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  • About Me

    Image of katiemcd

    katiemcd

    Female, 52, Married
    Newark, NJ, USA
    Member since September 4, 2007

    • About Me

      I'm a married full-time mom of 3 great kids. I first experienced IC symptoms over 3 yrs. ago and they've been constant ever since, consuming my thinking and my life. My symptoms are urinary frequency, constant bladder and urethral pressure, the constant feeling of a full bladder, sometimes burning and groin pain... My main goal would be to have the feeling of an empty bladder for an extended period of time!...I have seen several docs, including the expert, Dr. Moldwin, tried many drugs and treatments with no success-yet..Diet modication has made no difference in my symptoms.. but yet has me so afraid to eat things that I've lost a ton of weight and look anorexic.. Hoping to get some support, treatment ideas and hope..Thanks!

      I'm a married full-time mom of 3 great kids. I first experienced IC symptoms over 3 yrs. ago and they've been constant ever since, consuming my thinking and my life. My symptoms are urinary frequency, constant bladder and urethral pressure, the constant feeling of a full bladder, sometimes burning and groin pain... My main goal would be to have the feeling of an empty bladder for an extended period of time!...I have seen several docs, including the expert, Dr. Moldwin, tried many drugs and treatments

    • Interests

      the beach, sports, the outdoors, being with family and friends, decorating .. reading

      the beach, sports, the outdoors, being with family and friends, decorating .. reading

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    • Congrats

      From ICish August 30

      Kate the most important part of living with IC is taking an active role in your healthcare and listening to your intuition. I look forward to working with you and getting to know you.

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  • Support Groups

    • Close Interstitial Cystitis (IC)

      Treatments

      Bladder Distention Not Working
      symtoms worsened for a few weeks, otherwise no change; it just verified that my bladder was thin and had litte "cuts" that indicate IC.
      Bladder Instillation Not Working
      Had 5 intillations..hard to hold in for 30min to an hour..lots of burning and pain the day of instillation... after 5 treatments I saw no improvement..Dr. decided to stop.. I do have less bladder, abdominal pain now, but frequency and pressure are my major issues.
      Elmiron Not Working
      Took it for 6mos..no chane in symptoms..Causes very heavy long menstrual period at one point.. Dr said if no change after 6mos I should stop
      Pyridium Working / Worked
      helps a little when burning occurs
  • Friends


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