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  • About Me

    Image of BarbaraJS

    BarbaraJS

    Female, 37
    Ashtead, SRY, GBR
    Member since September 13, 2007

    • About Me

      I am a software designer and technical author. I am married and have a 5 year old son. I have had 4 surgeries on cervical spine in the past 7 years. I have 2 fusions, have cervical stenosis and have permenant damage to the spinal cord due to the severit of cord compression.

      I am a software designer and technical author. I am married and have a 5 year old son. I have had 4 surgeries on cervical spine in the past 7 years. I have 2 fusions, have cervical stenosis and have permenant damage to the spinal cord due to the severit of cord compression.

    • Interests

      I love reading, quilting, embroidery, films, instructing my husband what to do in the garden (can't do it myself), and of course spending time with my 5 year old and husband.

      I love reading, quilting, embroidery, films, instructing my husband what to do in the garden (can't do

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for November 23, 2007

      Mood November 23, 2007 10:57am

      I got the scan results yesterday, and nothing really major showed on it. A couple more prolapsed discs, but nothing touching the cord. My Dr thinks …

    • Journal Entry for November 20, 2007

      Mood November 20, 2007 11:58am

      Had scan today. It hurt to be lying on my back - my spine hurts so much. They saw that I was in distress and stopped the scan for a while. Get …

    • Journal Entry for November 18, 2007

      Mood November 18, 2007 3:25pm

      Its been a while since my last entry. Things have been pretty much up and down.

      I can't remember whether or not I told you that was turned …

    • Journal Entry for September 30, 2007

      Mood September 30, 2007 2:58pm

      Had a wierd thing happen lastnight. I got up to go to bed, and my brian forgot to tell my legs to work. Just collapsed on a heap on the floor! This …

    • Journal Entry for September 27, 2007

      Mood September 27, 2007 4:25pm

      Had a really good day re:reflux and lyrica.

      Had a really bad pain day. The whole of my spine hurt (not my back, just my spine) and my legs hurts so …

    Read Journal

  • Hugbook

    Give BarbaraJS a hug



    • Good Luck

      From SnowRider80 November 23, 2007

      Looking forward to your scan results. Don't be discouraged if the results aren't glowing. We never know whats around the corner.

    • Hug

      From april31750 November 21, 2007

      HAVE A HAPPY THANKSGIVING!!

    • Flower

      From SnowRider80 November 20, 2007

      There's Ben! Ha, those pics are the greatest!

    • Hug

      From SnowRider80 October 13, 2007

      Hi Barb! I hope you and the boys are very very well. I'm still working off the cupcakes I made a couple weeks ago after your journal gave me the big idea! They were scrumptious, I just should have stopped on my 8th cake. Hope to see you soon

    • Hug

      From Jennifer222 October 11, 2007

      Thinking of you. Lots of love and hugs

    Read Hugbook

  • Support Groups

    • Close Back Pain

      I have 2 fusions in my neck and have had 4 cervical spine surgeries in 7 years. I have permenant damage to the spinal cord and have cervical stenosis

      Treatments

      TENS Working / Worked
      I use Transcutaneous Spinal Electroanalgesia (TSE) in addition to TENS. TSE you place on your spine no matter where the pain is. Its accumulative too rather than just instant for TENS
      Cortisone (Injection) Not Working
      Made my pain worse
      Massage Working / Worked
      Weekly deep tissue massage really helps
      Morphine Working / Worked
      I had patches. They worked and helped me during a big flare up
      Neurontin Working / Worked
      Was working for about 4 years, but eventually, the pain got worse. Was taken off this and put on Lyrica
      Lyrica Working / Worked
      Have been on this for a month and it seems to be working well
      Elavil Working / Worked
      Was on this for 10 yeara. I am coming off this as Dr says there are newer, better ones
      Tramadol Working / Worked
      Have been taking this for 6 years. Not sure if this is effective as it was. I came off it - was quite hard to do - but then was put back on it. Dr wants me to try something else
      Clonazepam Working / Worked
      Stops my jerking whilst lying down. Without it, its like body popping! Have been on this for a couple of months now, and it does the trick
    • Close Chronic Pain

      I have 2 fusions in my neck and have had 4 cervical spine surgeries in 7 years. I have permenant damage to the spinal cord and have cervical stenosis. I have good days and bad days, but not a day gpes by without beingin pain. Currently seeing a pain management consultant

      Treatments

      Heat Working / Worked
      Sometimes helps to relieve the tension that you get from being in pain all day lonng
      Lyrica Working / Worked
      I have been on this for a month. I was on gabapentin for 5 years, but came off that to start with Lyrica. The first week that I took it I managed to work full time (sat at a computer) for a whole week (a rareity I can tell you)
      Morphine Working / Worked
      I was on a morphine patch for 6 weeks recently, and it helped. The Drs nor I wanted me to be on it for any longer than that.
      Neurontin Working / Worked
      I was on this for 5 years. It worked for a while, but as time progressed, and further surgeries had, it no longer worked well enough. I am now on Lyrica
      TENS Working / Worked
      Good if you have it on the correct area. I now have a TSE machine which works directly on the spinal cord
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