don't know what to do...
June 28, 2009 6:18pm
my doctor wants to run some more tests on me to find out what kind of muscle porblmes i might have. i don't know what to do anymore …
Goal Completed on Jul 27, 08
cindyhat
4:54pm, June 24, 2009
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About Me
cindyhat
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About Me
i'm 24 years old. i have a daugther she is a year old today.i'm a stay at home mom. my daugther has has health issues. she has a carnitine deficiecny, muscle disases, and also had surgery for her refulx, she also has a mic-button tube in her stomach. my daugther is only 15 lbs. but the tube will help until she is able to eat by mouth again, when she is able to pick up her weight. we have alot of appointment at Morgantown for her. we are having a party this weekend for her.
i'm 24 years old. i have a daugther she is a year old today.i'm a stay at home mom. my daugther has has health issues. she has a carnitine deficiecny, muscle disases, and also had surgery for her refulx, she also has a mic-button tube in her stomach. my daugther is only 15 lbs. but the tube will help until she is able to eat by mouth again, when she is able to pick up her weight. we have alot of appointment at Morgantown for her. we are having a party this weekend for her.
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Journal
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*`MY ONE AND ONLY CHEYENNE`*
January 16, 2009 4:17pm
~CHEYENNE MARIE HATFIELD ~ MY LIFE, MY LOVE , THE ONLY ONE WHO NEEDED ME THE MOST, MY LIFE IS OVER WITHOUT YOU BY …
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my other sites..
August 27, 2008 11:55pm
my other profile sites are - myspace.com/mysweetlittlecheyenne , my other fav. one …
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cheyenne is geting wrost and her hospice nurse dosen't....
July 27, 2008 11:37pm
cheyenne condtions are geting wrost and her hospice nurse dosen't want to help her get better , because cheyenne is losing alot of …
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Journal Entry for March 14, 2008
March 14, 2008 3:20pm
WELL THE DOCOTRS JUST FOUND OUT WHICH DISAESE MY DAUGHTER HAS. THEY WASN'T SURE FOR AWHILE. CHEYENNE HAS {- …
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Hugbook
Sorry
Don't know what's wrong.............why you ignore me...................where the friendship went.....................................
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Hug
Cindy,
I am still here........waiting............wondering........Hoping you are ok. 
Funny Face
Hey CH, I hope you are doing ok, haven't seen your face change in so long. Lots of love and hugs to you!!!
Hug
Yes, I think you could use one.
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Chocolate
Life goes better with a little chocolate...
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Goals
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Support Groups
Close Muscular Dystrophies
my daugther was born on sept.6 2006.she was ok until she turn 4 months old. then everything started to go down hill from there. all at once she stop gaining weight, and we didn't know why.so we went to the doctors in Morgantown and they did test on her. my and my daugther stayed in the hospital for 29 day until they found out what was going on.she has a carnitine deficiecny,rare muscle dieases, milk allergies,had surgery for refulx, mic-button in her stomach.we are going to Morgantown again.
Close Lupus
hi i would like to join this because my aunt dee dee has lupus,and she has asked me if maybe i could find out what all happens when someone has lupus.im upset because i know this is a ever bad thing to have.the doctors say that she will only get worse.i hope i can find some answers at this site. cynthia
Open Primary Carnitine Deficiency
my daughter has carnitine deficiency and she takes meds for it. we didn't find out she had it until she was 7 months old. but she stoped gaining weight around 4 months old. the doctors didn't find out until later because they would only tell us that everything is ok and some kids does that from time to time. so we though everything was ok until we went to Morgantown and then they told us about what they found.
Treatments
- Carnitine Somewhat Helpful
- it has been crazy
Open Food Allergies
Type of allergy: Other Foodsmy daughter has milk allergies. she was born with it.
Open Premature Birth
the reason my daughter was premature was because i had preeclampsia and risk was to high for me to go the whole term. they said that i could have died and my baby too. i was lucky that i was going for a checking the same time they find that. but my gaughter has health issuse and i don't know if that was the reason why? cynthia
Open Mitochondrial Diseases
we just found out that my daughter has this diseases.we didn't know she was born with it until they done a muscle biopsy. they are still trying to find out what kind of muscle diseases she has, they said it is very rare. cynthia
Open Lipid storage disorders
we just found out our daughter has this after her muscle biopsy.
Open Depression
Type: Clinical (Major) Depressionim here because im sever depress. i lost my daughter sept.05 2008 , she was 2 years old, dienosed with melas syndrome. i don't know where to turn anymore. please help me if you can. cheyennesmommy` cindy
Treatments
- Cymbalta Somewhat Helpful
Open Bereavement
Type: Loss of a Childim here because i lost my beauitful daughter cheyenne. my daughter was dienosed with melas syndrome at 17 months old. she passed away when she was two years old. please someone help me, im going crazy ,and the meds the doctors give me dosen't help much. cheyennesmommy` cindy
Treatments
- Crying Not Working
- Prayer Somewhat Helpful
- Reading Somewhat Helpful
- Support Groups Somewhat Helpful
- Talking Not Working
Open Loneliness
i feel like i have nonoe to lean on when i need someone there for me. i lost my daughter cheyenne when she was two years old. from a genetic disorder call melas syndrome. she passed away setp, 05 2008. she is my one and only child. im unable to have anymore children due from this genetic disorder comes from my side of the family. doctors made me tie my tubes. im only 24 year old. my husband is a asshole and its like he isn't caring about me anymore. i need someone i can turn to.
