hello
October 10, 2008 5:19pm
Sorry I haven't been on here lately. I haven't forgot about you all. I have been sick and in the process of switching my stuff to the …
cherrivit 
5:27pm, October 14, 2008
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About Me
cherrivit
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About Me
Well, I was an RN, and a minister up until 1994 when I was diagnosed with FM. I have two children age 15 & 12. I ended up having to go on disability in 1995 due to the pain, fatgue, and fibrofog.I lost everything- my family, health, home, job, and security due to the FM. I have remarried a loving man whole understands what I am going though and stands beside me.I hate feeling the pain, fatigue, and fogginess.Today is a bad FM day and I don't know why.I feel so isolated from the world around me.
Well, I was an RN, and a minister up until 1994 when I was diagnosed with FM. I have two children age 15 & 12. I ended up having to go on disability in 1995 due to the pain, fatgue, and fibrofog.I lost everything- my family, health, home, job, and security due to the FM. I have remarried a loving man whole understands what I am going though and stands beside me.I hate feeling the pain, fatigue, and fogginess.Today is a bad FM day and I don't know why.I feel so isolated from the world around me.
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Interests
my family, photography, church, don't really have much energy for anything else nor remember anything else right now. I use to be active in life but now I'm too tired and hurt too much. I miss my healthier years.
my family, photography, church, don't really have much energy for anything else nor remember anything
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Journal
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The Spoon Theory
September 23, 2008 2:10pm
I read this on another site and feel it explains well what we live everyday. Feel fee to pass this on to people in your life who are healthy to help …
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This entry is private
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Hugbook
Moment of Peace
Just dropping by to see how things are going? It's the doldrums time of year so hang in there. thinking about ya! xo
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Happy National Hug Day! :}
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Monday Hug of the Day - Good friends are like stars. You don't always see them but you know they are always there. Hope today is a relaxing day for you. HUgs Nancy
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Monday Hug of the Day - Friends are like family we choose for ourselves. May your day be pain free as possible. Sending bunches of hugs to hold you over, Nancy
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Saturday Hug of the Day - Happiness lies for those who cry, those who hurt, those who have searched, and those who have tried. For only they can appreciate the importance of people who have touched their lives. Hugs Nancy
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Photos
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Close Fibromyalgia
I use to lead a healthy life as an RN,wife,minister,then had 2 beautiful children,a nice house only to loose it all because of FM.I was dx in 94&went on disability in 95. The pain,fatgue,and fibrofog got to the point that it was hard to function.My ex didn't understand so he divorced me.I was so hurt&depressed over all that happened.Later on in life I met a loving,caring,&understanding man who now is my husband. I miss my children so much,I pray that some day they will understand&know the truth.
Treatments
- Acupressure Working / Worked
- I did get books on acupressure and elecrical stimulation to actupuncture sites. No it doesn't hurt but both my little devices got used so much that they both broke (have shorts that I tried to fix but would only last for so long and short out again
- Acupuncture Considering
- Would like to try but health insurance dosen't cover it.
- Adderall Somewhat Helpful
- Had been on it in the past, it really didn't help much. I'm on the provigal which helps but the dexitrene worked the best.
- Aqua Therapy Somewhat Helpful
- I still go to the pool in the summer when my kids are down. I just don't have the energy to keep up. Something is going on above the FM.I don't know what it is.
- Cyclobenzaprine Not Working
- It didn't help at all. I take soma which does work but I can't take on an empty stomach because it will make me a little dizzy, which I don't like.
- Cymbalta Not Working
- It didn't help. I went back to the paxil.
- Duragesic Patch Not Working
- I have a box under my bathroom sick. It didn't help at all.
- Effexor Working / Worked
- Worked until the doctors got me on the right stomach med. Was on it for 2yrs and lost all my pregnancy wieght because I couldn't eat very much and only bland foods. I have chronic stomach problems.
- Elavil Working / Worked
- I have pretty much been on amitriptyline since day one. It usually helps with sleep.
- Heat Somewhat Helpful
- Keep one next to the bed to use for muscle spasums.
- Lyrica Too Soon to Tell
- Just started taking it about 2 months ago. I had thyriod cancer in 05 and just went though the week of yearly follow up testing that leave you hypothriod,which leaves you tired and aggravates the FM symptoms.
- Morphine Working / Worked
- I had a good doctor who prescriped a new med out on the market called Avinza take 3x a day. My doctor went to work for VA and I had to find a new doctor. She sent me to see the pain doctor and the Avinza went out the window. I didn't know that it was morphine.I just took 3x a day and the pain level went way down.
- Neurontin Somewhat Helpful
- Was prescribed it instead of the avinza. Didn't work near as good as the Avinza.
- TENS Working / Worked
- I have one use it from time to time but is only good for local pain not wide spread pain.
- Ultram Somewhat Helpful
- Taking 1 didn't do anything but taking 2 helped. I have been on it off and on over the years along with loratabs, percacet and am now on loricet (generic).
- Vitamin B12 Not Working
- It didn't help. Now back in 96 I had a doctor who prescribed dexadrene that gave me 65% of my energy back,but we moved and the new doctor wouldn't prescript it.
Close Chronic Fatigue Syndrome
I was diagnosed with FM in 94 and the CFS kicked in in 95. I have days where there is no energy. On rare occassions I have little pain, mind is clear and I have energy, I call this feeling human again.
Treatments
- Cymbalta Not Working
- It did not work at all
- Klonopin Working / Worked
- CNS lubricant without it I have the tremmors and feel like I stuck my finger in the light socket.
- Pain Management Clinic Working / Worked
- Helped when PT and pain meds are used.
- Paxil Working / Worked
- Reflexology Working / Worked
- Loved to have my feet worked on but don't know anyone here who does this.
- Reiki Working / Worked
- Tried it when I lived in WY. It seem to help.
- Zoloft Not Working
- didn't do anything. Paxil works the best.
Open Dementia
Diagnosed back in 96 as part of FM. Every frustrating I use to function on a much higher level and now at times I feel retarted because I can't get out the words of what I want to say. I know it but just can't pull it up.
Treatments
- Exelon Working / Worked
- Taking it helps some
- Namenda Working / Worked
- was on it but my husband didn't want me to take anymore new meds unless I stop taking one of the other meds.
- Seroquel Working / Worked
- ? Was on this years ago for sleep when needed. I didn't take it every night
- Aricept Not Working
- Had bad side effects don't remember what other than it was very uncomfortable
Open Thyroid Cancer
Type: Follicular CarcinomaEverything dates back to 1994, that was the year I notest a lump on my thyriod and went to the doctor. I pointed to the lump" see this fix it and I will be fine". Will I was sent though all the basic tests and was told I had a thyriod goiter and hypothyriodism.I was started on thyriod med suppressive dose to keep the goiter from getting any bigger.Over the years I have been on different thyriod meds,had altrasounds, various scans, blood work and biopsies.In 2005 the biopsy showed cancer.
Treatments
- Radiotherapy Working / Worked
- I forgot the medical terms but they gave me a high dose readioactive pill to destroy any remaining thyriod cells.
- Thyroidectomy Working / Worked
- Was painfull right after surgery but healed up well with only one minor problem I had a reaction to the suitures used inside. Scar took longer to heal because of this but did heal up well. Was horse because of the surgery has gotten better but still from time to time my voice gets horse. The pathology report show one nodular was precancerius of a more rare type but the other was more common type I think it was fillicular or it was papillary.
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