Loved Ones who support someone with MS Community Group
This group is meant for those who help someone with MS. This would include family, good friends, spouses and caregivers. It is a place to exchange good ideas that may help us in caring for those we love that have this disease.
Talk to your doctor about the following to see if any of the below can reduce pain.
1.) Medicine
* Gabapentin
* Cymbalta (is an anti-depressant too)
* Lyrica
* Opana
* Darvocet
* Exalgo
* Neurotin
* tramadol
* Oxycodone (percocet)
* Medical marijuana in the 14 states where it is legal
2.) Diet
* REDUCE sugar (alcohol which is fermented sugar, simple carbs and plain sugar) has been a very effective way to reduce neuropathy. FYI sugar glycerates B vitamins (makes them useless), sugar changes good HDL fat into bad LDL fat, causes insulin resistance if too high for too long and increases inflammation etc. So overall it is good to REDUCE sugar where you can.
3.) Supplements
* B vitamins to help nerve health
If you have Terminal Neuralgia (TN) pain it can get pretty bad. If you can't find any meds to help, then they can block the nerve or cut it to get rid of the pain for good. However, this is a last option as it leaves you unable to feel parts of your face.
* fish oil to help nerve health
Malpractice has made many docs afraid to prescribe some of these meds so ask to be referred to a pain specialist.
1.) Medicine
* Gabapentin
* Cymbalta (is an anti-depressant too)
* Lyrica
* Opana
* Darvocet
* Exalgo
* Neurotin
* tramadol
* Oxycodone (percocet)
* Medical marijuana in the 14 states where it is legal
2.) Diet
* REDUCE sugar (alcohol which is fermented sugar, simple carbs and plain sugar) has been a very effective way to reduce neuropathy. FYI sugar glycerates B vitamins (makes them useless), sugar changes good HDL fat into bad LDL fat, causes insulin resistance if too high for too long and increases inflammation etc. So overall it is good to REDUCE sugar where you can.
3.) Supplements
* B vitamins to help nerve health
If you have Terminal Neuralgia (TN) pain it can get pretty bad. If you can't find any meds to help, then they can block the nerve or cut it to get rid of the pain for good. However, this is a last option as it leaves you unable to feel parts of your face.
* fish oil to help nerve health
Malpractice has made many docs afraid to prescribe some of these meds so ask to be referred to a pain specialist.
* Headaches/Migraines
* Terminal Neuralgia - Short periods of sever unilateral pain or face pain
* L Hermitte's -Pain - Electrical shocks or buzzing sensations
* Burning sensation
* Spasms / Twitching (which can be painful)
* IBS symptoms
Then I would go to management with all your documentation and demand to see a doctor that realizes that MS can come in many forms including the above symptoms that involve pain: Is it standard policy to ignore these symptoms in those with MS and let them be in pain.
Sorry I am ranting but I would be ticked off.
Good luck to you,
EP
* EXERCISE in small amounts to increase number of mitochondria and therefore amount of ATP
* B vitamins (Some of these B vitamins are NAD, FAD which help Mitochondria function)
* L-Carnitine and Alpha Lipoic Acid
* Co Enzyme Q10
* Glutatate and Asparatate need to be in balance for mitochodria to work properly. So REDUCE glutamate (MSGs) as they are already high in those with MS (per research). When glutamate is too high and out of balance then it will affect mitochondria and reduced ATP production.
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Muscle spasms can also be caused from low calcium, potassium, Vitamin D (needed for calcium absorption) or magnesium (ie in walnuts). So if you have pain in your muscles this maybe a contributing factor. If you feel this pertains to you then talk to a doc about it.
See details below and talk to a doc if you think it might help.
http://www.articlesbase.com/medicine-articles/nuromol-the-new-painkiller-4419635.html
http://findarticles.com/p/articles/mi_m0ISW/is_247-248/ai_113807046/?tag=content;col1
http://www.arthritis.org/lipoxins-pain.php
Lipoxins Reduce Chronic Pain
Carrageenan(a type of lipoxin) was used in the study. It reduced inflammation and reduced pain.
Carrageenan, by the way, is a seaweed extract.
http://erm.ersjournals.com/content/erm/ermdta/1/SEC20.abstract.html
Chapter 17. Lipid mediators in severe asthma
"some compounds, such as LIPOXINS, appear to be predominantly endogenous ANTI-inflammatory protective molecules"
THANK YOU for posting. Have you tried reducing sugar? I was just wondering.
I want you to find something that WORKS.
3-4 Tables spoons coffee simmered in 2Cups water for 12 minutes. Then Add more cups of water and let cool. Place this liquid in an enema bag, use it and lay down for 12 minutes and then get up and go on the toilet.
3-4 Tables spoons coffee simmered in 2 Cups water for 15 minutes. Then Add 2 more cups of water and let cool. Place this liquid in an enema bag, use it and lay down for 15 minutes and then get up and go on the toilet.