I am transferring my LDN journal from the LDN group:
This is going to be my LDN story. Feel free to comment or ask me questions. I have SPMS, have had this for decades, don't take crab drugs, and was reaching the point of quitting my parttime job with the spectre of being bedridden and housebound within the next five or ten years. I happened on DS at a time when Larry was telling everyone about LDN--right before he started this group. I started reading about it in March 2008, called my neurologist, and took my first 3.0 mg pill April 2. The next day--for the first time in 10 years--my bladder was back to normal. I last 4 to 5 hours, day or night, and no sense of urgency, no wetting myself before I can get to the toilet. My fingers have been numb for 15 years and in the last couple of years I have had to type with two fingers. And I am a writer. Within a week of taking the LDN, I was typing again--even though my fingers are still numb. I am no longer waking up on fire every morning, maybe a little warm but not like before. My fatigue level is better; I can curl my toes. My goal is to start walking again. I plan to spend the summer working on leg strength.
The biggest change: I have hope that I can live out my life without expecting a grim future. I know God led me here and led me to LDN, and I thank Him for His grace.
Today I got out of my wheelchair, grabbed my walker, walked around my room, down the hall and into the dining room before I was so exhausted I needed a chair. The stiffness in my legs makes it hard to bend my knees but I am concentrating on lifting the knees-- as suggested by a therapist. I had forgotten how fatiguing it is to try to walk, having been in a wheelchair for two years. I'm going to try to go a little farther each day. I'm counting on all of you to fuss at me if I get lazy.
R
Refilled my LDN script for the first time. Talked to pharmacist about filler and transdermal. He said lactose and he will
research and find out how to do the transdermal gel. I won't do it until I know he knows what he is doing. Transdermal bypasses the stomach and liver and is not so bad for leg stiffness--at least I read that. DId pool
walking today, working on lifting knees. Came home and took a
nap, then got up and wall walked into and around kitchen. Now I am exhausted, but a good exhaustion. After a month on LDN, I can attest that my nighttime temperature nightmares are over!!! At least for now--we'll see.
l today after about 3 months on LDN, I realized that I can walk a few steps without my cane! Very exciting indeed & my energy is better.
I'm using a stationary bike to work up muscles.
Just read somewhere about a drug given to pregnant mothers which has been found to help MS'ers. Currently doing trials.
In the interest of fairness, I have been having nightmares that I don't remember except to know that I wake up
screaming and sitting up straight on the side of my bed. Usually within an hour after I take my pill and go to bed. I always think I have not done something critically important. My family comes rushing in while I try to explain to them the desperate situation and gradually come to my senses. Must be LDN because I have never been a dreamer.
- 05/08/08 10:11pm
Fairness because I was tempted not to tell!
vivid dreams
LarryLDN
Wow, this is interesting, Jeanne. Is it a recent journal? The dream thing is intriging.
LilMargie