Discussion Topic
ANYTHING NEW WITH THOSE ON PREDNISONE?
Posted on 11/16/08, 11:15 am
I WAS JUST CHECKING ON THOSE STILL BATTLING THE SIDE EFFECTS AND WONDERING HOW ALL IS DOING! PLEASE EVERYONE LETS KEEP THIS GOING....MARCIE
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Reply #1 11/17/08 9:50pm
Oh I'm still on it alright! Still as huge as ever. Definitely crankier than crap. But ever so slowly I am decreasing...2 mg every two weeks. Ugh. How are you marcie? -
Reply #2 11/18/08 7:30am
Doing much better, off the evil stuff and praying hard to stay off of it! Have gained a few pounds, I'm one of those that won't gain weight on prednisone because it makes me so nervouse. I was down to 82 pounds, I think I may weigh about 105 now, wish me luck! -
Reply #3 11/23/08 9:46pm
Holy Crap! My one leg weighs that much. hahaha Yep- It sucks, but I've gained 45lbs since starting 13 months ago. And I know darn well it ain't all from me eatting! -
Reply #4 11/27/08 12:37am
I have gained maybe 5 pounds in the 3 months I've been on it but my face is a frickin balloon and I have more chins than a chinese phone book. I'm down to 10 mg though from 50. BUT now my symptoms are starting to come back which is just frickin wonderful. BTW I suffer from ibd- ulcerative colitis and some pancreatitis issues. -
Reply #5 11/28/08 7:00am
I still have some of the moon face, just a little and I'm wondering if it will ever go away. I also take Asacol and that can cause the face to swell, other than that I can say that I'm doing much better other than the joint pain that comes from crohn's and I have UC to, so I have a double whammy. -
Reply #6 11/28/08 8:49pm
Bless you Marcie I am glad you are getting better and gaining weight. i am so frustrated with my apperance. I used to weight 100-115 ontil 54-5 years ago when prednisone started. Im with PAPenguin my left leg now weights that much. I truely dont recognise myself. And I never had a large bust. Damn I dont know what to do with these things they are huge! Yucky..I liked being boobless!
Everything is the same here. 10 mgs and holding symptoms always come back at 10 mg.
Hang in ther everyone! Plz keep in touch
Again I am so glad you are off the meds Marcie! -
Reply #7 11/30/08 10:42am
I'm sorry that you are having problems, I am off the prednisone and pray that I can stay off. I was so thin and was in bad shape, so bad that the doctors told me that If I lost one more pound that I wouldn't make it. I didn't have enough meat on me to put the feeding line where it was suppose to have been, I had a new type that and I would have to dig out my papers from the hospital to say the name of it, but anyway I had to go to surgery to have it put in and when I woke up it was hurting very bad. They told me to please be very careful that it would not take much to tear the skin...I was so nervous, they stitched artificial skin over it to hold the line in. Being malnourished is no fun and very dangerous. I feel so much better with the weight that I have gained but need at least 10 more pounds. I hope and pray that you can get off the pred and all of you have my prayers. Please keep posting so that I can hear from everyone because I do care..hugs, Marcie -
Reply #8 12/03/08 8:46am
oh Marcie i just hope this is the turn around point for you, you've been suffering for such a long time it must be hard for you to see the light at the end of the tunnel. Being malnourished isn't fun and i know how dangerous it is, i was in the same position as you last year and had a feeding tube out in, i had to have it removed as it got infected but it was brilliant to know everything you need was going in without effort. Just take it easy and look after yourself. Isn't it great to be free of steroids?? lotsa luv Donna x -
Reply #9 12/03/08 8:46am
oh Marcie i just hope this is the turn around point for you, you've been suffering for such a long time it must be hard for you to see the light at the end of the tunnel. Being malnourished isn't fun and i know how dangerous it is, i was in the same position as you last year and had a feeding tube out in, i had to have it removed as it got infected but it was brilliant to know everything you need was going in without effort. Just take it easy and look after yourself. Isn't it great to be free of steroids?? lotsa luv Donna x -
Reply #10 12/05/08 5:06am
Hi I'm still on peds 10 mg till tomorrow than 5 mg for a week after this I should be off &hope of no return,both the flare up &preds.My belly has reach so big that my skin is tearing and my face with the rash well I don't even want to look in the mirror it is just painful to look at it.I'm so glad that my husband still wants to be around me,with my looks and attetude,lol gota love me I guess? Everybody hang in there &hope for health in the comming year,god bless love Birgit
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This group is for the many of us that are on Prednisone and hate it! Yes, it heals what ails us, but it also creates another batch of problems!
