Discussion Topic
NERVE DAMAGE RESOURCES and LINKS
Posted on 03/25/08, 12:42 am
!!!IT’S ALL ABOUT NEUROPATHY!!!
ORGANIZATIONS, RESOURCES, MANAGING PAIN Q.&A., PAIN DIARIES CHARTS, WORKSHEETS AND GRAPHICS.
Helpful Links and resources about Neuropathy
ORGANIZATIONS
NATIONAL INSTITUTE of NEUROLOGICAL DISORDERS
http://www.ninds.nih.gov/index.htm
NEUROPATHY ASSOCIATION
www.neuropathy.org/site/PageServer
NATIONAL LIBRARY OF MEDICINE
http://www.nlm.nih.gov/
AMERICAN AUTOIMMUNE DISEASES ASSOCIATION AND RESEARCH REPORTS
http://www.aarda.org/
http://www.aarda.org/research/rese...
NATIONAL CENTER FOR RARE DISORDERS
http://www.rarediseases.org/
NEUROPATHY ASSOCIATION
http://www.neuropathy.org/site/Pag...
DEMYELINATING POLYNEUROPATHY ASSN
http://www.gbsfi.com/
THE CHRONIC PAIN ASSOCIATION
http://www.theacpa.org
CONNECTIVE TISSUE DISEASES
http://www.painfoundation.org/page...
HERIDITARY NEUROPATHY FOUNDATION for Charcot-Marie-Tooth Syndrome
www.hnf-cure.org
US DEPARTMENT OF HEALTH AND HUMAN SERVICES
http://www.hhs.gov/
HELPING DOCTORS HELP PATIENTS - VOICE FOR THE UNINSURED
http://www.ama-assn.org/ama/pub/ca...
http://www.ama-assn.org/ama/pub/ca...
TYPES and DISORDERS
Types of NEUROPATHY – 4 FORMS OF DAMAGE
http://en.wikipedia.org/wiki/Neuro...
NERVOUS SYSTEM - TYPES OF DISORDERS – DESCRIPTION
http://www.answers.com/topic/perip...
TYPES OF NEUROPATHY AND PREVENTING DIABETIC NEUROPATHY
http://diabetes.niddk.nih.gov/dm/p...#autonomic
PAIN MANAGEMENT
PAIN MANAGEMENT TOOL KIT WORKSHEETS
http://www.partnersagainstpain.com...
PAIN MANAGEMENT LOG AND PAIN DIARY
http://www.partnersagainstpain.com...
PAIN FLOW CHART – PEDIATRIC OR NON-VERBAL PATIENTS
http://www.coh.org/prc/pdf/pain_fl...
PAIN RATING CHART
http://www.coh.org/prc/pdf/initial...
PAIN CHART – TRACK YOUR PAIN
http://www.ich.ucl.ac.uk/cpap/protocols_guidelines/gos/pa.pdf
PAIN ASSESSMENT CHART - FACES
http://www.anes.ucla.edu/pain/asse...
PAIN SUFFERING AND SPIRITIAL ASSESSMENT - END OF LIFE QUESTIONS
http://www.coh.org/prc/pdf/Sufferi...
QUALITY OF LIFE SCALE
http://www.theacpa.org/documents/Q...
PAIN TOPICS and RESOURCES
HOW TO EXPLAIN THE PAIN
http://www.painonline.org/dyses.htm
YOU’RE NOT ALONE UNDERSTANDING NERVE PAIN BROCHURE
http://www.theacpa.org/nerve/pdf/F...
IN CASE OF EMERGENCY WHAT TO EXPECT HOW TO PREPARE
http://www.theacpa.org/documents/A...
FACTS AND QUESTIONS ABOUT NERVE PAIN
http://www.theacpa.org/nerve/pdf/N...
TAKE ACTION NOW – NATIONAL PAIN LEGISLATION
http://www.painfoundation.org/page...
UNDERSTANDING KEY TERMS – PAIN MANAGEMENT
http://www.partnersagainstpain.com...
AMERICAN PAIN FOUNDATION – PAIN CONDITIONS AND TOPICS
http://www.painfoundation.org/page...
CARING FOR SOMEONE IN PAIN
http://www.partnersagainstpain.com...
PAIN RESOURCES
http://www.partnersagainstpain.com...
CHRONIC PAIN GUIDELINES
http://healthlink.mcw.edu/article/...
SENSITIVITY TO PAIN EXPLAINED
http://www.news.harvard.edu/gazett...
MANAGING PAIN
TREATMENT FOR BURNING FEET
http://www.mayoclinic.com/print/bu...
NEUROPATHY MEDS
http://www.physiciansweekly.com/ar...
DIABETIC NEUROPATHY AND CHECKLIST – CLICK ON GRAPHICS TO PRINT
http://www.physiciansweekly.com/ar...
http://www.physiciansweekly.com/ar...
MANAGING NEUROPATHY PAIN AND TYPES – MEDS CHART
http://www.physiciansweekly.com/ar...
OTHER
GENETICS HOME REFERENCE
http://ghr.nlm.nih.gov/chromosomes
STEM CELLS HELP PARKINSON PATIENTS
http://www.news.harvard.edu/gazett...
SOCIAL SECRITY REDBOOK – INSURANCE PLANS
http://www.socialsecurity.gov/redb...
GRAPHIC CHARTS
NEUROPATHY PAIN
http://catalog.nucleusinc.com/gene...
NERVE DAMAGE – HOW MEDS HELP
http://catalog.nucleusinc.com/enla...
BRAIN ANIMATION – FIRING NERVE SIGNALS
http://catalog.nucleusinc.com/gene...
NERVE DAMAGE MYELIN SHEATH
http://catalog.nucleusinc.com/enla...
http://catalog.nucleusinc.com/enla...
ORGANIZATIONS, RESOURCES, MANAGING PAIN Q.&A., PAIN DIARIES CHARTS, WORKSHEETS AND GRAPHICS.
Helpful Links and resources about Neuropathy
ORGANIZATIONS
NATIONAL INSTITUTE of NEUROLOGICAL DISORDERS
http://www.ninds.nih.gov/index.htm
NEUROPATHY ASSOCIATION
www.neuropathy.org/site/PageServer
NATIONAL LIBRARY OF MEDICINE
http://www.nlm.nih.gov/
AMERICAN AUTOIMMUNE DISEASES ASSOCIATION AND RESEARCH REPORTS
http://www.aarda.org/
http://www.aarda.org/research/rese...
NATIONAL CENTER FOR RARE DISORDERS
http://www.rarediseases.org/
NEUROPATHY ASSOCIATION
http://www.neuropathy.org/site/Pag...
DEMYELINATING POLYNEUROPATHY ASSN
http://www.gbsfi.com/
THE CHRONIC PAIN ASSOCIATION
http://www.theacpa.org
CONNECTIVE TISSUE DISEASES
http://www.painfoundation.org/page...
HERIDITARY NEUROPATHY FOUNDATION for Charcot-Marie-Tooth Syndrome
www.hnf-cure.org
US DEPARTMENT OF HEALTH AND HUMAN SERVICES
http://www.hhs.gov/
HELPING DOCTORS HELP PATIENTS - VOICE FOR THE UNINSURED
http://www.ama-assn.org/ama/pub/ca...
http://www.ama-assn.org/ama/pub/ca...
TYPES and DISORDERS
Types of NEUROPATHY – 4 FORMS OF DAMAGE
http://en.wikipedia.org/wiki/Neuro...
NERVOUS SYSTEM - TYPES OF DISORDERS – DESCRIPTION
http://www.answers.com/topic/perip...
TYPES OF NEUROPATHY AND PREVENTING DIABETIC NEUROPATHY
http://diabetes.niddk.nih.gov/dm/p...#autonomic
PAIN MANAGEMENT
PAIN MANAGEMENT TOOL KIT WORKSHEETS
http://www.partnersagainstpain.com...
PAIN MANAGEMENT LOG AND PAIN DIARY
http://www.partnersagainstpain.com...
PAIN FLOW CHART – PEDIATRIC OR NON-VERBAL PATIENTS
http://www.coh.org/prc/pdf/pain_fl...
PAIN RATING CHART
http://www.coh.org/prc/pdf/initial...
PAIN CHART – TRACK YOUR PAIN
http://www.ich.ucl.ac.uk/cpap/protocols_guidelines/gos/pa.pdf
PAIN ASSESSMENT CHART - FACES
http://www.anes.ucla.edu/pain/asse...
PAIN SUFFERING AND SPIRITIAL ASSESSMENT - END OF LIFE QUESTIONS
http://www.coh.org/prc/pdf/Sufferi...
QUALITY OF LIFE SCALE
http://www.theacpa.org/documents/Q...
PAIN TOPICS and RESOURCES
HOW TO EXPLAIN THE PAIN
http://www.painonline.org/dyses.htm
YOU’RE NOT ALONE UNDERSTANDING NERVE PAIN BROCHURE
http://www.theacpa.org/nerve/pdf/F...
IN CASE OF EMERGENCY WHAT TO EXPECT HOW TO PREPARE
http://www.theacpa.org/documents/A...
FACTS AND QUESTIONS ABOUT NERVE PAIN
http://www.theacpa.org/nerve/pdf/N...
TAKE ACTION NOW – NATIONAL PAIN LEGISLATION
http://www.painfoundation.org/page...
UNDERSTANDING KEY TERMS – PAIN MANAGEMENT
http://www.partnersagainstpain.com...
AMERICAN PAIN FOUNDATION – PAIN CONDITIONS AND TOPICS
http://www.painfoundation.org/page...
CARING FOR SOMEONE IN PAIN
http://www.partnersagainstpain.com...
PAIN RESOURCES
http://www.partnersagainstpain.com...
CHRONIC PAIN GUIDELINES
http://healthlink.mcw.edu/article/...
SENSITIVITY TO PAIN EXPLAINED
http://www.news.harvard.edu/gazett...
MANAGING PAIN
TREATMENT FOR BURNING FEET
http://www.mayoclinic.com/print/bu...
NEUROPATHY MEDS
http://www.physiciansweekly.com/ar...
DIABETIC NEUROPATHY AND CHECKLIST – CLICK ON GRAPHICS TO PRINT
http://www.physiciansweekly.com/ar...
http://www.physiciansweekly.com/ar...
MANAGING NEUROPATHY PAIN AND TYPES – MEDS CHART
http://www.physiciansweekly.com/ar...
OTHER
GENETICS HOME REFERENCE
http://ghr.nlm.nih.gov/chromosomes
STEM CELLS HELP PARKINSON PATIENTS
http://www.news.harvard.edu/gazett...
SOCIAL SECRITY REDBOOK – INSURANCE PLANS
http://www.socialsecurity.gov/redb...
GRAPHIC CHARTS
NEUROPATHY PAIN
http://catalog.nucleusinc.com/gene...
NERVE DAMAGE – HOW MEDS HELP
http://catalog.nucleusinc.com/enla...
BRAIN ANIMATION – FIRING NERVE SIGNALS
http://catalog.nucleusinc.com/gene...
NERVE DAMAGE MYELIN SHEATH
http://catalog.nucleusinc.com/enla...
http://catalog.nucleusinc.com/enla...
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Reply #1 03/25/08 11:06am
Wow, lots of great links here. Thank you, hope I can get some help for my brother! -
Reply #2 03/25/08 4:22pm
Thanks for all the very helpful links!! -
Reply #3 03/31/08 9:15pm
This same comment thread is also under the topic called "What IS Neuropathy" here in this Neuropathy group. I thought it would be helpful for it to be here under the Neuropathy Resource page too.
Neuropathy is a result of damage to the nervous system following infection, disease, injury, certain medications or is hereditary with no known cause.
Neuropathy can cause weakness, reduced or lost sensation people may develop tingling, burning, shooting pain or numbness; others may experience sharp or dull pains and muscle fatigue, cramps, hot or icy cold at the same time and extreme sensitivity to touch. It may also reduced fine motor coordination, possibly leading to paralysis at the worst extreme. Other types affect other parts of the nervous system and effect digestion, balance, vision, and many other bodily functions. These feelings are associated with.
It can develop with many medical conditions, such as traumatic nerve injury, stroke, multiple sclerosis, diabetes, epilepsy, spinal cord injury, syringomyelia, cancer and many others. Cancer-related neuropathic pain may follow nerves invading the tumor or nerve damage from surgery, radiation, or chemotherapy. There may also be painful swelling of the arms, legs and abnormal sweating.
TYPES of NERVES
Cranial, Central, Peripheral, Autonomic
WHAT NERVES it Damages
Motor – nerves responsible for voluntarily movement
Sensory – touch, temperature, limb position
Autonomic – breathing blood pressure and digestion – everything your body does automatically without you telling it to do it.
COMMON TYPES of Neuropathy
Polyneuropathy – most common – PERIPHERIAL -
Mononeuritis multiplex – Diabetes - many peripheral nerves effected
Mononeuropathy – only a single nerve is effected
Small fiber peripheral neuropathy – often idiopathic no known cause
AUTONOMIC neuropathy – involuntary muscles / organs, nausea etc..
Enteric neuropathy – degeneration
Best way to think of it is… you either have one, the other or both… Small fiber or large fiber
TYPES OF DAMAGE to the Nerve
Compressed, Sheath Loss, Disconnection and Degeneration
http://www.backpain-guide.com/Chap...
Myelin (insulation around nerves – like if you were to put a glove on your hand and the glove starts to deteriorate) it starts to thin out and gets short circuited and signals are broken, causing weakness, numbness and pain
NEUROPATHY CAUSES
Diseases,
Nerve Compression
Entrapment – pressure
Laceration – severed nerves
Toxins – chemical
Inflammation – swelling of neurons
Idiopathic – no cause
HOW IT’S DIAGNOSED
EMG, nerve biopsy, spinal tap, nerve conduction test, or seen by a neurologist Symptoms are usually the only method of diagnosis
HOW MANY PEOPLE are effected
20 million Americans are suffering from peripheral neuropathy
60% of diabetics will develop nerve damage
3% of the the population is effected
HOW IT’S TREATED
It's easy to diagnose neuropathy but is difficult to treat because it is many times idiopathic, which means the doctor doesn't know why the patient has developed nerve damage. However, the causes we understand most are malnutrition, repetitive motion resulting in carpal tunnel syndrome, HIV/AIDS, diabetes, exposure to toxins or poisons, and inherited genetic disorders.
When a doctor can identify one of these causes, she can treat the pain at the source, by correcting or treating diabetes for example. Unfortunately, if the neuropathy is idiopathic, the only available treatment is ongoing, temporary pain management, usually with pharmaceuticals. Researchers are still pursuing many paths of study to better understand the process that leads to such widespread neuropathy.
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Reply #4 04/20/08 9:05am
Trigeminal Neuralgia Links........ http://facial-neuralgia.org/condit... .......... http://www.doctorspiller.com/under... -
Reply #5 04/20/08 10:04am
AUDITORY NEUROPATHY ...... http://www.nidcd.nih.gov/health/he... -- - - - - - -- - - - - -- CANCER RELATED NEUROPATHY .... http://www.livestrong.org/site/c.k... -
Reply #6 04/20/08 10:17am
TINGLY LIPS - FACE http://www.embouchures.com/Medical... -
Reply #7 04/23/08 5:10pm
RADIO INTERVIEWS - NEUROPATHY - http://www.neurocentre.com/radio_i... _ _ _ VIDEO ABOUT NEUROPATHY - http://www.webmd.com/solutions/dia... _ _ _ _ _ ANODYNE THERAPY - http://www.videomd.com/AnodyneTher... _ _ _ _ _ _ _ _ _ LIGHT THERAPY - http://www.webmd.com/video/neuropa... _ _ _ _ _ _ _ _ _ _ _ _ _ HOW NERVES COMMUNICATE http://www.videomd.com/Dopamineand... _ _ _ _ _ FOOT CRYOSURGERY - CHRONIC PAIN â?? http://www.leechvideo.com/video/vi... DIGESTIVE, FOOT PAIN - BALANCE ISSUES - NERVE DAMAGE - http://www.brightcove.tv/title.jsp... _ _ _ _ _ -
Reply #8 04/23/08 5:24pm
ORIGINALLY POSTED BY Kellygrn Thank you Kelly! Neurology Now magazine is the topic name: Posted on 04/18/08, 04:37 pm It is a very informative magazine. It is free. go to www.neurologynow.com -
Reply #9 04/24/08 9:36pm
Thankyou, thankyou, thankyou, thankyou.
Ali5tair -
Reply #10 04/28/08 3:07pm
How Nerve Pain Occurs
There are 31 pairs of spinal nerves that exit the spinal cord through openings between the vertebrae. The point at which the nerve exits the spinal cord is called the nerve root, and where it branches out into many smaller nerves that control different parts of the body is called peripheral nerves. For example, a nerve that exits the lower back has peripheral branches that extend all the way down to the toes. Peripheral nerves comprise the peripheral nervous system.
The peripheral nerves include both motor nerves and sensory nerves:
0. Sensory nerves are nerves that receive sensory stimuli, such as how something feels and if it is painful. They are made up of nerve fibers, called sensory fibers (mechanoreceptor fibers sense body movement and pressure placed against the body, and nociceptor fibers sense tissue injury).
0. Motor nerves lead to the muscles and stimulate movement. They are made up of nerve fibers called motor fibers.
Nerve Injury And Neuropathy Pain
While is has not been firmly established, it is thought that injury to any of the above types of nerve tissue can be a possible cause neuropathy pain.
The part of the nerve cell that is damaged by a neuropathy is the axon (the inner information pathway of the nerve cell) and/or its myelin covering (the fatty outer sheath that protects the nerve cell and assists in conveying information throughout the nervous system).
When neuropathy pain occurs by damage to the above structures, neuropathy is sustained by abnormal processing of sensory input by the peripheral nervous system and the central nervous system.
http://www.spine-health.com/Condit...
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