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About Me
vanesr
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About Me
Dx'ed 1989 RRMS Tried avonex, copaxone, methotrexate, cellcept and tysabri. All with adverse reactions. Taking LDN for 1 yr now. It gave me difficulties, but I stuck with it. Now at the maximum dose I am having success. Out of the w/c, ambulatory with walker. No more fatigue. Leg spasms are gone. Energy level elavated. I still have issues with balance and doing steps. I am a patient person. I will not ever take an immunosuppressant again. Only med I take is detrol LA and low dose naltrexone.
Dx'ed 1989 RRMS Tried avonex, copaxone, methotrexate, cellcept and tysabri. All with adverse reactions. Taking LDN for 1 yr now. It gave me difficulties, but I stuck with it. Now at the maximum dose I am having success. Out of the w/c, ambulatory with walker. No more fatigue. Leg spasms are gone. Energy level elavated. I still have issues with balance and doing steps. I am a patient person. I will not ever take an immunosuppressant again. Only med I take is detrol LA and low dose naltrexone.
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Interests
Building up my muscles again
Building up my muscles again
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Journal
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Hugbook
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Check out the LDN subgroup and see post from fellow LDN users.
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I know SIX, well, now I guess SEVEN? people born on 4/10. 4/10 and 4/17 have turned out to be pivot days in the last 5 years and many inbetween.. this year... and 06 especially
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Flower
I decided to wait it out and not leave ;)
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Flower
I have some updates, when necessary. but I'm leaving this MS community, tw5 & bonster are making me feel unwelcome
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"A smile costs nothing, but gives much- It takes but a moment, but the memory of it usually lasts forever. None are so rich that can get along without it- And none are so poor but that can be made rich by it. It enriches those who receive, without making poor those who give- It creates sunshine in the home, Fosters good will in business, And is the best antidote for trouble- And yet it cannot be begged, borrowed, or stolen, for it is of no value Unless it is given away. Some people are too busy to give you a smile- Give them one of yours- For the good Lord knows that no one needs a smile so badly As he or she who has no more smiles left to give." ~Author Unknown
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSI am 48 yrs with MS, for 17 yrs, sx's for 24 yrs. I retired from nursing 1996. I am still amblatory, barely, with use of a walker.
Treatments
- Avonex Not Working
- too many negative side effects
- Baclofen Not Working
- stopped due to leg weakness
- Copaxone Not Working
- caused chronic bladder infections
- LDN - Low Dose Naltrexone Working / Worked
- it was not easy adjusting to the ldn with the side effects. Now after 4mos on 3mg I am noticing improvements.
- Cellcept Not Working
- this immuno suppressant caused me more harm then good
- Methotrexate Working / Worked
- helped for a while then stopped
