Hello EveryonePosted on 05/22/08, 07:13 am
Reply #1 05/22/08 9:09am
Hi ToniCB, have you ever been tested for fibro sounds very much a like. I think most of suffer in silence, cause no one wants to hear someone complain, and there are many of us whos' family's cannot accept it because to them if you can't see it it's not there. I remember when I was once like that and I knew a few people who had lupus but of course I didn't believe it until I got the fibro. Then I had a few appolgies to make. Unfortunately I couldn't appolgise to the most important person, my father, for he had already passed away. So please try not to take it to heart.
Reply #2 05/22/08 6:02pm
Well yes I got a bunch of stuff too. Do you have fibro also. I sometimes don't know whats causing the pain. I think a lot of us have given up on telling others.yes it becomes a way of life. You will find good friends here as we all have the same kind of problems. hugs
Reply #3 05/25/08 8:31am
Well in answer to your first question Toni they rule everything out by vamping your blood, just kidding, by tests, the a reumey,(hopefully a good one) checks your tender points. There are a total of eighteen in all. I have learned along time ago to just keep the pain to myself but then because I wasn't getting any sleep the depression got worse and worse it was a complete mess and I was totally lost. Alot happened then and during it I finally found a good doctor, not the best for he had no clue how to talk to people, but he was good and helped me alot. That's when I was able to get the fibro into remission, which apparently I had for years and did not only know it but I had never even heard of it before. So I was back to work now while I had a few friends we rarely kept in touch so I just worked and worked it was all I had to keep me going so I used it. I'm not going to tell all just yet, but I'll tell some. You see I had been married to an alcholic not to mention a very mentally abusive one and as anyone who has gone through this they know that the alcholic has one goal and that is to control you. Friends were not aloud, but I was fortunate for I had two who would always come to see me. They and my daughter, who was not his, was my saving grace in the end. They kept me going, they had no idea what he thought of them and I couldn't tell them till I finally got away from him. That was after I totalled my car four and a half years ago and got the brain injury plus awhole lot of other things. Boy I do tend to carry on don't I sorry folks, my point was Toni don't feel like your alone because your not there are alot of us out there with various illnesses who have or still do feel the same. We are all here to help each other even if it is just by listening or encouragement. It always helps to know your not alone.
Reply #4 05/25/08 1:12pm
HELLO TONICB LOOK FORWARD TO HAVING A CHAT WITH YOU SOON. I HAVE FYBRO AND ARTHRITIS GOOD DAYS AND SOME VERY BAD DAYS. I ALWAYS SAY THANK GOD FOR THE GOOD DAYS.HOPE THIS FINDS YOU FEELING BETTER THAN YOU HAVE BEEN.XXX
Reply #5 05/25/08 7:49pm
My name is browneyedgirl61 and I suffer from: ulcerative colitis, IBS, GERD, Polymyalgia Rheumatica, Fibromyalgia, Asthma,and sharp pain in my right shoulder. I am presently seeing a GREAT Rhuemy in the Long Beach, CA area. She diagnosed me with having Fibromyalgia and Polymyalgia Rheumatica on Nov. 30, 2007. I see her once every two months or so. I am taking: Prednisone, Elavil, Cenestin, Nadolol, Diovan HCT, Nexium, Klor Con and Lovastatin. I want to thank Dallas for inviting me to this support group.
Reply #6 05/26/08 7:46am
Hey my friend you did come. So glad to have you here. hugs marilyn
Reply #7 05/26/08 8:19pm
LOL....Your right dallas2 does good work and she knows what sites are good. You are very fortunate to have found a really good ruemy and that she see's you every two months. Wow I wish we had that around here, it is well needed I think I wonder what the rest think? Hugs
Reply #8 05/27/08 8:46am
I would love to have a good GP and a good rhuemy. Maybe when I am able to move to a city or near one I will have better luck. I am glad you have a good one Browneyed girl!
This group has been created for people who suffer from fibro and all it lovely cling-a-longs like Arthritis, Lupus, Depression, IBS, and anyone else who might need someone to listen to and perhaps help.We welcome those with MPS and cfs as well as any thing else you would like.