. I am planning on going to mass with my Dad and visiting the cemetery on Wednesday. Take care of yourself.
      Love,
      Trisha

    • Hug

      From missyoumom September 3

      You are in my thoughts and prayers as you approach your beloved Mother's second anniversary. My Mother's second anniversary is upcoming on 9/9. I am missing her terribly! God bless you.
      Trisha

    • I’m With You

      From 2bsMom August 27

      Thank you and know how much I appreciate your understanding. It sounds like you've been through a very tough time and were a wonderful care giver to your mother. I can't even begin to imagine how hard it must have been for to care for her at home and yet how sad for you at the same time. Thanks again for being here.

    • Hug

      From NormaMc August 23

      sorry Hon, I have no wise words I can offer you, so I give you this hug, but I mean it from the bottom of my heart. Norma

    • Prayer

      From starfish August 18

      Ow, ow, ow, ow, ow, ow, ow......

    Read Hugbook

  • Support Groups

    • Close Bereavement

      Lost my Mom 9/6/07. Would have been 100 in Nov. I was her caregiver 5 yrs; she was in hospital bed at home since last June. Caring for Dad in another location. I'm an only child but while I knew Mom couldn't be here forever I had a hard time with medical decisions I made for her in past years (she wouldn't see docs) - decisions which affected her in the end. Now, I worry that her last few days were my worst decisions; even her burial is coming back to haunt me now in bad decision making.

    • Close Alzheimer's Disease

      Mom died in September, with pneumonia & AD listed as caused of death. As her caregiver for 5 yrs, I knew it wasn't AD. Mom was more dementia than full-blown AD but without her seeing docs, I had to self-diagnose. Combined with other health conditions, my heart breaks as I watch DVDs taken this year where she asks who I am - either she didn't know my voice or hard of hearing? Yet, her concern was for her daughter to eat, stay warm & that God protect me. My Dad has AD and is in nursing home.

    • Open Blindness & Visual Impairment

      Just lost my Mom last year after being her caregiver for years. Now, expecting to get a job and move on, I've gotten the news that I may have retinitis pigmentosa.

    • Open Arthritis

      MamasChild hasn’t entered any details for this support group.
  • Groups

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