Discussion Topic
Meet the Heart family
Posted on 03/19/09, 11:47 am
Many of the people on care pages have joined together to pray for the children of the "Heart family". These kids are born with congenital heart defects. They are all less than three years old, most less than a year old. The grown up members of the heart family support them and each other through prayer and some upcoming events.
The names of the children are:
Johnathon 6 weeks old Hypoplastic left heart syndrome
Ethin 2 and 1/2 months old, HLHS. Ethin is in need of our special prayers. He isn't doing well at all and they are going to move up the 2nd operation in the HLHS series to next week. He is too young but they are in a position where they have no other choice.
Zachary- Double inlet Left ventricles. He is facing a Hemi-Fontan in the next month
Kylie-HLHS Kylie has an echocardogram this afternoon to determine if she needs the Hemi-Fontan now or in a month or so. She is also being worked up for a possible metabolic disorder. If she does have this, and doesn't respond to medical treatment, she will need a triple transplant, heart, liver, and kidney, to survive.
Lindsay
Miguel Another HLHS kid that was in the PICU with Kylie, Zachary and Ethin.
Carlie
CarinaKevin,
Ethan, Luke, Evie, Maggie,
Sawyer, Maddie and Braeden
That is a lot of kids, considering that these heart defects are not that common. Please pray for all of these little ones and their families.
There is going to be a Congenital Heart Disease walk up in Ann Arbor of May 9, 2009. I plan on participating in this, probably with other members of my family. I will give you more info as this comes closer.
Also we are trying to get a letter writing campaign going, in hopes of having Oprah address this problem. Ethin's mom, Jessica is heading this up. These heart defects have such an impact on people's lives, and are more common than you would imagine. Yet the general public knows nothing about them. If you would like to send a letter of support, email me at diane.stowers@hotmail.com. I will print them from there and get them to Jessica.
Come on, let's all become members of the Heart Family!
Love and blessings, Diane
The names of the children are:
Johnathon 6 weeks old Hypoplastic left heart syndrome
Ethin 2 and 1/2 months old, HLHS. Ethin is in need of our special prayers. He isn't doing well at all and they are going to move up the 2nd operation in the HLHS series to next week. He is too young but they are in a position where they have no other choice.
Zachary- Double inlet Left ventricles. He is facing a Hemi-Fontan in the next month
Kylie-HLHS Kylie has an echocardogram this afternoon to determine if she needs the Hemi-Fontan now or in a month or so. She is also being worked up for a possible metabolic disorder. If she does have this, and doesn't respond to medical treatment, she will need a triple transplant, heart, liver, and kidney, to survive.
Lindsay
Miguel Another HLHS kid that was in the PICU with Kylie, Zachary and Ethin.
Carlie
CarinaKevin,
Ethan, Luke, Evie, Maggie,
Sawyer, Maddie and Braeden
That is a lot of kids, considering that these heart defects are not that common. Please pray for all of these little ones and their families.
There is going to be a Congenital Heart Disease walk up in Ann Arbor of May 9, 2009. I plan on participating in this, probably with other members of my family. I will give you more info as this comes closer.
Also we are trying to get a letter writing campaign going, in hopes of having Oprah address this problem. Ethin's mom, Jessica is heading this up. These heart defects have such an impact on people's lives, and are more common than you would imagine. Yet the general public knows nothing about them. If you would like to send a letter of support, email me at diane.stowers@hotmail.com. I will print them from there and get them to Jessica.
Come on, let's all become members of the Heart Family!
Love and blessings, Diane
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Reply #1 03/19/09 7:39pm
These sweet little ones will be in my prayers. -
Reply #2 03/20/09 8:18pm
I will be praying for the needs of all of the children that have these heart defects.
Good luck with getting funds for the Cogenital Heart Disease Walk. I will be praying that there will be a lot of support given to this cause on May 9th.
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The miracles surrounding Kylie inspired this prayer room for kids in need so Kylie's ministry can continue on. Kylie's ministry began before her birth by bringing Diane to DS and continued in the PICU when many came to Diane (Kylie's Grandma) with prayer requests for their kids after hearing that Kylie who had been given no hope & taken off life support continue to live. This room is for all kids with physical and emotional needs. Kylie's miracle continues!
