Group News

----- Forwarded Message ----
From: Danyele Brunson
To: Denise Stewart
Cc: Denise Stewart
Sent: Wednesday, April 22, 2009 11:07:49 AM
Subject: Fw: Peace in the Storm







----- Forwarded Message ----
From: Phyllis Simko
To: danyele_brunson@yahoo.com
Sent: Wednesday, April 22, 2009 9:53:29 AM
Subject: Peace in the Storm


Hello Danyele,

Congratulations! Your essay was selected by a review panel as someone to benefit from the Peace in the Storm overnight retreat at the Waterbird Inn & Spa, 556 Indian Boundary in Chesterton.



Some things you should know about the retreat:



Friday, May 15

6:00 p.m. Room Assignment

6:30 p.m. Meet & Greet

7:00 p.m. Journaling presented by Karen Hug

8:00 – 10:00 p.m. Free time – enjoy the pool and/or whirlpool



Saturday, May 16

8:00 – 8:50 a.m Breakfast

9:00 a.m. Living with Lupus: My Story presented by Lynn Watkins, a lupus patient

9:30 a.m. Career Coaching presented by Bridget Williams, University of Phoenix

10:00 a.m. Group A – Spa Experience

Group B – Make up demonstration by LJ Payton, Mary Kay

Accessorizing with scarves and jewelry by Sue Raber, Premier Jewelry

11:00 a.m. Group B – Spa Experience

Group A - Make up demonstration by LJ Payton, Mary Kay

Accessorizing with scarves and jewelry by Sue Raber

12:00 p.m. Lunch

1:00 p.m. Maureen Pratt, Author, Peace in the Storm: Meditations on Chronic Pain and Illness

2:00 p.m. Laughter for the Health of It presented by Terri Quartucci, VNA of Porter County

3:00 p.m. Reflections

4:00 p.m. End of Retreat



If you have any questions, please do not hesitate to contact me at 219.762.6575.



PLEASE LET ME KNOW YOUR 1ST, 2ND AND 3RD CHOICE FOR YOUR SPA EXPERIENCE: MANICURE, PEDICURE AND MASSAGE.



Phyllis


Phyllis Simko
President & CEO
LFA, Indiana Chapter
2642 Eleanor Street
P.O. Box 2763
Portage, IN 46368
(219) 762-6575 (phone)
(219) 764-4517 (fax)
(800) 948-8806 (toll free)
www.lupusindiana.org

 Stimulus Bill Includes NIH Funding for Research; LFA Advocates to Bring Focus on LupusFebruary 18, 2009

Yesterday, President Obama signed into law the American Recovery and Reinvestment Act of 2009. With the leadership of Senator Arlen Specter and Senator Tom Harkin, Congress secured a significant funding increase of $10.4 billion for the National Institutes of Health (NIH). Among other provisions this bill will provide much-needed funding to support research leading to scientific and medical breakthroughs, and ultimately new treatments. This is a victory for the medical and scientific community who are working tirelessly to develop new treatments for people with lupus and other diseases.

Government funding for lupus research is more important than ever before. November 20, 2008, marked 50 years since the Food and Drug Administration (FDA) last approved a new drug specifically to treat lupus. Compared to other diseases, lupus is unique, both in its lack of FDA-approved treatments, and in the dearth of research endeavors to identify better treatments, and, ultimately, a cure.

On March 2-3 an estimated 300 individuals with lupus, their families, and health professionals will deliver this message to Members of the United States Congress, and serve as the voices of the estimated 1.5 million people who have lupus, when the Lupus Foundation of America (LFA) conducts its Eleventh Annual Advocacy Day in Washington, D.C. LFA advocates have achieved numerous successes in recent years, including a call for a national public awareness campaign, funding for studies that determine the true prevalence of lupus in the U.S. and opening new sources of federal agency funding for biomedical research.

The past success of our advocates and the new legislation demonstrate the critical importance of advocacy efforts and why people with lupus must be heard by their elected officials and encouraged to support policy that expands research funding, increases access, and improves the quality of care. We hope that you will join us and that we can continue to count on your support in the fight against lupus.

On behalf of all people affected by lupus, the Lupus Foundation of America thanks President Obama and Congress for supporting NIH research and helping us move closer to finding better treatments and a cure for this disabling and life-threatening disease.

Advocacy Day

Come to Washington, DC for the Lupus Foundation of America’s 2009 Advocacy Day March 2-3, 2009

It was 50 years ago that the U.S. Food and Drug Administration (FDA) last approved a drug to specifically treat lupus. The Lupus Foundation of America (LFA) invites you, your friends, and family members to join with us and lupus advocates from across the country in Washington, DC for the 11th annual Advocacy Day. Together we can change the coming years by advocating for funding that will lead to safer, more tolerable, and effective lupus treatments.

Registration Fee: $35
(includes advocacy materials, select meals, and an event recognition gift)

Register for LFA's Advocacy Day Here:
LFA's 2009 Advocacy Day on Capitol Hill

Event Schedule:
Monday, March 2 -- Meet & Greet and Advocacy Training

11:00 a.m.-1:00 p.m. - For early arrivers, an informal "Meet and Greet" lunch will be held. 1:30-5:00 p.m. - The advocacy training session will review meeting strategies and the LFA’s advocacy priorities. 6:30-8:00 p.m. Dinner with featured speaker, Susan Manzi, M.D., MPH, LFA Board & Medical-Scientific Advisory Council Member, and Associate Professor of Medicine at the University of Pittsburgh.

Tuesday, March 3 -- On Capitol Hill

9:00 a.m.-4:00 p.m. - Join the LFA and its chapter representatives, physicians, researchers, and other lupus advocates on Capitol Hill to meet with Members of Congress and their staff to inform them about lupus and how they can help advance lupus awareness, research, education, and drug development.

Or, you can download a copy of the 2009 Advocacy Day flier (PDF) here.

Location:
Washington Plaza Hotel
10 Thomas Circle, NW
Washington, DC

Make Your Hotel Reservation Here:
A block of rooms has been secured by the LFA for $239 (plus taxes) per night. To make a reservation, go to Hotel Reservations for LFA's 2009 Advocacy Day on Capitol Hill, and enter the code "lupus" to secure one of the newly renovated rooms.

If you have any questions, contact Sara Chang at chang@lupus.org or by phone at 202-349-1169.

Related Links

Sign up to become a lupus e-Advocate.

Read what others had to say about LFA's Advocacy Day 2008.