News Article

A place for users of Tysabri to discuss issue of Tysabri Use and also those interested in starting Tysabri.

 

I started this group when I was very uncertain about starting TY. My uncertainty was mainly financial because I was on a patient assistance program for my MS medication & I was frightened to give up the financial assistance I had to go to something I was uncertain I would be able to afford. I thought the decision to go TY would unltimately cost me too much and I would never qualify for Patient Assistance again. So I thought I might lose everything by going to TY. I just began inviting everyone who had posted at sometime that they used TY to find out what the future would hold for me if I went to TY.

 

I did start TY with much less anxiety because this group existed. Because of some very supportive members, talented members with people skills in this group. There are very "inconsequential" questions that a person needs to be able to ask and have answered to contain anxiety. The posts & replies answer many of these type of questions. So scroll back to earlier posts, there is a lot of information in those earlier posts. This group has  historical legacy of information in past posts & replies.

 

Any news that is posted about TY is posted here as a place to find out what's been happening with TY. A place to find this historical information. We all share what we know, so we all know more together than we do alone.

There are a range of members with many different lifestyles, that would welcome a contact from someone considering starting TY. I would like to name the people with experience that stands out, but that would be all, because all have something that stands out.

 

Early when I began this group I would get a notice whenever someone joined, so I would ask them what's happening in their life & try to match them with someone who had a similar situation going on. DS no longer sends me that notice of a new person that joined so I am not able to match people. I have to trust that new people will identify those with similar experience & understand that a personal contact by them is recieved and welcomed by any & all  members of the group.

 

I'm an information collecting hog so some past posts that stand out to me as useful for a new person to not pass by...there are many depending on the topic of interest, but two right now that stand out to me are...

 

Webcast on What is PML?

 

http://www.dailystrength.org/groups/tysabri-users/discussions/messages/6255531

 

www.researchchannel.org/prog/displayevent.aspx?rID=9219&fID=567

 

Link to a woman with much information on Tysabri because she was one of the people who testified to to the FDA Drug Advisory Comittee to get TY brought back to market after the FDA pulled it from market. She keeps her website up to date and knows a lot about TY and has been using TY for a long time.

 

http://www.dailystrength.org/groups/tysabri-users/discussions/messages/5766230

 

http://lauren-livingwithms-aolcomlglbgl2003.blogspot.com/