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  • About Me

    Image of kc61

    kc61

    Female, 48
    NY, USA
    Member since August 28, 2007

    • About Me

      I'm happily married & it gives me great joy to take care of and love my husband, my daughter, our black cat, Mon Amie, our(humble)home and flower gardens. My first 2 seizures were in July 2006, and both GM's. The first one had convulsions so violent that I broke a bone in my spine, a compression fracture at T7. Doctors took 6 weeks to believe me that something was wrong with my spine. Talk about pain... I am fortunate to have all of you to share experiences with. It is a comfort to know that I am not the only one going through difficulties in life. I am glad to be making new friends!

      I'm happily married & it gives me great joy to take care of and love my husband, my daughter, our black cat, Mon Amie, our(humble)home and flower gardens. My first 2 seizures were in July 2006, and both GM's. The first one had convulsions so violent that I broke a bone in my spine, a compression fracture at T7. Doctors took 6 weeks to believe me that something was wrong with my spine. Talk about pain... I am fortunate to have all of you to share experiences with. It is a comfort to know that I am

    • Interests

      Motorcycle rides with my husband; nature; cooking; the History, Discovery & National Geographic Channels (lol); having deep conversations with & getting hugs from my 20 year old daughter; gardening; sunsets on the ridge right behind our house; helping my husband renovate our house; playing chess; cats. Oh yeah and Star Trek. AND, Jeopardy!

      Motorcycle rides with my husband; nature; cooking; the History, Discovery & National Geographic Channels

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Well, Hello, It's been a loooong time!

      Mood October 8, 2009 4:11pm

       

      Hello, everyone- Yes, I haven't been here in probably a year.

       

      I've kept myself in a "closet" for a long time and not …

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  • Hugbook

    Give kc61 a hug



    • Little Love

      From Deeminx October 25

      Hi Kay x Hope alls well x Hugs to you all x
      Dee x

    • Hug

      From angeliamarie October 15

      Glad to see you back,Hopefully things settle at my end some what and I an get on here a little more

    • Hug

      From Deeminx October 13

      Welcome back stranger :-) Hope to hear lots more from you x

    • Sorry

      From angeliamarie October 4

      I haven't been here in a while ,my mom takes up a lot of time,as do my twins. i hope u are doing better then the last time we chatted. be well.
      Angel

    • Hug

      From Shibumi September 7

    Read Hugbook

  • Support Groups

    • Close Epilepsy & Seizures

      7/28/06 age 44 sudden traumatic onset of epilepsy changed my life. For the first 6 weeks no doctors believed me that my spine hurt. They all told me it was pulled muscles. Finally an xray showed a compression fracture at T7. It has been a long road of 2 primary care physicians & 4 neurologists to find my way here. My diagnosis is Catamenial Epilepsy, and lucky me, I can walk.

      Treatments

      Depakote Not Working
      breaktrough seizures and eventually side effects
      Dilantin Not Working
      breaktrough seizures and eventually side effects
      Keppra Not Working
      dose too high, too many side effects
      Lamictal Working / Worked
      Just started, no results yet
      Neurontin Not Working
      breakthough seizures and eventually side effects
      Topamax Not Working
      allergic
      Trileptal Somewhat Helpful
      taking now, having breakthrough seizures, the higher the dose goes, the more migranes i get
  • Groups

  • Friends


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