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About Me
madladybug
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About Me
I have had the FM diagnosis since 1991, though I have not been able to get any REAL help with it. The original diagnosis was from a Rhumetologist that appeared to stick the label on me when she didn't know what else to tell me. I have since studied it out more on my own and talked to a few Chiropractor's that believe and have helped me some...but every time I get to a Medical Dr. with my husband around, the Dr. is one who DOESN'T BELIEVE in FIBRO!!! Help!!
I have had the FM diagnosis since 1991, though I have not been able to get any REAL help with it. The original diagnosis was from a Rhumetologist that appeared to stick the label on me when she didn't know what else to tell me. I have since studied it out more on my own and talked to a few Chiropractor's that believe and have helped me some...but every time I get to a Medical Dr. with my husband around, the Dr. is one who DOESN'T BELIEVE in FIBRO!!! Help!!
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Hi Madladybug How are you doing these days? Happy Holidays Debbie
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Welcome to the CLL Community. You might check out www.cllforum.com and www.clltopics.com
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Support Groups
Close Chronic Lymphocytic Leukemia (CLL)
Type: B-cellI was diagnosed with CLL in June of 2003. At that time I was told that it was a cancer that most people die WITH, not OF. In other words, go home and have a good life! I had trouble accepting that I had cancer and couldn't DO something about it! I was originally diagnosed here in Iowa, so I went back to Mayo Clinic at Rochester,MN for a second opinion. Basically the opinion was the same, just given more gently, and with the promise of much closer watching than what I had gotten before.
Treatments
- Chemotherapy Too Soon to Tell
- I have just finished PCR, pentostatin,cytoxan, and rituxan, treatment and am waiting for bmb to see if remission has been achieved. I really had few side affects. Diarrhea mostly, I lost some hair, but not enough to even make bald spots. The Neulasta to rebuild the WBC's does cause bone pain, and can be a little rough, but not so it can't be managed. All in all my chemo wasn't too bad!
- Neulasta Too Soon to Tell
- Neulasta caused bone pain 7 to 10 days after treatment for the first 2 or 3 treatments. Then after my white count was down the Neulasta started working within 23 to 48 hours after treatment, and each time the effect was a bit stronger. The last time I had a very bad headache, bone pain, and a much higher fever than before, but it only lasted for about 3 days.
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