Journal Entry for February 12, 2008
February 12, 2008 10:00pm
Why does this disease have to be so damn unforgiving?
Today I woke up, and I will admit I felt really darn good, what do most of us who have Fibro do, …
huskergirl76
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About Me
huskergirl76
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About Me
My name is Jill, I have been married for 12 years this October. I am a mom of three wonderful kids ages 13, 11, and 7. I have lived in Nebraska all my life, and I have lived with chronic pain all my life, since all my doctors have said whatever was wrong with me I had since birth, and I was born a preemie. I have become a hermit and no longer work because I am in constant pain and feel icky 99% of the time, the good days are few and far between. Thankfully I have a wonderful husband and he helps me a lot, and my kids are pretty awesome too, they help mom a lot when I am feeling like I have been ran over several times by a bus. I really enjoy meeting new people and helping them in any way possible, weather it be a random hug, or just a little chat to make them feel not so alone, I know that talking to others with similar conditions that I have, it really helps me a lot and has made this awful syndrome easier to handle knowing that I am not alone! I spent my whole life until this year, 2007, being told that I was crazy and that this illness was all in my head, I grew discouraged many times, and actually started to believe the numerous doctors who said "it's all in your head" or "your just depressed" and many countless other things. You hear it enough you believe it.
My name is Jill, I have been married for 12 years this October. I am a mom of three wonderful kids ages 13, 11, and 7. I have lived in Nebraska all my life, and I have lived with chronic pain all my life, since all my doctors have said whatever was wrong with me I had since birth, and I was born a preemie. I have become a hermit and no longer work because I am in constant pain and feel icky 99% of the time, the good days are few and far between. Thankfully I have a wonderful husband and he helps
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Interests
These were my interests before I got really bad with my Fibro, and Chronic Fatigue. Camping, football, NASCAR, fishing, a lot of outdoors activities, being able to play and do things with my kids and playing around on my computer, which I do more of now because it is the least harmful thing to my fibro. I love to help people when they are down, I am a very caring and sincere person. I have several messengers so if you would like to chat, private message me and I will be more than happy to give you my screen name so that we can chat!
These were my interests before I got really bad with my Fibro, and Chronic Fatigue. Camping, football,
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Journal
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Journal Entry for February 11, 2008
February 11, 2008 1:41pm
OMG has it been this long since I have been here? What have I done without all the support from my wonderful friends here?
I have sorta finally …
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Journal Entry for October 21, 2007
October 21, 2007 2:20pm
Hey everyone,
Just thought I would let ya all know that I am alive still, just been really under the weather, my doctors cannot seem to figure out …
This entry is private
This entry is private
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SORRY I HAVEN,BEEN ONLINE BUT I LOVE YOU AND I HOPE U FIND SOMETHING TO MAKE U FEELO BETTER PLEASE WRITE ME I HAVE THE SAME PROBLEMS, LOVE, WILDTHING!
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SENDING BIG HUGS TO U TODAY! AN KNOW I THOUGHT OF U TODAY!
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My first job was working in an orange juice factory, but I got canned...couldn't concentrate. I tried working in a muffler factory but that...was exhausting. I wanted to be a barber, but...I just couldn't cut it. I attempted to be a deli worker, but any way I sliced it, I...couldn't cut the mustard. I studied a long time to become a doctor, but I...didn't have any patience. I worked in a shoe factory; I tried but I...just didn't fit in. I managed to get a good job working for a pool maintenance company, but the work was...just too draining. After many years of trying to find steady work I finally got a job as a historian until I realized there was...no future in it. So, I retired and found I'm a perfect fit for it!
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Happy valentines day sweetie. Hope you're having a lovely day. Flowers for a lovely friend x
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Never take someone for granted Hold every person close to your heart Because you might wake up one day And realize that you've lost a diamond While you were too busy collecting stones
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Support Groups
Close Chronic Pain
Diagnosed with this since August 2007, I think that Chronic pain and Fibro go hand in hand...like you can't have one without the other..odd how that works!
Treatments
- Neurontin Working / Worked
- It helps me sleep, I think it is not yet having an effect on my pain.
- Dextropropoxyphene Somewhat Helpful
- Along with Tramadol it helps lessen my pain but not take it away completely! I wish my doctors weren't so afraid of giving me the strong stuff!
- Ativan Working / Worked
- Helps keep the panic attacks down, which in turn lessens the amount of pain I have
- Tramadol Somewhat Helpful
- It helps at times, but not very effective, my doctor suggested that I take two Tylenol arthritis with it, it still don't help that much!
- Zanaflex Working / Worked
- It keeps the muscle spasms to a minimum which helps me sleep and sleep reduces pain for me.
Close Fibromyalgia
I was diagnosed August 27th 2007 with fibro. My doctor said that the problems I have had all my life were this, I have had this illness for 31 years and not known it, was told many times that I was crazy and that it was in my head! Glad I finally found answers, and that I am not crazy and this isn't in my head!
Treatments
- Aqua Therapy Somewhat Helpful
- Being able to be weightless in a pool helps a lot, especially if it is very warm water, I also soak in a hot tub at home, it reduces stiffness and pain even if only for a little while.
- Ativan Working / Worked
- Ativan really helps me stay calm, I have noticed that my panic attacks that I use to have that woke me up have completely stopped! For me this an awesome drug!
- Elavil Too Soon to Tell
- I think this is helping me sleep, yet I think it's too soon to tell if it really is working or not, and I have not noticed any adverse side effects.
- Heat Somewhat Helpful
- I use a heating pad regularly when I get really bad muscle cramps.
- Neurontin Too Soon to Tell
- This helps me sleep, side effect I have noticed, I am a lot more hungry lol
- Tramadol Not Working
- It helps dull the pain, but it don't even come close to helping eliminate it what so ever!
- Vitamin B12 Somewhat Helpful
- I have a B12 deficiency, so taking this helps make me not so tired, and not as forgetful, it lessens my numbness and tingling, there are no side effects that I am aware of!
- Zanaflex Working / Worked
- This is a miracle drug for me, my muscle spasms have nearly come to a complete halt. I love this and if my doctors ever quit prescribing it for me, I don't know what I will do, because Flexeril was like taking a sugar pill, it did nothing!
- Dextropropoxyphene Somewhat Helpful
- This combined with Tramodol, helps the pain a little more, I think I still need something a bit stronger to make my quality of life better though.
Open Irritable Bowel Syndrome (IBS)
I have had diagnosed IBS for a year now, I treat it as needed.
Treatments
- Bentyl Working / Worked
- It works, but seems to cause me a lot more diarrhea..but it keeps things going instead of once every three weeks, lol
Open Carpal Tunnel Syndrome
I have broken both of my arms several times, I just found out from my Rhumy that I had it, I was oblivious to the fact that I did, I just figured the pain I experienced in my hands was due to other reasons.
Treatments
- Wrist Splint Working / Worked
- Wear them to bed, and while on my computer.
Open Migraine Headaches
I have had chronic Migraines since 2001, I have no current preventative treatment for them, and think they are related to my fibro.
Open Environmental Allergies
Type of allergy: Allergic RhinitisI suffer from allergies to Milo, grass, and dust, and pollen.
Treatments
- Benadryl Working / Worked
Open Families & Friends Affected By Suicide
My oldest son's dad killed himself May 19 2007. I now raise our son alone, and dealing with the way he died has caused a lot of heartache and questions that we will never get the answers to!
Open Chronic Fatigue Syndrome
I have chronic fatigue, because I have insomnia, and FMS, I think all three of these go hand in hand.
Treatments
- Elavil Working / Worked
- helps me sleep and I don't feel groggy when I take it between 5pm and 7pm.
- Elavil Working / Worked
- 600mg at bedtime is more than enough to knock me out for the time being.
- Ativan Working / Worked
- Makes me drowsy, take 1mg at bedtime and up to three a day to help with the anxiety.
Open Anxiety
I have had anxiety for as long as I can remember, it wasn't until a few years ago that I started getting help with it, because when things happen because of anxiety it is scary, when you don't know what is happening!
Treatments
- Ativan Working / Worked
- Works well, it has stopped my night time panic attacks that would wake me up and scare the crap out of me.
- Xanax Working / Worked
- I like this medicine, but it is hard to get a doctor to keep you on it for very long because of its addictive properties.
- Zoloft Working / Worked
- I have to use something in conjunction with this otherwise I still suffer greatly from panic attacks especially during the night or when I am out in crowded places.
Open Panic Attacks
Treatments
- Ativan Working / Worked
- Works really well, it has stopped me from having night time panic attacks, I love this stuff it allows me to sleep better!
- Xanax Working / Worked
- I like Xanax, but with it being so addictive, it is hard to find a doctor who will prescribe it for any length of time. But when I can get it prescribed to me, it is a life saver.
- Zoloft Working / Worked
- I need to take Ativan with this otherwise I still have awful panic attacks especially during the night.
