Pelvic Congestion Syndrome Community Group
Pelvic venous congestion syndrome PCS or Pelvic Venous Insufficiency / Incompetence is similar to the condition of varicose veins in the legs. In both cases, the valves in the veins that help blood flow toward the heart do not work properly. As a result, blood pools in the veins, and the veins in the affected body part stretch and bulge. In pelvic venous congestion...
i thought i would post the link between varicosities and low blood preassure, as this has been my hardest and most debilitating symptom' to deal with.
.......
here is the proof that it is linked: http://www.patient.co.uk/doctor/Hypotension.htm#
http://en.wikipedia.org/wiki/Orthostatic_hypotension
-- note how they talk about venous pooling in the lower extremities.
just some extra:
http://en.wikipedia.org/wiki/Hypotension
http://www.nhlbi.nih.gov/health/dci/Diseases/hyp/hyp_all.html
http://www.wellsphere.com/arthritis-article/hypotension-aka-low-blood-pressure/792455
http://ezinearticles.com/?Understanding-The-Symptoms-Of-Poor-Blood-Circulation&id=899717
in fact one of my first symptoms was light headed'ness and numb painful ears, top of head numbness, skipped heart beats and some of the mentioned below which became more obvious as time went by (but also felt at the beginning)...
as time went on i felt weak (my limbs) and i felt as though my heart rate was too low and it felt like i was sinking. my heart rate also started to race whilst upon standing, taking some steps and even talking. i would just end up breathless. also sweat, get hot and cold flushes / chills. and i could feel it was all being caused by what was happening in my abdomen (my PCS) the heaviness and preassure would rise to my upper half of my body and cause head tightness, migraines, ear distortion and ringing. also would get skipped heart beats.
funny enough the exact words i had used over the two years like 'ear distortion' and skipped beats are symtoms of hypotension... as are all i have listed.
now for a few months as i have gotten a whole lot worse... it's like in it's next stage, my usually big veins in my hands are non existant, and i feel bruised all over, cramp, tingly, heavy and weak. not only do i feel this on my arms, but i feel the same sensations all over. my neck and scalp cramp !
the biggest overwhelming feeling is the upperbody tightness from insufficient blood flow. my chest, all up back, and head get so tight and whilst this happens my ears start to buzz, i sweat, i get cold chills chooting out from my abdomen all the way up, and i get hot flushes too... clammy. as well as nausea and dizziness, very weak vision, head pain .. migraine .. neck cramping, and whilst this is happening my limbs are heavy, tingly and weak... but very strange sensation.. like spiders crawling on me. i will have a feeling of having a flu and fever. sometimes my temp does go up.
this is all from insufficient upper body blood flow.
this usually happens... well most of the time, its always there with me. it gets worse if i have been sitting for a long time... the preassure gets just insainley immense. or standing and walking.
.......
here is the proof that it is linked: http://www.patient.co.uk/doctor/Hypotension.htm#
http://en.wikipedia.org/wiki/Orthostatic_hypotension
-- note how they talk about venous pooling in the lower extremities.
just some extra:
http://en.wikipedia.org/wiki/Hypotension
http://www.nhlbi.nih.gov/health/dci/Diseases/hyp/hyp_all.html
http://www.wellsphere.com/arthritis-article/hypotension-aka-low-blood-pressure/792455
http://ezinearticles.com/?Understanding-The-Symptoms-Of-Poor-Blood-Circulation&id=899717
in fact one of my first symptoms was light headed'ness and numb painful ears, top of head numbness, skipped heart beats and some of the mentioned below which became more obvious as time went by (but also felt at the beginning)...
as time went on i felt weak (my limbs) and i felt as though my heart rate was too low and it felt like i was sinking. my heart rate also started to race whilst upon standing, taking some steps and even talking. i would just end up breathless. also sweat, get hot and cold flushes / chills. and i could feel it was all being caused by what was happening in my abdomen (my PCS) the heaviness and preassure would rise to my upper half of my body and cause head tightness, migraines, ear distortion and ringing. also would get skipped heart beats.
funny enough the exact words i had used over the two years like 'ear distortion' and skipped beats are symtoms of hypotension... as are all i have listed.
now for a few months as i have gotten a whole lot worse... it's like in it's next stage, my usually big veins in my hands are non existant, and i feel bruised all over, cramp, tingly, heavy and weak. not only do i feel this on my arms, but i feel the same sensations all over. my neck and scalp cramp !
the biggest overwhelming feeling is the upperbody tightness from insufficient blood flow. my chest, all up back, and head get so tight and whilst this happens my ears start to buzz, i sweat, i get cold chills chooting out from my abdomen all the way up, and i get hot flushes too... clammy. as well as nausea and dizziness, very weak vision, head pain .. migraine .. neck cramping, and whilst this is happening my limbs are heavy, tingly and weak... but very strange sensation.. like spiders crawling on me. i will have a feeling of having a flu and fever. sometimes my temp does go up.
this is all from insufficient upper body blood flow.
this usually happens... well most of the time, its always there with me. it gets worse if i have been sitting for a long time... the preassure gets just insainley immense. or standing and walking.
thank you :)
our bodies DO notice when not all of it makes it back up and when something is 'out of order' ! and legs must firstly go through the pelvis before making it back up to the heart !
i have read many articles stating that extreeme varicose veins cause hypotension (low blood pressure).-- and inturn our hearts beat faster trying to keep up the flow.
whilst i do not need proof.. that is not the point of me posting these, the point is... how can they still be so ignorant to things that are just complete common sense!!!!
here are two other great ones, you definitely need to read the first one:
http://www.pediatricnetwork.org/medical/OI/johnshopkins.htm identical to what i feel. it even states that people with this thing do this: -''Many patients have adopted these postures without knowing why. ie: squatting etc.it also mentions pelvic congestion.
here is the second: http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome
it mentions shaking/tremor. and here is what it says near the bottom:- ''Reduced venous return is one of the main mechanisms that causes POTS symptoms. Venous return can be reduced due to conditions such as low plasma volume (hypovolemia), venous pooling and denervation. A hyperadrenergic state may result as the body attempts to compensate for these abnormalities.''
and one of the first things to enter my mind in hospital when they said they couldnt help was because valves not damaged there was only pooling was- medication to help restrict the veins/ compress them together. now i am not saying this is a good or healthy idea... but this is what i thought of out of desperation when i was thinking ahead already after being wheeled out of 'surgery'.
and funny enough the first article also mentions that.. here is a snippet:- For those with more frequent or more severe symptoms, Step 1 may need to be supplemented by medications. Most of the drugs in common use for NMH and POTS help to improve the ability of the vessels to constrict and return blood to the heart when we stand.
THERE YOU GO !!!!!!!!!!!!!!!!!! how was that for an argument ?
now i am not saying i have POTS or hypotension or synascope or or or all the rest of these postural or what ever things. but it is the same kind of thing! get it?!
here is the link of the discussion of PCS and that lady!
http://www.pelvicpain.org.uk/forum/viewtopic.php?t=350
http://dinet.ipbhost.com/index.php?showtopic=14921&pid=136766&st=0&#entry136766
http://www.pediatricnetwork.org/medical/OI/johnshopkins.htm
c. Treat contributing medical conditions
Attention to other medical conditions is crucial to ensuring that the NMH or POTS treatments are as effective as they can be. In particular, preventing activation of even mild asthma and allergies has been important in keeping our patients from developing a worsening of symptoms. In patients with asthma, we usually try to reduce reliance on albuterol and other beta-agonist inhalers, as these medications can mimic the effect of too much epinephrine, and can aggravate NMH in particular. Endometriosis and other painful conditions may aggravate symptoms, and ovarian vein varices in women with pelvic pain are associated with fatigue and worse orthostatic intolerance. Sinusitis, anxiety disorders, depression, and infections of any sort are examples of other conditions that need appropriate medical attention when present.
its all common sense to me really. i wish they had it too, to have a little intuition.