Hi Diana,
I just joined this group and found this post. I wanted you to know that I am soo excited about this center opening. I live only about an hour away!! I feel really blessed to be so close. I am praying that people with these illnesses will be helped by this center. I have not been to see Dr. Peterson personally, but have heard good things about him. I will definitely be checking it out when it opens.
Thanks for this post ... it is great to get the news out there!
Hugs,
Sheri
Discussion Topic
Treatment Center Opening for FMS & ME/CFS
Posted on 02/20/09, 04:47 pm
University to Open Research, Treatment Center for Fibromyalgia & Chronic Fatigue Syndrome
Friday February 20, 2009
NEWSBRIEF: Next year, the University of Nevada, Reno (UNR) will open an $86 million Center for Molecular Medicine that will include headquarters of the Whittemore Peterson Institute for Neuro-Immune Disease, which will conduct clinical trials and offer treatment for conditions such as fibromyalgia, chronic fatigue syndrome, and atypical multiple sclerosis.
The developers say the state-of-the-art facility will help them recruit top-notch researchers and faculty. The medical director will be Dr. Daniel Peterson, a leading chronic fatigue syndrome researcher.
A $5-million dollar donation for the facility came from Harvey and Annette Whittemore, whose daughter Andrea has lived with chronic fatigue syndrome for nearly two decades, since she was 12 years old. Annette Whittemore has been actively promoting chronic fatigue syndrome research since 1994.
Read more about the institute and its goals at this link: http://www.rgj.com/apps/pbcs.dll/a...
**The above information thankfully comes from Adrienne Dellwo at www.about.com 's Fibromyalgia & Chronic Fatigue Syndrome site.
**Now, I find this newsbrief to be very interesting because I am excited about the fact that somebody out there believes in us enough to have made such a donation to get a facility up & running to help people just like us out. That is just fantastic! Do any of you have such a center in your area? If so, please tell us a little about it.
I happen to have the Fibromyalgia & Fatigue Center of Philadelphia, like a half hour or so from me, I just found out recently. I called the facility to see if they accepted my insurance & they said they do not work like that, they charge you a fee ($100 for every visit!) & then give you a receipt with the proper codes on it to turn into your insurance company. Then your insurance company should then give you a refund, supposedly. I am going to contact my insurance company to find out if this is how it will really work. IREALLY want to go there & see if they have any other advice or treatment plans for me that I am not currently involved in. Who knows, it is worth a shot, I think. But if you are interested in checking out one of the facilities yourself near you, here is the link to the site for Fibromyalgia & Fatigue Centers, Inc. (FFC):
http://www.fibroandfatigue.com/
Also here is their phone number in case you'd like to set up an appointment at one:
CALL 1.866.443.4276 (M-Fri 7:30-9pm, Sat. 9-6pm)
or you could e-mail them at the "Contact Us" tab that is at the top of their webpage.
I will be certain to let all of you know how it goes for me when I get to finally go. Good luck to all of you if you choose to go & please, if you do, come back & tell us all about it. Thank you.
Your friend,
Diana (dfox111)
Friday February 20, 2009
NEWSBRIEF: Next year, the University of Nevada, Reno (UNR) will open an $86 million Center for Molecular Medicine that will include headquarters of the Whittemore Peterson Institute for Neuro-Immune Disease, which will conduct clinical trials and offer treatment for conditions such as fibromyalgia, chronic fatigue syndrome, and atypical multiple sclerosis.
The developers say the state-of-the-art facility will help them recruit top-notch researchers and faculty. The medical director will be Dr. Daniel Peterson, a leading chronic fatigue syndrome researcher.
A $5-million dollar donation for the facility came from Harvey and Annette Whittemore, whose daughter Andrea has lived with chronic fatigue syndrome for nearly two decades, since she was 12 years old. Annette Whittemore has been actively promoting chronic fatigue syndrome research since 1994.
Read more about the institute and its goals at this link: http://www.rgj.com/apps/pbcs.dll/a...
**The above information thankfully comes from Adrienne Dellwo at www.about.com 's Fibromyalgia & Chronic Fatigue Syndrome site.
**Now, I find this newsbrief to be very interesting because I am excited about the fact that somebody out there believes in us enough to have made such a donation to get a facility up & running to help people just like us out. That is just fantastic! Do any of you have such a center in your area? If so, please tell us a little about it.
I happen to have the Fibromyalgia & Fatigue Center of Philadelphia, like a half hour or so from me, I just found out recently. I called the facility to see if they accepted my insurance & they said they do not work like that, they charge you a fee ($100 for every visit!) & then give you a receipt with the proper codes on it to turn into your insurance company. Then your insurance company should then give you a refund, supposedly. I am going to contact my insurance company to find out if this is how it will really work. IREALLY want to go there & see if they have any other advice or treatment plans for me that I am not currently involved in. Who knows, it is worth a shot, I think. But if you are interested in checking out one of the facilities yourself near you, here is the link to the site for Fibromyalgia & Fatigue Centers, Inc. (FFC):
http://www.fibroandfatigue.com/
Also here is their phone number in case you'd like to set up an appointment at one:
CALL 1.866.443.4276 (M-Fri 7:30-9pm, Sat. 9-6pm)
or you could e-mail them at the "Contact Us" tab that is at the top of their webpage.
I will be certain to let all of you know how it goes for me when I get to finally go. Good luck to all of you if you choose to go & please, if you do, come back & tell us all about it. Thank you.
Your friend,
Diana (dfox111)
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Reply #1 06/04/09 5:22pm
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Reply #2 08/28/09 6:01am
Does anyone in Australia know of a centre that specializes in CFS in adults. I know there is a childrens and adolescents facility but I guess adults can be ignored. Ageist attitudes.
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