cheetah25

33 fm

Posted on 10/01/09, 07:54 pm

Im a 33 year old female that has recently been diadnosed this has shook me and my family
and friends upside down, I am a christian and feel God guides love through it all,
even if its days that i just want to close my eyes and it be over, God gives me the strenth to climb
mountains spiritually ust not physicaly

• Reply #1 10/16/09  12:22am
  
  Cindy2008
  I get it.... stay strong and God will guide you.
  I named my firbo. Freda- it helps my family understand I want to do the normal things but Freda... well, I just can't. Since this is new for you I will tell you my journey, yours will be different but God has brought me to a place where I am mostly normal and pain free. And that is a miracle!
  
  Tried all the meds, nothing worked and affected me mentally. If ya have a healthy brain the typical drugs they try can make you act different. So be on the look out when you take them. And listen to the Holy Spirit, I refused one drug because I just knew it was wrong for me.
  
  I was in a study at Standford University. You can google- Naltrexone and Fibro. and Standford and you can read about it. It brought my pain from an 8 to 9 daily down to a 3. 3 for me is feeling ok in the morning and feeling like I have the flu at 1pm, need to rest and put my legs up. Doing house work or homework was a no. But I could work full-time again.
  
  Then in Jan. I added exercise. One thing I had not tried but my husband told me to try it. Sometimes it is hard to submit and I can honestly say, I gave my workout my all. I wanted to prove he was wrong! But I woke up the next day sore, normal sore that one experiences when they are on the couch for 18 months. But I went again. Waiting for the flare to start. Day three went again.
  
  All I know is I was standing at the sink that night and my family looked at me and asked me what I was doing. I said 'the dishes." And they said, "No mommie, you are singing." I guess I sing when I am pain-free and normal me. Fibro. had taken that away and no one really realized it until then.
  
  So now I work out 5 times a week. 4 or less.... pain back (3 to 4 type). And I take 4.5 mg's of Naltrexone. I noticed weigh lifting is what helps. If I do only cardio.... nada nothing, it does not work.
  
  Obviously, finding a way to cope and deal with Fibro. is very personal.
  
  One theory is 2 or more ways of getting fibro- 1- from an accident that damages the central nervous system or 2- from a virus that crosses to the nervous system. They think I am the virus one, long story on that. But the researchers theory, which sounds realistic, is that the reason why there is no 1 thing helps all with Firbro. is because there are different causes which is why Lyrica works for some, and the other meds for others.
  
  Sorry if this is too much info. But we are sisters in the Lord and I would have loved to have this info. in the beginning. This site is the where I found the info about the study so I am very grateful. I very rarely go on here any more since I feel so much better. But I like to check in to see if there is new info.
  
  Gently hugs,
  Cindy

TRYING TO DEAL WITH CHRONIC PAIN DUE TO ANYTHINGTHROUGH THE WORD OF JESUS CHRIST.POST YOUR VIEWS OR SCRIPTURE. EXCHAANGE SPIRITUAL VIEWS OR SPIRITUAL WORDS OF GOD FROM HIS WORDS.