MSKC

New to LDN

Posted on 06/04/09, 10:54 pm

I am also a member of the regular MS group, but thought that I would join up with people who actually take LDN. I just started LDN last night. I am very excited about the possibilities of this drug. My neuro started me right off with 4.5mg, because he just came back from a symposium on LDN and that is the recommended clinical dosage. I was a bit nauseous this afternoon and felt like I was in one dream after another last night. I took Benedryl with my LDN to help me sleep and I did wake up this morning feeling a little more alert. Any advice on starting LDN would be appreciated. Question: Do neuros take patients off of standard MS injections after they have been on LDN? I have been on Copaxone since 2005 and would love not to have to give myself shots.

• Reply #1 06/04/09  11:15pm
  
  LarryLDN
  good luck. your neuro may not, but you can stop copaxone when ever you like.
  
  
  
• Reply #2 06/05/09  9:37am
  
  DellaJeanne
  welcome. I've been on LDN a year and have tried 4.5. I went back to 3.0 duie to leg stiffness.
• Reply #3 06/05/09  5:39pm
  
  MSKC
  Thanks guys!!! I would love to some day be able to walk my dog even a short distance! Oh, the little things that we miss!!
• Reply #4 06/05/09  9:14pm
  
  DellaJeanne
  I would love to be able to walk at all.
• Reply #5 06/06/09  7:13pm
  
  LarryLDN
  I would love to love ;)
• Reply #6 06/15/09  10:13pm
  
  MSKC
  I started taking LDN on June 3. I am walking better and feel more alert. Also, my muscles seem to be relaxing and I guess that is why I am walking better. I have felt confident enough to go into stores and not use any walking aid! That is extreme progress. But, although I feel more alert and am doing a bit more, I still have to be careful not to over do it. I started trying to act "normal" and MS reared its ugly head and I had a bad fatigue attack for about 2 days. So, it is not a cure, but so far I am seeing an improvement. I go back to the neuro on June 30 for a check up. I am going to ask him what he learned about LDN at the symposium that he went to and if anybody talked about continuing CRAB drugs with LDN. I am on Copaxone and I am tired of taking shots.
• Reply #7 06/20/09  9:23pm
  
  oneblh
  started LDN on 5/15 at 4.5, two weeks dropped to 3.0, dont remember why but there must be a reason, HA!, well whatever, I am feeling better, hard to say I am walking better since I can barely walk but I sure "feel" like should be able to walk, I am sleeping better, not so good for the first few weeks, used ambein, I have more energy, more drive, I keep waiting for the "hammer to drop" but not yet, so far so good. My nuero knew about LDN, never brought it up in 15 yrs, always encourged, pushed even the crab drugs, have taken Beta and Avonex, really didnt like either, she is pushing now for Rebif and I am pushing back. am going to give LDN a chance, what the hell, 15 yrs, maybe 4 taking crabs, no real problem with sticking myself, I just dont like the side effects, I feel bad enough but LDN is helping me feel better for now so we shall see.
• Reply #8 06/21/09  3:10pm
  
  LarryLDN
  I'm in the middle of going to Bluegrass Festivals, been to 3 so far, plans for at least 4 more coming up.. they'll be the challenge as the weather heats up. So far the rain has kept things cool. LDN is awesome, makes this all possible for me. The MS is torture, but the LDN makes it managable
• Reply #9 06/23/09  10:55am
  
  MSKC
  I have now been on LDN for 2 weeks. I am walking better, but most noted is I feel more alert and feel like I think faster. The fatigue issue is still there, but I seem to have a few hours each day to do basic chores better. Today I feel sluggish, but maybe I can get moving later. I am sleeping better now. I take 4.5mg and will see my doctor again on June 30.
  
  My most bothersome problem now is my feet. They burn and I can hardly walk on them. My problem is that when I get moments of feeling almost nomal, I try and do as much as I can and then----I crash. My feet have been rebelling since last Friday when I tried to have a "girls day" with a friend going shoppng which meant that I was on my feet too long and now can't seem to recover. Does anybody else have burning, aching, swollen feet from MS? What to do??? I have had this many times before---perhaps LDN will help with this. Advice????

LDN .. Low Dose Naltrexone 3.0 MG or 4.5 MG ...... Helps ALL AutoImmune diseases not just MS