igloogirl's Journal

Ok so here it goes.

Lately maybe it is me finally being optimistic, but it seems sometimes that the NF really isn't so bad.  Most people who have been around NF are shocked to hear I have it so maybe I have been hyper exaggerating how bad it really is (for me at least).

There just seems to be so much more out there to worry about, so for now my worries go in that little box on the shelf hopefully not to be taken down any time soon.

That does not mean though, that I do not worry for my son.  He does have delays, but all of his therapists remark at how well he is doing and how he shows little sign of NF as well.  He is definitely growing, and making improvements every day.  I worry that it will not stay mild for him, but all I can do is be strong, because without that it really would leave me nowhere anyway.

As mentioned, today is a good day so things may be bound to change, but still I need to keep positive and remember that there is so much more to live for other than be confined by worrying about something I can not change really.

I wish all of you the strength you need to get by things no matter how easy or hard they are because we all are here in this thing called life just trying to get by the best we can.  No one deserves to be treated badly because of a condition.  I actually feel sorry for those that judge so harshly, because one day it will come back tenfold to them.

I am really glad I have found this group of other people with NF, it has brought me a new understanding that we are all in it and can help eachother a lot.