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this is a group for parents to be able to ask a teen or adult who has autism or aspergers specific questions that may help them with their children. the mission of this group is to share our experiences of living with autism with you through our own eyes and feelings. if you know of any parents who is seeking to understand autism or has a newly diagnosed child please invite them to the group. all admins have been diagnosed on the autism spectrum. please feel comfortable asking questions.

  • Difficulty with Transitions by Barbara Fowler

    Posted by MelodyRain - 12/17/08, 10:31 pm

    It took me years to figure out that my son had difficulty changing his activity at the drop of a hat, and that any major change like moving, starting ...

  • Teaching Flexibility for the Autistic Child

    Posted by MelodyRain - 12/11/08, 10:33 pm

    Teaching Flexibility for the Autistic Child1 2 3 4 5 (based on 1 rating)by Jill Pertler Topics: All About Autism, more... Autism Spectrum Disorders La...

  • Christmas and children with autism

    Posted by MelodyRain - 12/06/08, 12:05 am

      Christmas can be a very difficult time for many children on the Autistic Spectrum.  The sheer chaos that ensues from changes in routine ad...

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AUTISTIC TEEN AGGRESSION

Posted by MelodyRain - 01/15/09, 09:33 pm
Autistic Teen Aggression  It is not un-common for an autistic child to become aggressive as they enter the teenage years, whether this is due to hormonal changes or the rebellious onset of teenage years as a child becomes more independent of their parents we don’t know…

However as your child grows and enters the teenage years, if you are finding aggression a problem there are a few ways you can find help.

Autistic aggression can be sudden and quite out of the blue, one of the first things you need to remember is the safety of the child as well as his/her peers and any other person within the vicinity.

You will need to first of all determine what is causing these violent aggressive outbursts. What sort of signals do they send before an upset? Can you read his/her body language to know when he/she is becoming upset?

What sort of things are causing the behavior? Are the outbursts connected to school work? To how he/she is feeling physically? To the amount of sleep he/she had? To the clothes he/she wearing, or the clothes of a peer, or maybe teacher? To a scent/smell? To who is near him?

Any of these can trigger an anxiety attack and thus cause an aggressive outburst.

Some experts will suggest not to react to this behavior…however this can be hard and certainly easier said than done. So what do you do when faced with an autistic teenager who is becoming increasingly more aggressive?

People with autism tend to be stronger visually than auditorally. This means they take in information better that they can see, rather than what they can hear. Unfortunately, we as parents, helpers and teachers are talkers. We will talk to explain, we talk to connect. And when we are upset, we tend to talk even more.

An autistic teenager, even one who is highly verbal, when under stress will have increasing difficulties understanding what it is you're saying. Thus when he/she does not respond appropriately, the chances are you will talk even more trying to make them understand, which will actually compound his/her stress even further, rather than decreasing it.

It may well be a good thing to remember when a situation arises it's better to talk less, far less than you would want too. In fact, ideally do not talk. During the outbursts, anything you may say will do little other than aggravate the situation.

Instead, when you do need to speak, try and keep your sentences short and blunt – a mere one word would be best. You could then couple the words you use with visuals or hand signals.

Try and remember that your autistic teenager will take in information better when it is visual (i.e. what he/she can see), rather than what he/she hears.

Because of the problems many autistic and asperger kids have making sense of the world, they often appreciate having rules and expectations set out clearly for them. Autistic people respond well to repetition and sameness. Therefore it has been found that they will respond well to, "The rule is...". This simple technique can have a great impact in many situations.

“Establish rules”. You will need to make them clear and precise. Then stick them in every place that your autistic teenager will go to. It won't work if you simply tell him/her the rules or discuss them - they have to be visual.

You may well want to consider doing the same thing with the consequences you've set up for rule infractions. Therefore when you feel an incident or outburst may be building, rather than issuing verbal warnings, tap on the visually posted rule.

Also remembering autistic people are visual learners a visual concise timetable should also be put in place if it has not already been done.

Plus social stories should be introduced. They are an excellent tool for letting a child know what is going to happen and what is expected of him. Thus taking away some of the anxiety triggers that can cause the outbursts. When using social stories ensure they are pictorially rich showing the autistic teenager visually what is expected, “The rules”, and giving them clear cues for behavior and what is expected of them in any given situation.

These short pieces of text can be like the autistic teenagers best friend not only are they visual but there is text to accompany the images giving your aggressive autistic teenager clear social cues for their expected behavior, giving them the rules and possible consequence of inappropriate behaviors.

By using the techniques set out above and the introduction of social stories, aggressive outburst should be kept to a minimum.

TOP 10 Terrific Traits of Autistic People

Posted by MelodyRain - 01/13/09, 04:09 pm
Saturday, October 14, 2006Top 10 Terrific Traits of Autistic People If you're sick of hearing about all the "deficits" challenging people on the autism spectrum, join the club! But for every down side to autism, there seems to be a positive -- an unusual trait that rarely appears among the "typical" community, but shines out among autistic folk. These plusses are well worth celebrating.

1) Autistic People Rarely Lie
We all claim to value the truth, but almost all of us tell little white lies. All, that is, except people on the autism spectrum. To them, truth is truth -- and a good word from a person on the spectrum is the real deal.
2) People on the Autism Spectrum Live in the Moment
How often do typical people fail to notice what's in front of their eyes because they're distracted by social cues or random chitchat? People on the autism spectrum truely attend to the sensory input that surrounds them. Many have achieved the ideal of mindfulness.
3) People with Autism Rarely Judge Others
Who's fatter? Richer? Smarter? For people on the autism spectrum, these distinctions hold much less importance than for typical folks. In fact, people on the spectrum often see through such surface appearances to discover the real person.
4) Autistic People are Passionate
Of course, not all autistic people are alike. But many are truly passionate about the things, ideas and people in their lives. How many "typical" people can say the same?
5) People with Autism Are Not Tied to Social Expectations
If you've ever bought a car, played a game or joined a club to fit in, you know how hard it is to be true to yourself. But for people with autism, social expectations can be honestly irrelevant. What matters is true liking, interest and passion -- not keeping up with the Joneses.
6) People with Autism Have Terrific Memories
How often do typical people forget directions, or fail to take note of colors, names, and other details? People on the autism spectrum are often much more tuned in to details. They may have a much better memory than their typical peers for all kind of critical details.
7) Autistic People Are Less Materialistic
Of course, this is not universally true -- but in general, people with autism are far less concerned with outward appearance than their typical peers. As a result, they worry less about brand names, hairstyles and other expensive but unimportant externals than most people do.
8) Autistic People Play Fewer Head Games
Who was that woman, and why were you looking at her? I know I TOLD you I didn't mind if you went out, but why did you believe me? Most autistic people don't play games like these -- and they assume that you won't either. It's a refreshing and wonderful change from the Peyton Place emotional roller coaster that mars too many typical relationships!
9) Autistic People Have Fewer Hidden Agendas
Most of the time, if a person on the autism spectrum tells you what he wants -- he is telling you what he wants. No need to beat around the bush, second guess, and hope you're reading between the lines!
10) People with Autism Open New Doors for Neurotypicals
For some of us neurotypicals, having an autistic person in our lives has had a profound positive impact on our perceptions, beliefs and expectations. For me, at least, being the mom of a son on the autism spectrum has released me from a lifetime of "should" -- and offered me a new world of "is."
By: Lisa Jo Rudy

AN INTRODUCTION TO SOCIAL STORIES

Posted by MelodyRain - 01/05/09, 09:18 pm

 Social Stories

An Introduction to Social Stories

[ by Jason M. Wallin ]

ContentsWhat are Social Stories? A sample Social Story The need for social skills intervention The benefits of Social Stories Identifying student needs Writing a Social Story Presentation and authoring styles Implementation, monitoring, and fading out Further information What are Social Stories?

Social Stories are a tool for teaching social skills to children with autism and related disabilities. Social stories provide an individual with accurate information about those situations that he may find difficult or confusing. The situation is described in detail and focus is given to a few key points: the important social cues, the events and reactions the individual might expect to occur in the situation, the actions and reactions that might be expected of him, and why. The goal of the story is to increase the individual’s understanding of, make him more comfortable in, and possibly suggest some appropriate responses for the situation in question.

A sample Social Story

Before we go too far into the specifics of Social Stories, let's take a look a simple sample story.

Lining Up

At school, we sometimes line up.

We line up to go to the gym, to go to the library, and to go out to recess.

Sometimes my friends and I get excited when we line up, because we’re going someplace fun, like out to recess.

It is okay to get excited, but it is important to try to walk to the line. Running can cause accidents, and my friends or I could get hurt.

I will try to walk to the line.

As may be evident, Social Stories are relatively short, straightforward descriptions of social situations, specifically detailing what an individual might expect from the situation and what may be expected of him.

The need for social skills intervention

Qualitative impairment in social interaction is a defining quality for a diagnosis of autism (DSM-IV, 1994) and is thought by some to be the defining characteristic of autism: social dysfunction may be what makes autism something more than just a language delay, etc.

Theory of Mind

Recently, the notion that those with autism may lack a theory of mind has circulated among those who study social impairments in individuals with autism. This deficit is essentially a lack of understanding that others have their own thoughts, feelings, plans, and points of view result in in difficulty understanding the expectations of others and an inability to predict what others will say or do in social situations. This theory of mind phenomenon appears to be unique to those with autism and largely independent of intelligence. Regardless of where an individual may fall within the spectrum of autism-like disorders they seem to exhibit this deficit, though it seems to be slightly less prevalent in those with Asperger's syndrome.

The benefits of Social Stories

How, then, do Social Stories help to address these special social needs and the often unique learning styles of those with autism? Social Stories attempt to address the "theory of mind" impairment by giving individuals some perspective on the thoughts, emotions, and behaviors of others. They help the individual better predict the actions and assumptions of others. Social stories also present information on social situations in a structured and consistent manner, a particularly appropriate approach for kids with autism, especially when dealing with skills and behaviors which are so fluid as those involved in social interactions. Along that line, Social Stories also give individuals direct contact with social information, contact through pictures and text as opposed to speech or observation, notable areas of weakness for kids with autism. Finally, Social Stories provide a little distance between teaching and the possible stresses of the social situation itself; they give the child a chance to practice the skills often and on his terms.

Identifying student needs

Of course, before one begins writing a Social Story, it should be determined exactly which skill or situation one wishes to focus upon. Before even this, though, it is often helpful to look at how a child socializes overall and to determine the possible efficacy of Social Stories in addressing his needs.

There are three broad categories into which we can classify social impairments:

Social avoidance -- Kids who would fall into the category of socially avoidant might be those who tantrum, shy away from, or attempt to escape from social situations. Often, kids that are this avoidant of social situations are doing so because they have some hypersensitivity to certain sensory stimuli. Consequently, those sensory needs must be addressed prior to attempts at teaching social skills. A kid who is constantly overwhelmed by his environment is likely not going to be successful in many interventions. Social stories may well prove to be useful tools with such children, but only after the sensory needs of those children have been met (through sensory integration, vision therapy, auditory integration, etc.). Social indifference -- Social indifference is the social impairment common to the majority of children with autism. Children who are socially indifferent are those who do not actively seek social interaction, but at the same time, do not aggressively avoid such interaction. Social Stories are often quite effective with socially avoidant kids: they can simplify and illustrate social interactions, with the hope that increased understanding of those situations will make them more attractive and reinforcing for the child. Social awkwardness -- Socially awkward children are typically higher functioning kids who may try very hard to gain and keep friends, but are hindered by a lack of reciprocity in conversation and interest -- they focus on their favorite topic or topics to the exclusion of most everything else -- and an inability to learn social skills and taboos by observing others. Social stories are often very effective with these individuals as they teach explicitly those skills and taboos that these children do not just pick up from their environment. Social stories provide them with a framework for successful social interaction: perspective on the thoughts, emotions, and beliefs of others in their environment, and suggestions of appropriate behaviors.

Having determined how a child socializes generally, one can now look to defining specific skills and situations to which focus will be given.

It is typically fairly evident to the child and whomever may be working with him which situations -- at home, at play, or at school -- are proving difficult. Even if the child has little language, careful observation can often determine difficult situations. Situations from which a child withdraws, from which he attempts to escape, or in which he tantrums, cries, or becomes frightened may be appropriate targets for a Social Story. As Social Stories primarily address problems of social cognition -- situations in which it is the child's misunderstanding of the expectations and intricacies of the situation which are driving the difficulty -- it should be determined that it is indeed that deficient cognition that is the root of the problem and not some other issue (a sensory processing problem, for example).

Ideally, anyone who works with a child at school or at home -- parents, teachers, instructional assistants, specialists, etc. -- should be consulted prior to the writing of a story. Each may have some unique insight into the situation.

As a Social Story is intended to be written from the perspective of the child, it is paramount that the author is able to obtain that perspective. With higher functioning children, they can assist in the writing of the story, discussing those areas where they are having difficulty and helping the educator or parent to write from that perspective. With nonverbal or lower functioning children this task will require more careful observation on the part of the author. Focus of the story should typically be given to the motivation of current behaviors and not necessarily to the behaviors themselves. For example, if a child begins to tantrum or cry when his assistant leaves the classroom, your first instinct might be to write a story about crying, when and where it might not be appropriate, etc. However, a more effective approach might be to write a Social Story about being scared or frustrated (if indeed you have determined that fear or frustration are the underlying motivation for the behavior), and what things might make him scared, and how he might go about dealing with that.

It is also very important that the expected response is clearly defined. To continue the above example, again one may be tempted to define the expected response as "Kevin will reduce the number of incidences of crying each day," or something similar. A better expectation might be "We will attempt to make Kevin feel more comfortable when his assistant is out of the room."

Writing a Social Story

Having determined those areas on which one wishes to focus, the writing of the Social Story can begin. Again, a Social Story is usually a first-person, present-tense story used to provide a student with as much information about a social situation as possible, so he is better prepared to face, and act appropriately in, that situation.

There are four types of sentences used to present this information in a Social Story:

Descriptive sentences objectively address the “wh” questions: where the situation takes place, who is involved, what they are doing, and why they may be doing it. Perspective sentences give a peek into the minds of those involved in the story; they provide details about the emotions and thoughts of others. Directive sentences suggest desired responses tailored to the individual. Control sentences are authored by the student himself as something of a mnemonic device -- a sentence to help him remember the story or deal with the situation. These are not used in every story and are typically used only with fairly high functioning children.

Below is another sample social story. Each of the sentences in this story has been labeled to illustrate each of the above sentences (except for the control sentence -- I've not yet had a child that has opted to use them, so I'm not going to even pretend to be able to dream up a good one yet).

Sitting on the Carpet

Sometimes our class sits on the carpet. (descriptive) We sit on the carpet to listen to stories and for group lessons. (descriptive) My friends are trying hard to listen so they can enjoy the story or learn from the lessons. (perspective) It can be hard for them to listen is someone is noisy or not sitting still. (descriptive) I will try to sit still and stay quiet during our time on the carpet. (descriptive)

Carol Gray, the developer of Social Stories, has edited two books on Social Stories. Each contain dozens of sample stories and a very helpful kit on writing social stories. In those kits Ms. Gray recommends that a ratio of at least three to five descriptive or perspective sentences for every directive sentence be used for each story. As a child becomes more and more successful with Social Stories, those stories can eventually be written with no directive sentences at all, leaving it up to the child to determine an appropriate and successful response (which is of course, the eventual goal of any social skills intervention). Remember, Social Stories are not scripts detailing appropriate behaviors, rather, they are descriptions of social situations which set the stage for the child to design successful, positive interactions. Along that line, you should avoid the use of absolute, inflexible sentences in your stories. Replace phrases like "I can" and "I will" with "I will try" or "I will work on" in directive sentences. "Usually" and "sometimes" should be used instead of "always" in perspective and descriptive sentences.

When writing your stories, ensure that you are writing with the child in mind: use an appropriate vocabulary and an appropriate type size. Try to make each story resemble as closely as possible the other literature the child may be encountering at home and school. If you are working with a Kindergartner this may mean a single idea on each page, with an accompanying illustration. A middle school student might require a much longer story, maybe resembling a newspaper or magazine article: multiple columns, small type size, etc.

Presentation and authoring styles

While text on paper is likely the easiest presentation to prepare and use, it may not be the most appropriate for every child (non-readers, etc.). There are, however, a variety of presentation styles and options that can be used to meet the needs of a variety of children.

Illustrations -- The child (or parent/teacher) can illustrate each page of the story, or photographs can be taken of the child and his peers in the social situation. These pictures can add interest and visual support for the presented ideas. Be wary, though, of images that are too complex. Children with autism do not always focus on pictures as we would expect (they sometimes fail to focus on a prominent object in the foreground in favor of some other item in the background), so the pictures (photographs, especially) should be as visual uncluttered as possible. Symbols -- The text of the story can be augmented with pictures representing various words or ideas. The Mayer-Johnson Picture Exchange symbols (often generated through their Boardmaker computer program) are typically good choices for this use. For beginning readers, PECS symbols or simple blackline drawings can be substitutes for written words not yet mastered. Or a single, large symbol can represent a complete idea on a particular page. Social Stories on tape -- A reading of a particular story can be recorded on audio tape with a tone or verbal cue for the child to turn the page. Video -- A film could be made of the student and peers acting out applicable scenes from the story. The text of the story should be edited in before the applicable scene, and the written story presented along with the video when it is presented to the child, however, with the hope of eventually fading the video for the written text (as the text is much less labor intensive to create and use than a video). Story boxes -- The child and an adult can act out scenes from the stories with small figures, rooms made of shoeboxes, etc. This too, can add interest and increase understanding of the concepts for children who are not strong readers. Implementation, monitoring, and fading out

Prior to the introduction of a story, the story should be shared with as many people who are involved in the child's program as possible. Accessing this variety of viewpoints can call attention to finer points that may have been overlooked or misstated in the initial authoring of a story. Before, or shortly after, the introduction of the story to the child, those who may be involved in the situation or with the skill targeted should be presented with a copy of the story. It is often helpful to actually have the child present the story to these other students, staff, or family members, and then to have those people read back or discuss the story with the child. These can help the child understand that everyone is on the same page, operating with similar assumptions and expectations. These other students, staff, or family members should be encouraged to refer to the stories when the appropriate social situations arise. As an example, if a child were currently working with a story about raising his hand before he speaks out at school, the classroom teacher might want to refer back to that story prior to circle time. But, as the child has to use this skill in other locations as well, the story should probably be introduced to his speech teacher, his music teacher, the librarian, and so on. Each of these individuals can refer the child back to elements of the story as the need arises.

A consistent schedule for reviewing each story should be maintained. At first this is typically once a day, usually right before the targeted situation (e.g. right before the bell dismissing the class to recess, if the story is about the need to take turns on the monkey bars). However, for some kids, especially during the first few readings of the story, the time just prior to the situation may be too exciting or busy to completely hold their attention for the story. For those kids, consequently, it may be helpful to read the story early in the day and then simply review the highlights prior to the activity.

The effectiveness of the story should be monitored consistently. If after a week or two of working with a particular story, there is little noticeable change, the story should be reworked. Elements that may be vague or confusing should be removed or rewritten. The motivation behind the behavior may need to be re-evaluated. Is the story truly addressing the reasons why the child may be confused or misreading a situation? Is the problem in the situation really one of cognition, or could something else be affecting the child (environmental stimuli, etc.).

As the child becomes more and more successful with the situations presented in a particular story, that story can begin to be faded out or changed to meet the new needs of the child. The number of review sessions can be lessened from once a day, to every other day, to once a week, to twice a month, and so on until they are no longer needed. Or the directive sentences in the story can be reduced or eliminated,

As each story is mastered, it should be kept visible in the child's environment for review when needed. Because the stories are so personalized, so much about the child, they can often be favorites, something the child might want to look through on his own, even when not working on them specifically. A special basket or notebook of mastered stories are good to keep around.

All contents not otherwise attributed are Copyright 2001-2004 by Jason M. Wallin, Oak Harbor, Washington, USA. All rights reserved.

The latest version of this document can be found at http://www.polyxo.com/socialstories/introduction.html


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