Journal Entry for January 7, 2008
I am trying to put together a team of 60 for the Cystic Fibrosis walk on May 3 at the State Capitol here in Sacramen I have 4 so only need 56 …
I am a mother of 3 kids 2 girls 1 boy also have 4 grandchildren 2 boys 2 girls. I have Neurofibromatos so does my oldest daughter. My granddaughter was diagnosed with Cystic Fibrotosis at 3 weeks old.
I am a mother of 3 kids 2 girls 1 boy also have 4 grandchildren 2 boys 2 girls. I have Neurofibromatos so does my oldest daughter. My granddaughter was diagnosed with Cystic Fibrotosis at 3 weeks old.
Spending time with grandkids taking pictures, traveling Playing with my two dogs (Bichons)
Spending time with grandkids taking pictures, traveling Playing with my two dogs (Bichons)
I am trying to put together a team of 60 for the Cystic Fibrosis walk on May 3 at the State Capitol here in Sacramen I have 4 so only need 56 …
Well the year is almost over and I will be another year older! Max is taking me out to dinner Kids may come by that's about it. Went shopping …
Happy New Year, Hugsssssssssssssssssssssssssssssssssssssssssssssssssssss and Lovessssssssssssssssssssssssssssssssssssssssssssssssssss and Prayerssssssssssssssssssssssssssssssssssssssssssssssssss
I hope your doing well, keep luving thoes grand-babies
hey lady :) CFer's are generally NOT supposed to be around other CFers because of bugs like P.A. and B. Cepacia. "normal" people catch theses bugs and cough them right out. CFers catch it and it makes a nice little nest in their lung because of the mucus. The mucus is warm, moist, amd sticky which is a perfect place for bugs to get. So a CFer can get these bugs from other CFers that have already been exposed to them. For the most part, CF camps and the like do sputum cultures before you're allowed to attend, the cultures test for the antibiotic resistant germs. It's a hard call because CFers need someone who knows what it's like having CF to be around, for emotional purposes. So it's really just the caregivers call, ya know? It's tough trying to find where to draw the lines... Hope this helps ~hugsnkisses Noel
happyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy 4th
New here- My granddaughter was just diogonsed with Cystic Fibrosis she is only 4 weeks old
I'm a mother of 3 and grandmother of 4 I have NF1 and my oldest daughter also has NF1 no one else has NF