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  • About Me

    Image of Korky1969

    Korky1969

    Female, 39
    Exeter, GBR
    Member since September 5, 2007

    • About Me

      37 yr old woman with EDS-H, CFS/ME FMS & Palindromic rhuematism, I am a single parent with 4 children 22, 18, 14 & 12... not bad for a gay woman!

      37 yr old woman with EDS-H, CFS/ME FMS & Palindromic rhuematism, I am a single parent with 4 children 22, 18, 14 & 12... not bad for a gay woman!

    • Interests

      I love spending time with my kids and researching on the internet... also a bit of an ebay freak!

      I love spending time with my kids and researching on the internet... also a bit of an ebay freak!

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for September 25, 2007

      Mood September 25, 2007 10:39am

      hey everyone I have uploaded some photo's of kasha and I at the Westcountry Studios when we were on the local News for Kasha winning the …
    • Journal Entry for September 25, 2007

      Mood September 25, 2007 8:28am

      here I am again! had a busy few days, my laptop adapter lead broke and i felt discombobulated for a while lol.

      Well big news!!! splash13 (kasha) won …

    • Journal Entry for September 21, 2007

      Mood September 21, 2007 7:17am

      I really ought to go back to my writing, just browsing through some of my older work and thought this one was rather touching, I wrote it in 1998 the …

    • Journal Entry for September 21, 2007

      Mood September 21, 2007 6:14am

      Feeling that strange ambiguity again today, my mind is feeling light, carefree and content, but my body is in bits! OUCH x

       Happiness …

    • Journal Entry for September 19, 2007

      Mood September 19, 2007 10:00am

      having  a crappy day, the after effects of monday are coming out now and i am in agony AGAIN... this sometimes reminds me of my old surfing …

    Read Journal

  • Hugbook

    Give Korky1969 a hug



    • Hug

      From PaulV67 June 12

      Hang In there just came out to me doc she was positive bout it all

    • Hug

      From funkystripedundies September 17, 2008

      Just a hug to tell you I'm here. I haven't been for a long time, and I want that to change. You're an amazing woman! Dealing with so much, and having 4 children! I hope you'll feel great by the days end, or possible the middle! *more hugs*

    • Flower

      From BelleFlower September 1, 2008

      Hey I love that idea. I haven't been on much. I am going to check it out. :)

    • Flower

      From bighearted1 August 25, 2008

      Gentle hugs for your day.

    • Hug

      From joyfulnoise August 24, 2008

      A peaceful Sunday to you! Sending wishes of pain-free movement and fog-free thoughts! I wanted to share a video I took while in Truk Lagoon in Chuuk. The fish are a variety of damsels (from black and white to brilliant blue). It’s almost like they are dancing!: http://www.youtube.com/watch?v=KE7...

    Read Hugbook

  • Support Groups

    • Close Fibromyalgia

      I have had cfs/ME for 10 yrs and Fibromyalgia for 4 yrs also been dx with Psoriatic Arthritis (PA)

      Treatments

      5-HTP Not Working
      didn't work for me
      Hydrocodone Working / Worked
      good for break through pain, but I have had addiction to this in the past so I have to be careful
      Lyrica Working / Worked
      Been on Lyrica for just over a year now
      Neurontin Somewhat Helpful
      couldn't tolerate neurontin so was switched to lyrica...too zombified on neurontin!
    • Close Chronic Fatigue Syndrome

      I have had cfs/ME for 10 yrs, now severely affected, mostly bedbound

    • Open Lesbian Relationship Challenges

      I am a single gay woman with 4 kids from previous hetro relationship, finding it hard to fit in anywhere as I am mostly bedbound with illness, having to forefeit relationships because of this

    • Open Chronic Pain

      I have CFS/ME FMS and Idiopathic Peripheral Neuropathy so I have a lot of pain, I have been ill for 10yrs the last 4 have rendered me bedbound

      Treatments

      Lyrica Working / Worked
      working well for me, although weight gain is an issue
      Neurontin Somewhat Helpful
      had to switch to lyrica as I couldn't tolerate neurontin, I was a zombie!
      TENS Working / Worked
      My TENS machine is my lifesaver, infact it is so useful I have 2!
    • Open Arthritis

      Diagnosed with psoriatic arthritis October 2007, just one more damn thing!!

    • Open Ehlers-Danlos Syndrome

      I am a 38yr old mum of 4 and was dx with EDS-H in november 07, my 14yr old daughter was dx in March 08, eldest daughter awaiting dx and eldest son not symptomatic but very hyper elastic skin! youngest son appears not to have inhereited....fingers crossed!

      Treatments

      Physical Therapy Too Soon to Tell
    • Open Diets & Weight Maintenance

      Treatments

      Eating Healthier Foods Working / Worked
      Totally cut out processed foods and now eat a high percentage of raw foods, fruits veggies legumes etc......have lost 11lb in 3 weeks so far!
      Physical Exercise Working / Worked
      I can't do high impact exercise due to my joint hypermobility so I am doing strength training and physical therapy based exercise daily... its hard work but the results are showin, have lost 8 inches total over my body woohoo
  • Groups

  • Friends


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