My life as it gets lived
August 28, 2008 12:47pm
At the beginning of the month I began to have some serious midsection pain on the right side from midline front all the way around to my spine …
pengie
12:04pm, February 3, 2009
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About Me
pengie
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About Me
I am going on four years diagnosis of metastatic neuroendocrine tumors of the liver. I am married 29 years with a son, 23, and daughter, 21. I work in a second hand book store--the job of a lifetime, and I love to read. I also quilt and do other crafts.
I am going on four years diagnosis of metastatic neuroendocrine tumors of the liver. I am married 29 years with a son, 23, and daughter, 21. I work in a second hand book store--the job of a lifetime, and I love to read. I also quilt and do other crafts.
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Recent Activity
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Journal
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Update
May 7, 2008 12:02pm
These last few weeks have been tremendously busy. I spent two weeks in Arkansas with my mother and then I came back for tests, treatment, and a …
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Rambling Rose
April 17, 2008 12:14pm
As far as my disease goes, I don't anticipate any news. I am going today for my semi-annual CT scan, where I don't think there will be …
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Journal Entry for September 16, 2007
September 16, 2007 9:44pm
Four years ago, I found out I had carcinoid and it was a real roller coaster ride for a couple of weeks till I found out exactly what it was and what …
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Hugbook
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You haven't been on in a while. I hope you are doing okay. Just wanted you to know you are in my prayers. Please let us know how you are doing. Thanks, Rhonda
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Big weekend hugs to you pengie love Jokeyx
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Thank you, Norma
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Hug
My prayers are with you. My husband passed away Feb 29 from liver cancer. Neuroendocrine tumors. he was diagonosed Feb 14 and gone the 29. it was to late there was nothing they could do for him. It progressed for fast. He had been feeling bad since Nov but kept putting of going to the doctor. Then end of Jan the pain got worse and he went but the doctors to long in testing him and it was to late. He really never had any symptoms till the end. i miss him so much. hope everything goes will for you.
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I’m With You
I will be thinking of you pengie be strong I am with you all my love JJx
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Photos
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Support Groups
Close Carcinoid Syndrome
I have known I've had carcinoid for four years and it's been quite a journey. One saving grace for me is that I have never had a "why me!!!!!!!!!!!!!" attitude. I will whine when I don't feel well or when I am in that week before my next $5000 shot. I have since met two people in person who also have carcinoid--that's been really good for me to find someone who UNDERSTANDS me.
Treatments
- Octreotide Working / Worked
- I am getting these wonderful shots once a month and for the most part, they are working. I have the bonus of being of a a "certain" age where I can't tell if I am flushing or if I am having hot flashes. I do get a PMS-ish week right before my next shot is due.
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Friends
