August 09
August 24, 2009 10:50am
My results have come back and my kidneys are still stable at 14%. Thats been seven months now. Still dont have any symptoms or pain so feeling very …
twilson
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About Me
twilson
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About Me
Im a web developer working full-time for a Scottish environmental organisation. I have two young girls and a lovely husband. I like to keep fit (I think Im obsessed!)
Im a web developer working full-time for a Scottish environmental organisation. I have two young girls and a lovely husband. I like to keep fit (I think Im obsessed!)
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Interests
Spending time with my girls. Jazzercise, callanetics, yoga, running (well I try anyway), rock climbing (fake ones) swimming (hey not all of them in a day!). Reading, watching dvds etc etc. I like to keep busy. I would really love a holidy - never had one, too expensive! Childcare costs hurt!
Spending time with my girls. Jazzercise, callanetics, yoga, running (well I try anyway), rock climbing
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Recent Activity
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Journal
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June 09 checkup
June 9, 2009 10:46am
Im still waiting for this, due to go on the 17th. Next week is a very busy week. Im getting my fitness tested before I go onto the transplant waiting …
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Tired
March 16, 2009 7:35am
Just tired all the time. Im so determined, I'm still doing my excercise, Ive no idea how. I spend alot of days sleeping, even at work I have to …
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Final decision
February 9, 2009 6:29am
Peritoneal it is. Im now at the stage of...'Bring it on'. I feel Im over my fears, Ive had a good discussion with the renal education nurses …
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Febuary fistula scan
February 4, 2009 6:20pm
I had a scan today. Didnt go quite as good as I really hoped it would. My veins are very small. Looks like my best option is surgery on the …
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Hugbook
Hug
Thinking of you.
Patricia.
Celebration
Thank you!!! Grant Henry was born on 19th of June - 6 lbs. 13 oz, 20 inches!! I have pics :) I'm not sure how to share them though!!! How are you doing? :)
Flower
Just Passing, I saw you were from Scotland, so am I. I live in England now. Thought I would just say hello. Tom XXX
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Ray of Sunshine
Thanks for your message...yes, it does sound like we are in similar situations! And half my heritage is Scottish...my great-grandparents came over to the US from the Orkneys in the early 1900's.
I have heard that Americans tend to have a higher rate of live kidney donors than other parts of the world...would you be waiting for a cadaver donor or trying to find a live donor? Here we are really encouraged to network to find our own donors...a very American way of doing things. I currently have about 10 people being tested and hope one of them will be a match.
Like you, I am otherwise healthy. My heart, lung and liver function are all optimal. I used to be very into fitness but in the last few years I have been so tired, partly due to the HPB meds so I have really slipped and gotten a little fat. Although the doctor assured me I would take the weight off when I get these huge kidneys removed and get some energy back.
Hope you are feeling well and best of luck with your appointment in 2 weeks. Keep in touch! 
Hug
I'm so glad you are doing well.Exercise is an important thing to do even though we have this disease. I just started to get back on track with diet and exercise. I had a scare 3 weeks ago with my heart and now I'm acting on it. Take care!
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Photos
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Support Groups
Close Polycystic Kidney Disease (PKD)
Ive known that I have had PKD for 12 years since I was 20. I inherited it from my mom. Im not on dialysis yet but soon very soon.
Treatments
- Atenolol Working / Worked
- Avapro Working / Worked
- used to stabilize the protein in my urine along with keeping my BP down
- Iron Working / Worked
- reduces the tiredness
- Baking Soda Working / Worked
- My blood is slightly acidic
Close Dialysis
I have renal failure (PKD) Im not on dialysis yet but an appointment has been made to get a fistula fitted. I will be on dialysis withing the year - I have opted for heamodialysis. My mum hwas on peritoneal at first and due to alot of infections (nearing deaths door) she is now on heamo, not without its problems either, she was third time lucky with a fistula location.
Treatments
- Dialysis Considering
