blue22

Does anyone come here anymore?

Posted on 01/19/09, 01:01 am

Hi everyone,
I founded this group last year with great hopes that it would be a wonderful, safe place that people with myofascial could connect, seek and share advice etc. I make a point of answering every post- but lately those are fewer and fewer. Does anyone even come here anymore? If you do, how could this site be better, and better meet your needs?
Thanks,
JC

• Reply #1 01/23/09  10:26am
  
  crowmother
  Hi blue, I do check in, but had a very rough Christmas season. As far as ideas, I'm severely brain-fogged today. :o)
  
  For me, the biggest stumbling block w/CMP is the all pervasive ignorance of every available medical professional in my town, state, Midwestern region. Those that have some education in this sadly neglected field of medicine have a very limited education. They don't know what to do for the patient w/CMP type 2 w/central sensitization. When I try to give them info, I get body-slammed against their towering wall of arrogance & treated like a villiage idiot.
  
  Sorry-didn't mean to turn this into a vent!
  Hugs,
  C.M.
• Reply #2 01/27/09  9:43am
  
  richannamae
  I also check in but if there are no post to reply to i just move on to my next group I really with there were more people here too hugs charlene
• Reply #3 01/31/09  2:36pm
  
  Deb115
  HI JC
  I was not on DS for a good 5 months or so, so I was not on any of the boards but since I am back on DS I will be going around to all the groups again. As I recall I did enjoy this one,but if I think of anything I will let you know ok?
  CM~ I have RSD & I run into the exact same thing as you. They are just as ignorant in the medical field for the most part.Do you have avail to you bracelets,name cards etc that you can carry to let them know about your condition? I got them from the RSD foundation and maybe you can get them the same way. I did, and it has been helpful for me!! Good luck,they are still ignorant but if they can read it helps..LOL
  Hugs,Deb
• Reply #4 02/03/09  10:58am
  
  blue22
  I'm glad to know that this board is still alive! I'll try to post more topics and hopefully that will stimulate further discussion. Thanks for checking this group. Deb, it's good to have you back.
  JC
• Reply #5 02/13/09  1:00am
  
  olisa
  Please forgive me!! I come and scan for useful information and move on. Most times i am so sore and sleepy that i don't stay on line long.
• Reply #6 02/13/09  6:02pm
  
  richannamae
  I have the link to the other board http://dailystrength.org/c/Myofasc...
• Reply #7 02/21/09  10:28am
  
  blue22
  Wow, that's interesting. Thanks so much for sharing the link. I had no idea that there was another myofascial group on DS. Do you all want to keep this group here as a seperate group, or do you want to try to merge with that group? I'll start another discussion on this as well.
  JC

This group is for people who have Myofascial Pain Syndrome- anyone with a diagnosis of MPS is welcome to join. Our mandate is to provide support, information, and friendship to people with MPS.