Yes. I don't like being alone, but I feel like it will probably save me a lot of grief because people don't understand. I feel lonely every day, though, and I wish I could get it over with.

I always feel that no one understands who doesn't have to deal with it, and therefore feel alone allot of the time. I often feel like I am continually being judged by others (often non-verbaly) based on the fact that I can't do allot of the things that others take for granted.

Well I guess all we have is us here at DS at least we all know how it feels.Thanks for letting me know I'm not alone here.

Yes it feels alone, and it is hard for them to watch us suffer. Hang in there.

You are NOT alone...I was only diagnosed 3 months ago and whenever I talk to somebody, they ask me how I can still be sick! No matter how much you try to explain, until they are in our shoes they won't get it.

No I don't think they will ever get it.I haven't been able to work since March because of this and not sure when I can go back as much as I would like to and they don't understand because people say there are people with crohn's who work everyday.I'm sure the people who are working found the right meds and maybe the are in remision,who know we are all different.I just get so mad at myself and everyone else.

i agree totally! except when i'm at crohn's and colitis camp. ha. it feels like a second home to me! But you can't explain the pain in words really. until you feel it yourself. i do feel like being alone sometimes.

I haven't been able to work in years because of my Colitis and Bronchiectasis. I always have trouble breathing, and combine that with a Colitis flare that is going on 4 years now, work has not even been an option. I am just lucky that my wife has a great job and is helpful with my problems.

Lonely in the knowledge that others (including family and friends) can sympathize but can never really understand.
But, what I have come to realize is that if I "talk, talk, talk" about my disease and how I feel it becomes boring conversation for others. So I have learned to be happy that I am as healthy as I am and be grateful that I do not have some worse disease - or paralized - etc.
I think everyone shoulders burdens and how we do that is what gives us strength and charactor.
My Mother died of brain cancer and although she suffered mightily, she remained a class act. Every time I feel lonely or down I think of her and try to be "my Mother's daughter"
May you all be well and have a good today.

Boy, is my spelling bad!!! I wish this site had a built in spell corrector!!
Sorry for all the mistakes. But, the message was from the heart.

Oh you are most definately not alone in your thinking. So far my diagnosis is Colitis, but my doc made me take a special (as in hella expensive) test to see if its defintely Colitis or if its Crohn's. My appointment is thursday to find out for sure. All I know is that its the worst pain i've ever felt in my life! And no one can understand what its like to deal with this kind of pain constantly. I don't like to talk about it to people cause I know they get tired of hearing it, but sometimes I just can't handle hearing people saying "your still in pain? thought you were on medication". Unless they are in your shoes they just won't get it, that a pill isn't going to make it all magically disappear. Oh how I wish it would though.

YES THIS DISEASE SUCKS! I JUST GOT OUT OF THE HOSPITAL AFTER 20 DAYS. STILL NO REMISSION. THE ALSO FOUND CDIFF A SECONDARY INFECTION. ON TOP OF FEELING ALONE I AM ALSO IN QUARANTEN

yeah, I'm with all of you. I'm soooo tired! Three kids and a husband who can't understand why I'm exhausted!

don't worry about spelling, I'm sure mines really bad also.

yes, there isn't a day that goes by, that I don't feel lonely, depressed, like I don't have a friend in the world...

and even worse then that, I've been banned from several crohns related message forums, because they don't like my long informative posts, so even by fellow crohnnies, I feel like I don't have a friend in the world sometimes, like I am "alone" with this whole crohns bit, not to mention everything else that has happened lately.

but around other people, family, friends at school, so on and so forth, I put on that "happy face" because people don't want to hear about all the bad stuff, all the yucky details my mom says, so I put on a happy face for them :) which is good

but inside, I feel like I don't have a friend in the world, and it isn't just from loosing my sight, I've felt this way for 9 years ever since I found out I got crohns, and although it gets easier with time, I always feel like I don't have a support group.

No you are not the only one. I fully understand what you are going through. I had to let a job go that I truely addored, I worked with special children at our school here. O how sad I was to have to give it up. But you are right, people who are not educated have no idea what we face on a daily basis, like we like feeing like this or something. I am praying that you will soon find the right meds for you and you can at least function on a daily basis. It took awhile for the Dr. to find the right combo for me. Just alittle FYI I am on Pentasa, Folic Acid, B12, and I take Humira. The Humira is newly approved for Crohns. I hope you have a good day and Good Luck with finding what works for you.