Falling in Whirlpool of confusion
July 22, 2008 2:34pm
I just went through a horrible weekend. I couldnt stop sweating so much. I am not a sweaty person but geezelooweezes I was constantly …
Progress
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Lettetalk 
11:39am, July 5, 2009
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About Me
Lettetalk
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About Me
It is hard to talk about me. I love spring, summer and fall. I am disable but tried not to let it get to me. Ive been married going on 34 yrs. I have 3 wonderful full grown children and 5 grandchildens. Born in Michigan but dont want to go back there. Cant handle the winter anymore. Hubby is in aviation industry so we move alot. We are in Georgia, hoping to move back to florida. I do have physic abilities which I share with my youngest daughter.
It is hard to talk about me. I love spring, summer and fall. I am disable but tried not to let it get to me. Ive been married going on 34 yrs. I have 3 wonderful full grown children and 5 grandchildens. Born in Michigan but dont want to go back there. Cant handle the winter anymore. Hubby is in aviation industry so we move alot. We are in Georgia, hoping to move back to florida. I do have physic abilities which I share with my youngest daughter.
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Interests
I have all sort of hobbies if I ever get to it. Painting, cooking, crocheting, knitting and so on. When ever I get an creative ideas I go do it. Last project I did was painted design a recipe box and cards with it for few folks. I'm interested in paranormal mysteries. Wish I could be one of the ghost hunter. I love to read more of mystery novel. Hated when I solved it before the end. LOL I love gardening but with moving so much I cant bummer. Hopefully when hubby retire I will be able to garden again. I love music mostly love songs, oldies soft rock and nature music.
I have all sort of hobbies if I ever get to it. Painting, cooking, crocheting, knitting and so on. When
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Recent Activity
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Journal
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Another frustrating week
July 12, 2008 5:37am
Another week went by still feeling like crap. No matter what I do, nothing seems to work. We had bad weather and it play havoc on my …
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What a headache ugh
July 6, 2008 1:59am
Last Tuesday, out of the blue my right kidney flare up. I was out of my percocet and call my dr for refill. By the time thursday roll around I was …
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Feeling low and in pain
June 29, 2008 2:06am
I woke up in pain where I couldnt catch my breath. I hate when my kidney acted up like that. I've been trying so hard not to let my …
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Pushing on
June 24, 2008 4:14pm
I made a goal to myself a week ago to try to push on inspite of my pains. Whether I am physically or emotionally hurting, I dont want to stop. …
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Hugbook
Hug
Wow, from the photos on your page here, you have a really wonderful family. It looks like it is a good source of happiness for you!!
Flower
HAPPY BELATED BIRTHDAY YAHO FROM 54YRS SOMETHING.YESTERDAY'S CHILD...M
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Flower
I AM SORRY DEAR HOPEFULLY THINGS WILL CHANGE.WE CAN'T FALL DOWN BECAUSE WE BREAK TO EASY.FIND A GOOD SOCIAL WORKER.CHECK OUT OTHER PKD SITES. WASH STATE HAS BEEN KIND WITH THERE LAWS REGARDING MEDS AND PKD..M
Good Luck
Sorry to hear about your kidneys. I have issues with mine too so I know how that can be. Even when my GFR gets better, I still have the ascites. I hope all goes well with you. Is PKD painful? Sounds like it is. Myself, dealing with severe bone pain from lymes disease. As if Lupus wasn't enough fun to deal with. It does wear you out. Thanks for taking the time to write and let me know how you are doing. I'm here if you need to talk. Best wishes - Kristin
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Hug
Haven't heard from you in a while. Everything ok? Thinking of you - Kristin
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Photos
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Support Groups
Close Polycystic Kidney Disease (PKD)
For years, I had problems with bladder and kidney infections. About eight years ago, I found out that I have PKD. After alot of research and talking to specialists, it was highly suggested that my late mom and late aunt died from the result from PKD. Both of them died from anerysm. My daughter also have PKD. The doctor said it is hereditary on the female side of the family.
Treatments
- Tramadol Somewhat Helpful
- I have my good and bad days with my pain. Unfortunately, last year in December, I was told that I would be a prime canidate for a kidney transplant for my right kidney. I didn't tell anyone because I was undergoing surgeries for abdominal problems with unrelated diseases. That is when the doctor told my husband about my kidney. I wanted to deal with one problem at a time. I find taking Tramadol helps. Sometimes taking half a percocet helps me tolerate the pain.
Close Blindness & Visual Impairment
Type: Low VisionI was born with a very unique hearing loss. After the death of my mother and horrible blotch up hysteracomy surgey, six months later in Oct of 1996 I was told I have RP. It was really overwhelming to deal with at the time along with my other medical issues. Only thing that really bothers me the most is asking for help. I do not like to be a burden on anyone. Im taking one day at a time to become independent again and be in my own control.
Open Family Issues
Gosh where do I start? Let say I came from a very horrible dysfunctional family. To this day I still bear scars from it. Six years ago I had to disassociate from my family. I had to in order to survive without worrying or looking over my shoulder constantly. Tired of splitting myself up pacifying them and being their punching bag. I was too afraid to stand up to them. One day, I said I'm done and walked away and never look back. I have no regret.
Treatments
- Psychotherapy Working / Worked
- Working good. Some things I won't talk about, it stays in the past like an old forgotten book on the shelf. No need to read it again.
- Talking Working / Worked
- Talking with my hubby and my children. They knew about my situations from either me or outside of the family members.
Open Anxiety
I suffered from anxiety/panic disorders for years. Been in counseling for over 12 years.
Treatments
- Xanax Working / Worked
- I do have medical condition that is causing me alot of pain. Trying to control my anxiety attacks and dealing with pain is no easy task. Taking xanax does helps. I refuse to be over medicated so I can have control. Sadly I cannot take any antidepressant med cuz it causes me to have seizures.
Open Chronic Pain
I suffer from severe PKD, polysictic kidney disease. My kidneys is functioning at 56 percent. I am in constant pain every day. I do have high tolerance for pain but it is taking toll on my body. I get chew out for not taking my pain med. But lately I am not being able to function as I used to cuz of my pain along with excessive sweating.
Treatments
- Oxycodone Somewhat Helpful
- I take Tramadol 3x day and occaisonally take 1/2 of percocet to function. Actually I should be on more pain med cuz it is causing stress on my body. I really have a hard time asking my dr for help. Even though she is working with me. I need more tests that I dont have money for.
