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Friend4 
4:07am, July 25, 2008
My son has broken up with his girlfriend. He is an emoitional wreck so I've been spending lots of time listening and advising.
I feel down myself does not help that i ran out of one of my meds but i don't show him this.
See nureologist in a couple of weeks regarding the dysautonomeia (problem with my central nervous system).
Wishing you all lots of wellness thoughts.
Love and prayers
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Hi Friends,
Specialist checked bp standing ( 120 / ? ) then lying ( 100 / ? ) then standing again ( 125 / ? ). He said it should rise on lying - don't know what this means.
Going to the CFS clinic on Tuesday. Some friends offered to take me.
U/sound of thyriod showed lumps. I am not worried as I have benign lumps through out my body. Will follow-up with drs soon.
Love and hugs
Thoughts and prayers
Comments
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Hi Margaret
your BP measures mean as you stand up your pr drops , the fancy name is postural ( from posture ) hypotension , what it really means is you may be prone to fainting attacks / feeling lightheaded when you stand up suddenly or get out of bed quickly !
I am very annoyed that drs are putting things on your mental state when they do not know what is wrong ! It is like adding insult to the injury ! do not accept it and take a friend with you when you see them and argue your points ! I think you are very intelligent and have the mental tenacity to challenge what they are saying ! If you got time , send me a synopsis of your symtoms + test results + treatments with time period in a message . I will do some searches for you !
Mega hugs to you ...........Have a wonderful day !
Monica
Sorry I am not here very often. I find the computer a bit difficult with the neck.
GP did a 24hr blood pressure monitor because the eye specialist said Bp under 110 could be causing my 'normal tension glucoma'. My bp range is 112/? to 74/? Dr said it was the lowest he had seen. He want me to got to a chronic fatigue clinic and work with a psychologist and exercise psychologist. The only trouble is getting there. If I am ment to be there then by God's grace there will be a way but for the life of me I don't know how!!!
See a nurologist who will be checking for dyautonomeia (central nervour system dysfunction) in November.
Getting frastrated with the drs. They keep disagreeing with each other and I am in the middle. Then they disagree with me 
My psycharistis said its because of the complex nature of the case, its not me. That may me feel a bit better but does not change the situation.
Love and prayers to all
UPDATED GOALS
Be more regular on DS
Progress 25%
Encouragements: 0
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Hi Margaret
A very good morning to you . Incidently my BP has been 110/68 all my life and all I have to be careful about is to eat every 3-4 hours as I can get light-headed very easily ! I am sorry you are having such a tussle with your drs , if they are not on your side life can get very frustrating ! I know how you feel ! I have been there recently . Stay srong and make demands . you will be listened to !!
Loads of love and hugs ..............Monica
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i know what it is like with all the doctors.because some time they dont listen. could it be the msdcine. lots of hugs mawmaw
Past Entries
Goal Updated
its hard when I kids have problems no matter how old they a hope you get your meds soon take care of your self hugs, ann
maelynn
we always put our kids first. take care .lots of hugs
mawmawof8