Primary Care Physician
Dr. Orrange received her BA in Biology at the University of California, San Diego, and a Masters Degree in Health Sciences at the Johns Hopkins University School of Public Health. She received her MD from the USC Keck School of…
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Cool Online Tool for Organizing Family History
Posted in Acne by Dr. Sharon Orrange on Feb 04, 2009

Obtaining family history from parents and siblings who aren't very forthcoming about their medical history can be tricky. A new tool from the Department of Health and Human Services may make filling out your family history much easier.


Whether it's risk of cancer, heart disease, thyroid disease, or adult -onset diabetes we know that a large percentage of our risk is related to genetics and our family history.


The online tool, called My Family Health Portrait, collects information in a way that is easy for family members to share and for your Physician to use. This offers doctors and patients a convenient way to collect and organize an expanded range of family history information outside of the time constraints and pressures of the office visit.


My Family Health Portrait was introduced in 2004 as a form that patients could print and take to their medical appointments. But what is cool about the revised version (available at https://familyhistory.hhs.gov), is that it allows you to input, save, and download your information. You can share the file with other family members and allow them to add their own information if they choose, and they can send it to their physicians via a secure connection.


Here is how it works: if you create a file with your own history, you are prompted to note the dates when you had certain diseases (if any) or to add diseases not on the default list. You can also add health information about your immediate family members (siblings, parents, children, aunts, and uncles) with options to add more family members. If you give your brother the file, it asks him whether he is a family member and reorients the data around him. This prevents the duplication of data; your brother would only need to input health data that are unique to him.


According to the Department of Health and Human Services, building the basics of a family health history should take about 15-20 minutes. Beyond that, the more family members someone includes, the longer it takes. The history may be downloaded onto a patient's own computer, and it is not automatically accessible by the government or by any health care provider without the patient's permission. The entire program is available for downloading and customizing at no charge.


For those of you who have a hard time grilling family members in person or if your siblings are more private about their histories this provides a way to keep the family history together in one file and input information as you wish.


Cool.


Dr O.


 

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TOTAL COMMENTS: 9 - View All Comments »

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Displaying comments 9-1 of 9
9
What a fantastic tool -- I'm going to try right now -- at least to get started!! Thanks Dr. O!!
By Poppycath  Jun 29, 2009
8
Great information, going to try it right now!
By dtlong  Feb 19, 2009
7
This is brilliant! It would be awesome if all patients brought these printouts with them to their appointments! =D
By Maryelle  Feb 08, 2009
6
It apperars, despite posts, that it is a volintary system.... I totally agree with it's value. However, as an adoptee, If I were to acumilate a past history of "Family genitics" I certainly would NOT be included, despite valid honesty by "family" members.
It appears to be an extraordinary tool for those seeking secrets inside a familial bond.
By AtticusFinch  Feb 07, 2009
5
that seems like a wonderful idea because with all the secrets in my family I have no real idea of any clear medical history I have 3 grown child who I would love to be able to pass this information on to . I cant see where to go to download the information. thx Rene
By hydromama3  Feb 06, 2009
4
i went to the family history web site.as i attempted to edit some info it erased everything.i've got better things to do with my time.the site is no good.
By tomping  Feb 06, 2009
3
thank you for the info.can't wait to get started...
By marymargaret  Feb 04, 2009
2
Thanks for the link, very useful.
By JenCG  Feb 04, 2009
1
Been there done that! The only thing I didn't like is the way it prints out. Other wise a very valuable tool. Thanks for sharing.
By Waitingforhim  Feb 04, 2009
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