No I am not that bad off. I do however, have days that I call PJ days. Days where you just shower, put on fresh undies, and put your jammies back on, and get under a nice warm blanket, and call it a day.
I am pretty aggressive with seeking pain treatments that are herbal or natural remedies. I also swim, and do hot tub therapy which I believe helps me a lot.
I still have what I call "bad spells" and I know when I have pushed my luck too far.....
I try to pace myself when I have chores to do, and that seems to help also.

Im not as to say "bed ridden".. but I prop my pillows up and spend alot of time here in my room.. due to ddd and fibro and arthris.. its the most comfortable place for me to be.. I have 2 heating pads for lower and upper back on all day..on low heat and use a big towel over them so my back doesnt burn.. the slow heat keeps the pain down.. I still can cook and clean .. but have to take a rest in between chores.. back starts to give me trouble.. I have my computer set up right next to my bed.. a pretty unique set up.. and put the keyboard on my lap.. I could never sit at a computer desk anymore.. my back wouldnt tolerate it.. so this is ideal for me.. my hubby bought me a brand new recliner for my living room.. so now I can spend a bit more time out there.. and its great.. its made by ashley furniture.. so I was really lucky and blessed to have one now.. You sound pretty bad hun.. feel for ya.. I have my really bad days. ans some good ones too.. It pretty much just trying to make your life as comfy as possible. and just do what you can.. hugs hun.. :)

i feel for you. i have been living with FM since the age of 21. it was impossible to explain to people why a 21 year old was living the life of a retiree... i wish i had been more assertive. anyway as the years passed i had remissions or was in denial (amazing aye). have finally accepted it and still feel sad about it much of the time.

i can still work (barely) and often have days in bed. i rely on opioid drugs which i swear by. they are not for everyone and i sure pay a price in side and long term effects. but we each do what we can to get by.

i am not sure if you feel you are getting the best medical treatment? do you have a support network of family and friends, someone who can help find out if you can get any home help or disability support? even some mobility equipment could help - things to help you roll in bed, modified drinking cups... there are even devices to make computing easier, like voice software, better keyboards.

i know at first it is a shock to our dignity but by heaven if some device for disabled people will reduce my pain i will take it. i am about to have my first order of frozen microwavable meals delivered by a charity at a budget price. i used to work for charities like that, now i am using them at 40.

I don't know. I sit in a chair anywhere from 15min to an hour then I get up and walk around or lay down and toss and turn then get up My body hurts no matter what I do but if I don't move around it hurts more.

As for cooking I use to love to cook now just doing something easy is an effort and I have to set timers for every thing incase I walk out of the room and forget I'm cooking something and even to remind me its time to leave for an appointment or if I let the cats out I need to check to see if they are ready to come back in ( I use to go out with them for an hour aday so now they only stay out an hour and are ready to come back in).

When I watch TV I get up during commerical and do house work so I get things done and don't over do it.

I have to push myself to get out of the house and I use to love to drive.

I hope things get better for You

Hugs

I have PJ days too but I can't just stay in bed on those days as I have a 6 yr old and a 3 yr old that can't run the house by themselves. But I stay home and in my pj's the whole day except to pick the kids up from school. My daughter loves to have pj day when she doesn't have school (mon and thurs.)

I am sorry you arer having such a rough time. I could easily be bedridden but have two dogs that demand walks. Sometimes though I know it is very hard we have to force ourselves to keep doing some kind of exercise. I am wondering if you may also have chronic myofascial pain which often develops with fibro and chronic pain. hugs

Yes and No.
If I do not get sleep, without pain (requiring
medecine;morphine) then I am FU*&ed.
No-swim, or stretch am FU&*ed.
25 years now and hanging onto every-railing
BERRIDEN-JESSICA.......................xxx

I manage to keep fairly active. My children are all school aged and I nap while they are at school (sometimes up to 5 hours) I can't sit or lie in one position for too long though. I have only had fibro for 4-5 years and am only 31. I worry about the future a lot. Being bedridden is my idea of a nightmare (am sure it is yours too), I try to walk on the days that aren't too bad and I really feel it when I don't for some reason. I am just getting back into it now after about a month. w0w it makes me tired.

Coralie XXX

I'm sorry everyone is having a difficult time also.

I've done everything that they have told us to do. I kept up with the exercise until I simply couldn't do it anymore. My last try was the aqua therapy and when I couldn't peel off my wet suit anymore that ended also. I tried the natural remedies and supplements, the guai.

I spent $16 K last year alone on treatments and physical therapy. Desperate to walk again.

Now I'm on the opiate route. And that helps to take the edge off so I can be somewhat functional. But it really doesn't get rid of the pain.

I never thought that my wonderful life would end up like this. :(

I'm sorry you're struggling so badly.

I am not bedridden, but I definitely have days when I can hardly move - today, for example - but my job being what it is, I HAVE to be here, even though there is absolutely NOTHING going on.

Warm, gentle hugs

ps - have you tried meditating to help with the emotional toll? If not, I HIGHLY recommend it. I am a novice, but would be happy to help you out if you need it - just let me know.

Nope - I have bad days, but for the most part, now that I've gotten my pain under control with meds, I'm active.

What meds are you taking and if they are not helping your pain enough to be functional, does your doctor know?

Hon i know you feel. I have had a weak day today and been in bed most of the day today. I feel you on the lying in bed thing. i feel at timed that iu am bed ridden on the bad days and it disheartens me because i used to be able to dance and do aerobics. You are not alone and yes i am semi bed ridden!

I am so sorry. I can really empatize with you. I spent the better part of 2 years barely able to get out of bed to go to the bathroom, even though the bed felt like it had rocks in it. I finally found some treatments that helped me, but I have some major flares. I have been out of bed about a total of 3 maybe 4 hours since 8:30 p.m. yesterday and it's now 6:30 p.m. Tomorrow I may be able to do whatever I want but then again I may not be able to get up in the morning. People don't seem to understand the word bedridden. They think you could get up if you wanted to or if it was really important, and that's just not so. It's not a choice you make, it's made for you by your body. It just won't work. Just don't give up. I had to practically beg the doctor I was seeing at the time for help and tell him I sometimes wished I could die due to the pain, but I got help in the end. There is hope!

I get up every day no matter how I feel. I usually look really funny in the morning like a little old man trying to go get coffee because my feet and knees hurt so much. Once I take my meds I usually can get at least a good hour of being able to move around I just have to take it really slow. Like everyone knows sometimes I can actually have a really good day and then the next in bed feeling like flu . its like a see-saw ...but a little more unpredictable.You never know what each day holds. I believe that with the pain is what causes the depression

I was Close Once...last year about this time...I had been in a Flare since August...with very Few days with Any Relief...

I went to an Internist...she gave me the Usual 6 prescripts...but Also gave me a referral to a Physical Therapist...I threw all the Prescripts away like I Always do...waited a bit...then in a Moment of desperation...called and made an appointment...

My Therapist talked to me about Alot of things...One thing he Did say...was that he would NOT be able to "Cure Me"...but he Promised me a better Place IF I could just Stick With him...and I did...and a few Crashes Later I Noticed some Results...soon I was Like WoW...I did Not Ever Think i could Feel this Great again...I ended up OVERDOING...and Crashed hard...wanted to Quit...he called me...talked me into staying at a "Maintence Level" til I got my strength back up...and so this is the way it has gone for me...when I feel Good...I work out a bit harder then when I crash...I go back to level one...I can tell you...sitiing here basically pain Free is something I NEVER Thought I would again Experience...I can Now walk 2 miles...where I could barely walk from my bed to the bathroom...I can Now go up and down steps several times {During laundry day}...and last Month I went thru a Cave with my Husband...climed 100 steps just to get to the cave...

Am I Cured ?? Nope...I am Not Even 50 percent back to where I used to be...but...I AM in a Much Better Place...

I cannot do a "Hot Tub"...makes me real sick and weak right away...not sure if it is the heat, or High Concentration of Chlorine in the water...but Hot tubs are out for me...sigh.