tinytina7

PSC

Posted on 02/08/09, 08:34 am

I am so glad I found this site. Last year my 36 year old son-in-law was diagnosed with PSC. It has been very hard to get alot of information about it and so my daughter and I have been researching everything we can but couldn't find discussions from people who have contracted this awful disease. He is in the very early stage and just a few months ago, he said he was having some itching. The doctors here say that it is usually 8-10 years before final stages. I would just like to know things to watch for and to hear more of your stories.

• Reply #1 06/11/09  1:01pm
  
  hb112204
  Any specific questions? We'd be glad to help. Check out my blog too for more stories - http://www.crazymiracle.com ((hugs))

For those of us suffering from a rare liver disease, sclerosing cholangitis. Let's lean on each other and give a voice to our cause. Let's dispel the myths. Even children get this disease, and we're not all previous alcoholics. We know what it's like to struggle with the physical and mental complications of this awful disease. The only true cure is a transplant, and even that isn't a guarantee. Let's find strength in each other and realize that we are not alon