Discussion Topic

Please I need some Advice.

Posted on 07/07/09, 07:46 pm
I know that this group is for people who have been on Lupron and it hasn't helped. I have just been to the Doctor and he wants to put me on Lupron for 6 months. I have been reading some of what all of you have gone thru. Can anyone tell me, does the add back help at all? I have a real bad feeling about all of this. I would almost opt for another Lap. to help with the endo. I am scared out of my mind and trying to make this discision in 2 weeks. The Dr. said that this is the next step. I had a Lap about a year ago and it helped for approximately a year. The pain has finally come back. I went back and now he said that we need to take the next step..(what is this "we" business?) I do like the Dr. but I don't feel good about this at all. I don't plan on having anymore children so I am at a sort of stand still. I don't know what to do. I could use some advice and guidance. Thank you.
Showing 5 Replies
  • Reply #1 07/09/09  12:45pm
    Lupron is good for taking away endo pain, in my opinion. But with it comes a slew of other things. If you can handle them without the add-back it might go better. Just make sure you're taking your vitamins and a GOOD calcium supplement. I recommend Viactiv.

    I've been on lupron at several differnt times in my life. To me having the add-back made me feel a lil worse. Since it had estrogen in it (minor amounts, so they say), I noticed a difference in my body, if i missed a day. I wouldn't recommend taking it. But just the same, my experience won't necessarily be your, nor yours mine. If you're doing this for endo, consider the long term options like birth control, and even herbal supplements. The same goes for Fibroids or Adenomyosis. Consider your long term options, as Lupron is only temporary. It can give good relief, but eventually it could come back.

    With most docs logic, hysterectomy is the only "cure" for all of this, but it doesn't even come close to tapping the problem. If the thought of this or Lupron makes you uncomfortable, I can't stress enough, explore the long-term treatment options, get to know them well. Most docs, while they have your health in mind, 1) are only human, 2) still don't know much about this disease,and 3) also need to get paid. You are your own best advocate. Research, research, and research.

    I don't mean to sound preachy at all. Sry if I came off that way. I my advice will help you find your best fit.
    Cheers!
    ~C.C.
  • Reply #2 07/12/09  8:30pm
    dear nanette
    the choice is yours, if it where me i wish i could errase the 28jul08 out of my life.
    that was my lupron shot date and i have regretted it ever since
    i just sent an email to dr oz oprahs health guru to do a show on the negative aspects of lupron.
    all lupron victims should email him.
    if your inner voice does not feel good about the shot then you might want to listen to it.
    i wish i had listened to mine!
    good luck
  • Reply #3 10/01/09  2:27pm
    Nanette:

    Don't do it. You will regret the decision. Listen to the Jiminey Cricket voice.....it's not worth taking the chance.
  • Reply #4 10/01/09  11:16pm
    Everyone is diffirent you should be aware of the major side effects lupron can cause some people this is just a few, severe joint pain, nerve and musle damage, fail eyesight, chronic back pain are just a few don't get me wrong for some women lupron works really well but for others it destroys their lives I know I'm one of those women it happen to. My doctor didn't give me all the info prior to my starting lupron so I wasn't able to make the best choice for myself. I just don't want to see the same happen to you. Do some more research in the internet before you decide to continue with this drug that's all I can advise.
  • Reply #5 10/02/09  10:45am
    do not do it....2 years later and I am still experiencing side effects and getting help for it or getting doctors to believe you is a never ending fight

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This is a group for those who have been on Lupron and it HAS NOT worked. It is also for those of us who have had the adverse side effects or those who stopped taking Lupron due to not being able to deal with the side effects. This is NOT a group for those who like Lupron. Thank you.


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