nhumphrey

My daughter is facing surgery.

Posted on 04/20/08, 02:47 pm

My daughter if facing epilepsy surgery because her medication in not controlling the complex partial seizures she has been having. If you are a parent with a child who has seizures, please join this group. I need someone else to talk to.

• Reply #1 05/05/08  4:51pm
  
  jasmom
  Hi my son also has uncontrolled epilepsy, but his neuro has told me that surgery is out of the question, yet medication is not helping at all, so I really don't know what else to do at this point, but I will push for VNS in the hopes that It might help some. He has Ocipital Eplipsey, Ton-clonic, myoclonic, partial, complex partial, absense, and just recently clusters.
• Reply #2 06/06/08  5:27pm
  
  Caz64
  Hi you were so kind in your reply when I asked how? How do I lose the fear of my sons epilepsy. My heart and thoughts are with you. I know how lonely this is. My husband is reluctant for me to talk to anyone and at times I am so lonely it hurts. How is your daughter doing??
• Reply #3 10/14/08  7:32pm
  
  strongmomma
  Well my son has generalized-tonic-clonic seizures and they come and they go. He is on Keppera now alone and so far so good hes had 2 episodes so far ( keep my fingers crossed) anyway we are going to see how he makes out, and we are reallr thinking about surgery has well. Keep me posted and let me know how it goes with your daughter ok? Hang in there im sure everything will be ok..

This group is for parents whos children suffer with epilepsy be it controlled or uncontrolled. We'll be here together to give hugs and information that could pertain to our children.