Nanette06

Doc wants to put me on Lupron..Scared.

Posted on 07/08/09, 05:12 am

Well I am grateful that someone else asked about Lupron, I was able to read some. I am faced with a delema, do I do the Lupron or not. I have read the horror stories, and some of the sucess stories. There seem to be more horror stories. I am a bit older than 21, (37), and I don't plan on having any more children. But the fear is still there. I don't know what to do. I have two weeks to make up my mind. I am very scared about this and uncomfortable with the side affects of the Lupron. There is so much negativity about it. And in the long run it might not help at all. I am just sick thinking about this.

• Reply #1 07/19/09  12:16pm
  
  Ladyoonagh
  I ultimately decided not to do the Lupron. The side effects were too great for a success rate that is less than ideal. I'm currently doing accupuncture and seeing a naturopath who has put me on a diet, and I'm feeling tons better. I'm not the type to believe in this new-age stuff, but I can't deny that it's working. My thoughts are, I'll do t he accupuncture and diet because they can't hurt, and if the endo gets worse I'll do the Lupron. I just didn't want to risk my sanity, happiness, and fertility for 6 months of hell that might not even work.
• Reply #2 07/27/09  12:02am
  
  mysticduck
  I know EXACTLY how ur feeling... i was in the same place... but for me it was when i was 16, and i got online and just researched all i could find,and you are so right, EVERYTHING seems to be negative, everyone seems to hav a horror story! i was so scared and overwhealmed, and i kno the pressure and everything... what really scared me was what everyone said about the first 2 weeks...but i could not even move anymore for the pain had gotten that bad and i did it... it was one of the best decisions i have ever made in my entire life... i was so amazed... i didnt even hav a problem within the first 2 weeks...it went all fine and i started noticing a reduction in the pain within a few weeks! now it wasnt a miracle or anything, i had to and still am seeing a pain doc, but i was able to function again b/c of the lupron... it worked so well for me, and i felt a little mad at myself that i was so scared! but i completely understand why.. i kno that not all people hav the exp i had, but honestly for the benefits its given me, i would tell anyone to try it! for how much its helped me, i really do think its worth a try! and the shots dont only come in 6 month doses, they also come in 3 month and 1 month! what i did, and what i think is a good plan, is to start with the one month... that way u will know in the 3rd and 4th week if it has helped at all, if its worth continuing so things might get even better, what kind of side effects ull hav and so forth... OH, and i wanted to say, i dont have my period while on it -which was a godsend cuz i was always in debelitating pain at those times- but i do hav side effects... i hav hot flashes and nite sweats, and sometimes my mood is a little ify...but they really arent that bad, and for the benefits! man are they worth it!
  
  Hope this helped some, didnt mean to ramble on, but wanted to give u all the info i could! plz just ask if u hav any more questions and u can always feel free to talk to me if u want!
• Reply #3 07/29/09  1:02pm
  
  kelly7463
  Well, me personally I know 2 people one it worked for and one her and her husband called hell in a shot. I decided to not get the shot...and have had dr.s try and convince me to get it at least 5 times. I personally think Lupron is pushed in the dr. community as a standard treatment and it should be a last resort.
  
  You could always try it and if the side effects are too much they can do add-back therapy.
  
  I am very happy I refused Lupron because I found out later my actual pain now is from scar tissue not actual endometriosis. now, I'm on the Depo shot birth control and it takes care of my pain.
  
  My personal opinion is to use Lupron as a last resort. Even with Lupron, when the treatment stops the pain comes back.
  
  Everyone is different, so you just have to decide if the risks are worth it and if you got a owrse case scenario could your family handle it? ANd have a plan with your Dr. incase it gets too be too much.
• Reply #4 09/09/09  11:37am
  
  missy7
  There are a few people on DS that have had sucess with Lupron. My opinion...the risks out weigh the possible benefits. This drug, in my opinion should be taken off the market. Did you know that this drug is also used as a cancer treatment in Men with prostate cancer? I could only suffer through one injection of Lupron. I had a very bad adverse reaction. I am not trying to scare you but I was not myself, lost a lot of blood, was in pain, had vision problems and could barely carry on a conversation with another person. It was horrible. I would rather suffer through endo that inject that crap into my body again. Once again, like I said, there are woemen that have had sucess but not enough to keep this drug on the market. I guess it is really a personal decision that you are going to have to make. I would think it through very thoruoghly. Good luck! I hope this helps you!

Topics on how to give positive advice on Endometriosis and how to help with the pain.