Wow~
November 5, 2008 2:00am
I cannot believe it has been almost a year since I have written here. Life has been very hectic for many months now. Still on the immune therapy and …
Joni9918
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About Me
Joni9918
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About Me
I am 57, DWF, have 5 children, (4 grown, 1 young teen), RRMS, trigeminal neuralgia, severe chemical allergies and sensitivities, mild cyclic depression. Enough of that! I love to garden, hike, walk, swim occasionally in fresh water. I love Mother Earth and all she has to offer. I volunteer at schools (love to read to children) and work with the elderly. My children are my sunshine!
I am 57, DWF, have 5 children, (4 grown, 1 young teen), RRMS, trigeminal neuralgia, severe chemical allergies and sensitivities, mild cyclic depression. Enough of that! I love to garden, hike, walk, swim occasionally in fresh water. I love Mother Earth and all she has to offer. I volunteer at schools (love to read to children) and work with the elderly. My children are my sunshine!
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Interests
Music, singing, hiking, walking, gardening, camping, aviation, flying, reading
Music, singing, hiking, walking, gardening, camping, aviation, flying, reading
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Recent Activity
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Journal
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Journal Entry for December 10, 2007
December 10, 2007 2:28am
Have to add a little more detail. I have not had any trigeminal/cluster migraines since I started the new therapy. Had one sinus type headache, …
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Journal Entry for December 10, 2007
December 10, 2007 2:16am
Wow~ I cannot believe it has been over 2 months since I have written here. I have been feeling soo good on this new therapy!! I have been …
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Journal Entry for October 3, 2007
October 3, 2007 6:37pm
I am in the 4th day of a new therapy of detoxing, cell regeneration, immune support and human growth hormone balance. I went to Dr. Lu's public …
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Journal Entry for September 27, 2007
September 27, 2007 12:36am
Wow! I haven't written for so long. Life has been a whirlwind again. Getting frost now so have to cover all the gardens every night. What a pain. …
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Hugbook
Hug
Hey! Thanks for the friend request! I'm not sure if there is a crisis hotline or not. I've just scheduled an appointment with a therapist though.
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Hug
Thankyou for the hug right back at ya :+)
Flower
hey just a quick note of hello tonight!!
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Hug
good to see you are having a good day
Hug
So how's life in Mount Shasta.... we are at opposie ends of California. Ever come to San Diego??? Never been to MS... have a great day
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Photos
Joni9918 hasn’t uploaded any photos yet
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Support Groups
Close Multiple Sclerosis (MS)
Joni9918 hasn’t entered any details for this support group.Close Epilepsy & Seizures
Have seizure-like episodes that resemble simple/partial seizures.At times are like partial complex seizure.Am trying to find someone who has that type. Two EEG's show no seizure activity. I was treated with depakote, dilantin,tegretol. I could not take any of these because of adverse emotional reactions. Thanks to anyone who can help me out as I am in the process of starting therapy for MS and have some concerns about reactions.I also have extreme multiple chemicalsensitivies/allergies
Treatments
- Ativan Working / Worked
- could not tolerate
- Avoid Certain Foods / Chemicals Working / Worked
- I avoid as many chemicals as possible in all areas
- Depakote Not Working
- did not work..caused depression/lethargy
- Dilantin Working / Worked
- did not work..caused agitation
- Neurontin Not Working
- did not work..caused mood swings, depression
- Tegretol Not Working
- did not work..caused hallucinations, depression
- Physical Exercise Working / Worked
- helps with stress levels, digestion, basic health
Open Lyme Disease
I grew up in the midwest, tick country. Have a daughter, sister and niece who have lyme disease. I have had 2 neg tests, but wonder if I may have lymes as well as MS.
Treatments
- Amoxicillin Working / Worked
- daughter took this, sister has taken it many times, has been dx'd fibromyalgia
Open Parkinson's Disease
My sister suspects she has PD. I am checking here to find anything I can that may help her. Thanks for any help from anyone. Joni
Open Plastic Surgery
I am trying to find someone who could help me with info on leoid or hypertrophic scarring. My 62 year old sister had emergency quadruple by pass recently and is quickly developing excessive scarring build up in the incision areas. She has had the areas injected with cortisone, but it is not stoopping the build up. Can anyone help me out? Thank you very much. Joni
