Journal Entry for November 21, 2009
November 21, 2009 7:27am
I'm exhausted and have relapsed. I'm in a new job and that's good, but it still takes everything I have.
What I'm realising is …
Loomcgoo
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About Me
Loomcgoo
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About Me
I became ill at 15 and have been ill almost half of my life. I did a degree part time for several years and then went full time, which was a real struggle but it kept me going and helped me to cope when my illness was really bad. It gave me something to focus on whilst I was trying to recover. I then gained employment using my degree and worked full-time. I was reasonably well then, although I still struggled a lot (which suggests it was probably too much). Unfortunately after two years I had a full on relapse (actually lots of relapses). It took me another year and a half to get back into work, which I do part time. I have learned that I can't expect to get back into life the way I'd hope and make up for lost time, because I have to work with my body and it is very limited. This, however, means I am learning to live in the moment and for today, rather than for a future that's unlikely to happen. I do believe I will get well again (reasonably well, where everyday things aren't a struggle). I have tried everything; diet, conventional medicine, alternative medicine, graded exercise therapy, I use rating scales to chart my illness and try to figure out anything that makes me worse or better. I eat a gluten free and as much as possible dairy free diet, which does lessen the symptoms. Also I have found reducing stress and getting as much rest as possible as well as pacing myself in whatever I have to do helps recovery.
I became ill at 15 and have been ill almost half of my life. I did a degree part time for several years and then went full time, which was a real struggle but it kept me going and helped me to cope when my illness was really bad. It gave me something to focus on whilst I was trying to recover. I then gained employment using my degree and worked full-time. I was reasonably well then, although I still struggled a lot (which suggests it was probably too much). Unfortunately after two years I had a full
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Interests
I enjoy walks, camping and being with my family. When I'm able that is.
I enjoy walks, camping and being with my family. When I'm able that is.
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Recent Activity
Recently:
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2 hugs given, 1 hug received, 1 journal post
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Journal
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Journal Entry for August 24, 2009
August 24, 2009 3:15pm
I really know that pacing is essential to helping my health become more stable. The problem is my part time job takes everything I have and …
This entry is private
This entry is private
This entry is private
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Hugbook
Hug
Hope you're not offended. I got in a housecleaning mood and tossed out all my inactive friends. I had not heard from some of them in a really long time. If you are back into ds again, great news. Welcome back.
I’m With You
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Hug
Thanks for the friend request. Can't guarantee I will keep up with our friendship, I have a slow connection, and ds is very, very slow for me...but I will try. I commented on your last journal entry, just some thoughts about some of the struggles we both are going through.
Go For It
If you know how to start a Daily Scream group, I'll be the first to join. I've never had luck starting anything on here . . . . .
Hug
Hey there - sorry it's taken so long to get in touch. Rose makes slow (very slow progress) less infections... but maybe that's summer... still no headache, which is wonderful, but her energy levels are still low.
Hope you are improving - have left details of how i can be more easily contacted on journal.
xxx
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Photos
Loomcgoo hasn’t uploaded any photos yet
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Support Groups
Close Chronic Fatigue Syndrome
I have had CFS for 16 years. I was recovering and working full time (in my 13th year), but relapsed again and am now out of work. I am still a lot better than when I was first ill, but have taken a bit of a blow. I know though I was getting it right and will build myself up again.
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