And the list goes on...
September 23, 2009 1:30pm
Well, it seems that I may have Plantar Fasciitis to add to the list. I've always had heel and foot pain, esp. very bad in the mornings and after …
ASPIRE4GRACE 
7:31am Tuesday
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About Me
ASPIRE4GRACE
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About Me
In 1993, I was dx'd with hypothyroidism (low thyroid), and in 1997, dx'd with migraine. Since 2001 I have been diagnosed with Fibro, Arthritis ('07), Undifferentiated Connective Tissue Disease ('07), Bronchitis, Degenerative Disk Disease ('07), and all that those entail. The doctors think on and off that I might have MS, so maybe someday I'll be diagnosed with it, but not this week. I recently was referred to a Pain Management Clinic and my new doctor is AMAZING! She actually treated me! She believed my pain, she believed my illness, and she's treating me! My pain levels have gone from an 8 down to about a 1-2. But I finally have medicine that is treating and handling my pain. I will forever be indebted to this wonderful doctor. My family doesn't understand what I deal with every hour of everyday, but they try at least. There are days when I wish I could just disappear, but I do have responsibilities, so it's not an option. I live on a beautiful piece of property with wild animals (that keep picking my chickens off one by one). I love it here though. I wouldn't trade it for the biggest, most expensive house in the best subdivision in the world. It's home! Daily Strength came to me when I was about at the end of my lifeline. I thought that I was the most alone person in the world. I know that's not true now. I know that there are people, lots of people just like me! It helps a lot to know that. I love my DS friends as if I've known them my entire life, and would do anything in my power to help them. I'm a caring, loving, nurturing, motheristic type person. I'd do anything I can to help anyone. Not trying to sound conceited, just what I've been told. When I love, I love deeply. I love unconditionally, but expect the same back. Conditional love = fake love. I run a chat room for people with illness like Fibromyalgia, Chronic Pain, Chronic Fatigue Syndrome, Insomnia, etc. pretty much anyone who needs support. Please feel free to drop in anytime. We try to always have someone in the room, so no one feel left out. It's a loving place, no arguing, lots of support and just a great place to relax and have some fun, but also get some answers. The address is: www.xat.com/FMSupport But it's not just for FMS. Just had to pick a name. I'm from Texas and I'm allll Texan! Until you've lived here, you don't know what heaven is, so ya'll all come when you want to know what REAL life is!
In 1993, I was dx'd with hypothyroidism (low thyroid), and in 1997, dx'd with migraine. Since 2001 I have been diagnosed with Fibro, Arthritis ('07), Undifferentiated Connective Tissue Disease ('07), Bronchitis, Degenerative Disk Disease ('07), and all that those entail. The doctors think on and off that I might have MS, so maybe someday I'll be diagnosed with it, but not this week. I recently was referred to a Pain Management Clinic and my new doctor is AMAZING! She actually treated me! She believed
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Interests
My Lord and Savior; my family; my church and church activities; reading, especially true crime; my 'puter; crocheting; counted cross stitch; my online support groups; my AMAZINGLY WONDERFUL DS friends; watching movies/t.v.; and anything that I can do, without moving too much. But before I got sick with fibro, I loved camping, swimming, trampolining with the kids, b-b-qing, LOVED-cooking and baking, roller skating, bicycling, etc. Now that I'm feeling so much better, I'm hoping to get back to most of all that. I still have to be wary of my back, but lookout kitchen, because momma's coming back! Whoo!!! Hooo!!!
My Lord and Savior; my family; my church and church activities; reading, especially true crime; my 'puter;
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Journal
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Hugbook
Hug
Just because
Well Done
wish u all the luck! thats a good goal,maybe i should try that goal!
Miss You
Hope it is Not going to be Forever til we see you again !! hugs !! Hope everything is Good in your World !
Hug
alot of people believe that fibro and CFS are a part of the same illness. No cure yet. But this link to a retrovirus is a major breakthrough and there are concerns because this virus is found in the blood will make the research more important because it could contaminate the national blood banks. This is my understanding based on several articles that I have read.
Flower
Just wondering how you're doing. God Bless. Jean
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Photos
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Support Groups
Close Fibromyalgia
Since 1993 I have been diagnosed with Hypothyroidsim, Fibro, Arthritis, Connective Tissue Disease, Bronchitis, Degenerative Disk Disease, and I list them all here, because their all autoimmune disorders/diseases. Fibromyalgia has taken away my life, my identity, the very essence of who I was. I no longer remember the old me. I've "Kissed Her Goodnight". Now there's a new me. I've yet to learn if she's a better person. But know she's more compassionate, and more obedient to God.
Treatments
- Ambien Working / Worked
- Works wonders! I can't sleep at all without this pill. Works very well, with the Klonopin and Zanaflex.
- Cyclobenzaprine Not Working
- Never felt it did anything.
- Cymbalta Too Soon to Tell
- I feel that this is helping with my nerve pain. Just started a higher dose.
- Duragesic Patch Not Working
- Got absolutely nothing out of the 25 mg. But still nothing with 3 patches (75mg.). Useless for me.
- Effexor Working / Worked
- Worked for a bit.
- Heat Working / Worked
- Is my best friend on "those" days!
- Lyrica Not Working
- Working on the pain but 22 lbs. in two weeks was too excessive. I couldn't bend my fingers, I was so swollen everywhere.
- Morphine Working / Worked
- This is what I switched to from the Oxymorphone/Opana. It's doing a good job at controlling the pain and other effects of FMS, CTD, and DDD. Will be on it for a while I think. I'm on the brand name Avinza 90 mgs. (once every 24 hours).
- Neurontin Working / Worked
- Does help with the pain, but caused a lot of weight gain. I've gained about 45 lbs. in one year alone. 600 mgs. twice daily.
- Oxymorphone Working / Worked
- Took the ER-Extended Release 2x/day. Kept away pain, sweats, fevers, crawling, raw skin feeling and muscle pain. I had very little pain from my Connective Tissue Disease thanks to this pill. Unfortunately, I became tolerant to it very fast, and had to switch, but still a great pain med. Took the Immediate Release Tablets for breakthrough pain, works most of the time.
- Ultram Not Working
- Did absolutely nothing for the pain.
- Zanaflex Working / Worked
- 24 mgs. at night. Works well as a muscle relaxer and great side effect of sleepiness. I take it at night and it helps with sleep.
- Bedrest Working / Worked
- Sometimes all I can do is hide in the covers.
Close Interracial Relationships
I am a mom and wife dedicated to my family in an Interracial Marriage. My husband is from Mexico and I am Caucasian. It causes us many, many problems on a daily basis. But we are dedicated to each other, and know that we can work through any problems that arise.
Open Obesity
I have struggled all of my life. I hit my all time high of 240 a couple of years ago. Over the last 2 yrs. I have been losing slowly and have lost around 60+ lbs, and hope that I haven't stalled there for long. I don't find that any particular diet is necessary, or excercise, I just only eat when I am hungry, and I eat just enough so that I am not hungry anymore. I eat anything I want, just don't over indulge (except now and then). I hope to eventually get to my "ideal" weight but we will see.
Treatments
- 6 Week Body Makeover Somewhat Helpful
- Gave it a go for a bit, but too confusing to me.
- Avoid Certain Foods / Chemicals Working / Worked
- I try to avoid the obvious stuff: sweets, carbs, fatty items, and the all time baddy--sodas!
- Breast Feeding Working / Worked
- It worked with all of my pregnancies, but you have to do it longer than just a few weeks.
- Cymbalta Too Soon to Tell
- Supposed to cause weight loss, but will have to see if that's a side effect or not.
- Slim-Fast Not Working
- Tastes awful and can't stay on it long enough to make it work. I am constantly hungry on SF.
- Topamax Somewhat Helpful
- I was on this for migraine headaches, but I didn't lose any weight with it.
Open Arthritis
I have arthritis among other things. I am a SAHM, married, in the country. Wish that I could enjoy all the things that my brain wants to do, but my body won't allow me to do.
Treatments
- Ibuprofen Not Working
- Does nothing.
- Medrol Somewhat Helpful
- Helps sometimes, depends on the nature of the flare. Does cause water weight gain.
- Methotrexate Working / Worked
- Don't really notice a drastic improvement, but I do notice that pain increases when I stop taking it. I DO NOT like the side effect of reducing my immunity. That is my main problem to begin with.
- Naproxen Not Working
- Pain Management Clinic Working / Worked
- My pain doctor is the doctor who prescribed the meds that are giving me my life back! I love her!!!!
- Plaquenil Somewhat Helpful
- Think it's helping.
- Tylenol Not Working
- Joke!
Open Back Pain
Have degenerative disk disease in L3, L4, L5 and S1. About every six months, I bend over and out my back goes. I am down right now. It is so ridiculously painful! Childbirth was a cakewalk compared to this, and I didn't have an epidural with any of the 4 deliveries. Absurd! NOW I have to have epidurals. The irony!
Treatments
- Bedrest Working / Worked
- Staying flat on my back with my knees up, or on my side is the only truly helpful thing.
- Carisoprodol Not Working
- Chiropractic Adjustment Working / Worked
- Works great but only temporarily because I can't afford it on a regular basis.
- Cortisone (Injection) Working / Worked
- Works well the very first injection of an episode. Works a bit the second injection, but after that, not any improvement if still hurting.
- Epidural Injection Somewhat Helpful
- Felt it helped about 15-20% or so. Don't know if it's actually worth it or not. I'll just have to decide on this at a later date.
- Fentanyl Not Working
- Don't understand how this is supposed to be SO GREAT! Didn't feel any relief, or anything at all.
- Flexeril Somewhat Helpful
- Heat Somewhat Helpful
- This is my best friend on those days when it just hurts too bad.
- Hydrocodone Somewhat Helpful
- This helped alot over the years, but I did build up a tolerance to it. Eventually had to be switched to Opana ER. Does have the side effect of constipation, and nausea. Also, you will be dependent on it, but that's just what happens when you live a life of chronic pain.
- Ibuprofen Not Working
- I notice nothing with this now that my illness has progressed so far.
- Morphine Somewhat Helpful
- Does help the DDD some. Not painfree by any means though.
- Naproxen Not Working
- Oxymorphone Working / Worked
- Took the ER-Extended Release. Worked well for this. Some days my back didn't bother me at all. No upset stomach but constipation. Very few side effects.
- Physical Therapy Somewhat Helpful
- Another one of those that works as long as you do it. Is a pain to get there 3-5x a week and hurts to be moved around like that.
- Stretching Somewhat Helpful
- Hurts to do, but feels good that I am doing something that is good for my body.
Open Chronic Pain
I have FM, arthritis, hypothyroidism. Hydrocodone HELPS, but doesn't take the pain away. Sick of docs who care more about what they look like than actually HELPING their patients. Fed up with the medical establisment completely.
Treatments
- Chiropractic Adjustment Somewhat Helpful
- Cymbalta Working / Worked
- Seems to be helping with my nerve pain.
- Flexeril Somewhat Helpful
- Heat Somewhat Helpful
- My best friend for that "hard to get rid of pain".
- Hydrocodone Somewhat Helpful
- Lyrica Working / Worked
- Worked great for the pain, but made me put 22 lbs. on in 2 weeks. Unacceptable.
- Marijuana Considering
- I'd love to find a doc that would prescribe it.
- Methadone Considering
- Ditto from Marijuana!
- Mobic Somewhat Helpful
- Naproxen Not Working
- Oxycodone Not Working
- Wasn't a high enough dose, so didn't do anything for my pain.
- Oxymorphone Working / Worked
- Take ER-Extended Release Version. Overall pain reduced from 8 to level 1. Awesome!
- Physical Therapy Somewhat Helpful
- I HATE PT!!!!!!!
- TENS Working / Worked
- Helps with back pain, but relief is short lived.
- Topamax Working / Worked
- Help for a couple of years with migraines. But then just stopped.
Open Depression
I have chronic pain and so it is depressing. Some days are worse than others, but I know that I just have to deal with it. Maybe someday my situation will improve, but doubt it.
Treatments
- Celexa Somewhat Helpful
- Cymbalta Working / Worked
- Started it a month ago. I feel that it is working. I don't need as many pain pills on some days.
- Effexor Working / Worked
- For pain, for a bit.
- Paxil Not Working
- Didn't seem to help at all.
- Prozac Somewhat Helpful
- Lost all libido. Took 10 yrs to get SOME back.
- Wellbutrin Working / Worked
- For pain, but worked well for my depression.
- Writing Working / Worked
- This helps me a lot, getting it out.
- Zoloft Working / Worked
- Took it for pain. Helped with spirits though.
Open Healthy Sex
Well, I feel that I'm pretty good in this area but there's always someone better to learn from.
Treatments
- Patience Working / Worked
- Gotta have it.
Open Anxiety
ASPIRE4GRACE hasn’t entered any details for this support group.Open Raynaud's Disease
ASPIRE4GRACE hasn’t entered any details for this support group.Open Multiple Sclerosis (MS)
No Dx yet. Doc thinks I might have it. Looking for answers to my symptoms.
Open Insomnia
I have had problems sleeping all my life. I remember being a kid, and waiting for the A/C unit to blow so I could fall asleep to that. If I don't have meds, I don't sleep, end of story.
Treatments
- Ambien Working / Worked
- Works wonders! Can't sleep without it.
- Counting Sheep Not Working
- Is this a joke?
- Lavender Not Working
- LOVE the smell, but doesn't help with sleep.
- Pamelor Not Working
- Didn't make me sleepy at all.
- Reading Working / Worked
- Makes me tired, but not sleep unless had sleeping meds.
- Restoril Working / Worked
- Works if I double the prescribed dose of 30 mgs. to 60 mgs.
- Rozerem Somewhat Helpful
- Sometimes. Can't tell why sometimes it works and sometimes it doesn't. But always have to take @ 4x as prescribed, so I don't even bother with it.
- Sonata Not Working
- Nothing!
- Valerian Not Working
- Not a thing!
- Zanaflex Working / Worked
- This works fantastica to get me to sleep fast. I have to take between 16-24 mgs. but it works great with Klonopin and Ambien.
Open Female Sexual Issues
What female DOESN'T have sexual issues.
Open Phobia
I generally have two phobias. I have an EXTREME fear of scorpions, that leads to a panic attack (hate even saying or typing the word!!!!) and claustrophobia. For example: I can't STAND to be in the backseat of a car, in the middle. I just realized last week how insensitive and oblivious to this disease people actually are. Oh, the stupid remarks I heard! "You'll get used to it." Please, how moronic!!!!
Open Panic Attacks
I don't get PA very often, but if I see a scorpion, I definitely go into one! I haven't ever been on anything for it, so we'll see what I can get for them. They are very upsetting to say the least.
Open Degenerative Disc Disease
I just found out in 2007 that the reason I was having so many disc problems was due to DDD. It's is very upsetting, because there's not much I can do to stop the disease, as far as I know.
Treatments
- Cyclobenzaprine Not Working
- Didn't feel that this med really did anything, but maybe I needed a higher dose. Was on a 10 mg. dose.
- Epidural Injection Somewhat Helpful
- Don't feel that this is worth it for me. The pain pretty much came back after the Lidocaine wore off. Has helped a bit but not much.
- Hydrocodone Working / Worked
- Did work on the pain but tolerance buildup eventually made me switch to a stronger med.
- Ibuprofen Not Working
- HaHa! Umm no doesnt do anything for me!
- Naproxen Not Working
- Physical Therapy Working / Worked
- Does work but cant afford to go 3-5x a week thats needed. Hurts to do the movements as well.
- Stretching Somewhat Helpful
- Bedrest Working / Worked
- Resting the back helps for a bit.
Open MCTD
I actually have UCTD, but don't see a group for it. Of all of the diseases I have, this one seems to be the most aggressive and most painful of the bunch. It can get through the pain meds, and hurt me to the point of tears.
Treatments
- Methotrexate Working / Worked
- Wow can I feel the pain come back with a vengeance when I forget to take this for a couple of weeks. Big difference!
